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Health Links
(The documents on these sites are presented in their original language.)
The following links offer information on issues related to health information
and privacy. Some of them lead to privacy reference materials developed by
privacy advocacy groups, patients' rights groups, medical associations and
provincial privacy bodies. Others will take you to sites that contain
information on current initiatives that threaten health information privacy. In
general, we hope this page provides an informative introduction to the health
information privacy debate.
Recent Statements on Health by the Privacy Commissioner of Canada and Senior Officials
The Advent of Electronic Health Records (EHRs) in the Current Legal and Policy Context
Electronic Health Information & Privacy Conference
Ottawa Centre for Research and Innovation
Address by Patricia Kosseim, General Counsel
Ottawa, Ontario
November 30, 2005
Rising to the Challenge
8th Annual Access and Privacy Conference
Address by Jennifer Stoddart, Privacy Commissioner of Canada
Edmonton, Alberta
June 17, 2005
Coordinating Investigations: How the Federal and Provincial Commissioners are Working Together
Personal Health Information Protection Act Conference 2005
Address by Patricia Kosseim, General Counsel
Toronto, Ontario
May 4, 2005
Health Information Privacy
4th Annual Health Information Privacy Conference
Address by Patricia Kosseim, General Counsel
Toronto, Ontario
January 17, 2005
Bill C-12, the Quarantine Act
House Standing Committee on Health
Statement by Raymond D'Aoust, Assistant Privacy Commissioner of Canada
Ottawa, Ontario
November 18, 2004
Privacy Laws & Health Information: Making it Work
Privacy Laws & Health Information Conference
Address by Jennifer Stoddart, Privacy Commissioner of Canada
Regina, Saskatchewan
October 27, 2004
Building Bridges — Implementing PIPEDA
Access & Privacy Conference 2004, hosted by the University of Alberta
Edmonton, Alberta
Address by Jennifer Stoddart, Privacy Commissioner of Canada
June 10, 2004
Statement to the Senate Standing Committee on Social Affairs, Science and Technology regarding Bill C-6, the Assisted Human Reproduction Act Ottawa, Ontario Address by Jennifer Stoddart, Privacy Commissioner of Canada March 3, 2004
Other resources
Health Canada: Office of Health and the Information Highway
Health Canada: proposed Assisted Human Reproduction legislation
Health Canada - Health Protection Branch: Legislative Renewal
Health Canada is engaging in a fundamental review of the federal health protection legislation.
Canadian Institute for Health Information (CIHI)
Statistics Canada: Canadian Community Health Survey
Canada Health Infoway Inc.
- Canada Health Infoway Inc., an independent, not-for-profit corporation that is working toward accelerating the development of electronic health records. http://www.canadahealthinfoway.ca/
Alberta
British Columbia
Manitoba
Ontario
Quebec
Saskatchewan
Supreme Court of Canada
U.S. Court Decisions
- Tarasoff v. Regents of the University of California. This case is
discussed in the Canadian context in "Bioethics for clinicians: Confidentiality" by Irwin Kleinman, MD; Françoise Baylis, PhD; Sandra Rodgers, LLB/BCL, LLM; Peter Singer, MD, MPH in the CMAJ 1997;156:521-4 http://www.cmaj.ca/cgi/content/abstract/156/4/521
- Anonymous v. CVS Corp.: N.Y. Sup. Ct. - No. 604804/99, March 1, 2001. In this case, the New York State Supreme Court ruled that pharmacies have a fiduciary duty of confidentiality with respect to customers' prescription records.
Australia
Europe
New Zealand
United Kingdom
United States
World Medical Association
- World Medical Association Declaration of Helsinki - Recommendations
Guiding Medical Doctors in Biomedical Research Involving Human Subjects: http://www.wma.net/e/policy/b3.htm
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