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Call for comments
Reconsidering Privacy and Confidentiality in the TCPS
Call for Comments : Open from 7 February - 10
April 2006
(extended until 10 May 2006)
NOW CLOSED
As part of PRE's Ongoing Season
of Consultations
This is an open invitation to participate in a consultation on evolving the Tri-Council Policy Statement: Ethical Conduct for Research Involving Humans (TCPS) to be more inclusive of the full diversity of Canada’s research community by better meeting the needs of Canada’s Social Sciences and Humanities (SSH) Communities with respect to privacy and confidentiality issues.
The deadline for receiving submissions is 10 April 2006 (extended until 10 May 2006) at sshwc@pre.ethics.gc.ca or fax: (613) 996-7117.
Please help us distribute this public call for comments as widely as possible by sharing it with others who may be interested in responding.
Background
The Interagency Advisory Panel on Research Ethics1
(PRE) is a body of external experts established in November 2001 by
Canada's three Federal Granting Agencies (Canadian Institutes of Health
Research, Natural Sciences and Engineering Research Council and Social
Sciences and Humanities Research Council), to support the development
and evolution of their joint research ethics policy the Tri-Council
Policy Statement: Ethical Conduct for Research Involving Humans
(TCPS). The Agencies’ commitment of keeping it a living, or "evolving",
document and respond to new research developments and identified gaps
in the Policy resulted in PRE’s mandate of advising the Agencies
on the evolution, interpretation, implementation and educational needs
of the TCPS. PRE's independent and multi-disciplinary advice is intended
to promote high standards of ethical conduct, advance the protection
of human research participants, and enhance accountability in research
ethics.
Social Sciences and Humanities Research and the TCPS
To fulfill its mandate, the Interagency Advisory Panel on Research Ethics
(PRE) has established a number of working committees, including PRE's
Social Sciences and Humanities Research Ethics Special Working Committee
(SSHWC)2 in November 2002. SSHWC's mandate
is to provide advice and recommendations to PRE on (a) priorities, and
(b) methods and strategies for coherently addressing priority ethical
issues in social sciences and humanities research involving human participants
and (c) to co-ordinate and oversee the development of identified SS&H
priority issues for social sciences and humanities. Consistent with
PRE’s first principles,
SSHWC’s work is based on principles of transparency, community
engagement and consultation.
Privacy Issues and Community Input
As a result of consultation in 2003 and a consultation report in 2004,
Giving Voice to the Spectrum3,
SSHWC has developed a work plan that includes the development of a discussion
paper on Privacy and Confidentiality research ethics issues. SSHWC now
seeks input and feedback on the discussion paper from the research ethics
community affected by them, including researchers, REB members, research
ethics administrators, research participants, and other interested parties,
to determine their appropriateness as well as to ensure that they do
not interfere with those approaches and areas that are already addressed
in the TCPS. Comments from the research community will assist SSHWC
in drafting policy recommendations for consideration by PRE on privacy
and confidentiality issues that may require (re)-consideration in the
TCPS or complementary initiatives that may assist in the implementation,
use and interpretation of the TCPS. The Committee welcomes your commentary
on these and other issues that you believe are important for them to
consider. The Committee invites comments on the specific questions listed
below as well as any comment that may assist it in its further steps.
Next Steps
The next steps include consideration of the comments, drafting of recommendations,
and public consultation on the latter.
Please send comments to SSHWC: sshwc@pre.ethics.gc.ca or fax to (613) 996-7117 by 10 April 2006 (extended until 10 May 2006) .
|
Reconsidering Privacy and Confidentiality in the TCPS Full Print Package (PDF) |
| Coordinates: Secretariat on Research Ethics SSHWC-Privacy and Confidentiality 350 Albert Street Ottawa K1A 5H6 |
Email: sshwc@pre.ethics.gc.ca Tel. SRE: (613) 996-0072 Tel. Th. De Groote: (613) 996-1062 Fax: (613) 996-7117 |
Paper copies of the document are available through secretariat@pre.ethics.gc.ca.
2 http://www.pre.ethics.gc.ca/english/workgroups/sshwc.cfm
3 www.pre.ethics.gc.ca/english/workgroups/sshwc/SSHWCVoiceReportJune
2004.pdf
| Last Modified: 2006-05-17 | 
|
Important Notices |
