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Institute of Cancer Research (ICR)

Access to Quality Cancer Care - Workshop Report

June 14th 2005 - Vancouver, British Columbia

Table of Contents

Executive Summary
  Introduction
  Access to Quality Cancer Care
  Access to Quality Cancer Care Workshop
  The Recommendations
  Path Forward
Workshop Report
  Welcome and Introductions - Dr. Philip Branton
  Setting the Stage
      Access to Quality Cancer Care: Background and Objectives - Dr. Bill Mackillop
      CHRSF - Priorities, Programs and Opportunities - Susan Law
      Access to CIHR $$ for Research on Access to Care - Dr. Morris Barer
      Access to Quality Cancer Care from the CSCC perspective - Dr. Simon Sutcliffe
  Break-out Session 1
  Break-out Session 2
  Next Steps
Appendices
  Appendix 1 Workshop Participants
  Appendix 2 Workshop Agenda

Executive Summary

Introduction

Timely access to high quality health care remains a top priority for Canadians. In recent months, access to health care has received a great deal of publicity in response to concerns that access to many Canadian health care services and programs is not optimal. Attention has focused primarily on excessive wait times for health services across the spectrum of care and questions about the impact of unreasonably long delays for medical interventions and treatments on the quality of life and survival of patients. In response to the public's growing concern about the public health care system, the First Ministers, at their September 2004 conference, made a commitment to reduce wait times and improve access by determining evidence-based benchmarks for medically acceptable wait times in identified priority areas including cancer. Since then there has been a flurry of activity across the country including the creation of the Wait Time Alliance, the publication of a number of provincial and Canada-wide reports on the status of the Canadian health care system and the launch of a research initiative by the Canadian Institutes of Health Research (CIHR) that will provide evidence to inform the work of the Provincial/Territorial Deputy Ministers of Health.

Access to Quality Cancer Care

Issues related specifically to access to cancer care include concerns about excessive wait times for primary/community and specialized/diagnostic services throughout the entire cancer control spectrum - prevention, screening, diagnosis, treatment, quality of life and palliation. However, for cancer, the problem extends beyond wait times to include economic factors related to the spiraling cost of the new generation of available technologies and treatments. Inequality of access is also of concern particularly for those living in rural and northern communities and for vulnerable and marginalized populations.

The CIHR Institute of Cancer Research (ICR) is committed to supporting outstanding research to address important priorities in cancer control.  In response to the concern over access to care, the Institute recently adopted 'access to quality cancer care' as a seventh Institute strategic research priority. As a first step, ICR invited health services researchers and representatives from 18 organizations with an interest in access to care issues to attend a one-day workshop in Vancouver (for details, please refer to the workshop Report).

Access to Quality Cancer Care Workshop

The workshop combined a review of issues related to access to quality cancer care and an overview of existing health services research opportunities, with free ranging discussions on priority research questions and solutions. The primary objective of the workshop was to gather information to inform ICR and partners on the appropriate course of action in the development of a Request for Applications (RFA) designed to provide answers to important policy questions on the organization and delivery of cancer care. To guide the discussions, participants were provided with the research synthesis questions identified in the national consultation process that led to the release of the Listening for Direction II (LfDII) report by the CIHR Institute of Heath Services and Policy Research, the Canadian Foundation for Health Services Research and partners. This report is the product of a two-stage consultation with health service researchers, service providers, and decision/policy makers and is a reliable resource for identifying Canada's health services research issues and priorities. Workshop participants were asked to look at these priorities through a "cancer lens" and identify areas of particular importance to the problems in access to quality cancer care. Participants identified several aspects of LfDII themes that seemed relevant to access to quality cancer care. They were:

Organizational Aspects of Access to Quality Cancer Care

Ethical Funding and Resource Allocation

Enhancing Information Systems

The Recommendations

Information gathered at the workshop pointed to a disconnect between those who have the information and those who use it at several levels within the health care system. The overarching recommendation from the workshop participants was for improved system management and  integration that aligns with patient needs across the entire cancer care system, so that the system becomes more flexible and responsive to the needs of the population.  This improved system would need to be supported by strong technology and informatics platforms that were uniform across the country. In order to accomplish this goal, a research structure is required that will focus on integration and team building across sectors. There were several recommendations for appropriate funding programs. They included:

Path Forward

The information gathered at the workshop and the recommendations made by participants will be used as the basis for the development of an RFA focused on access to quality cancer care for launch in December 2005. The workshop report will be considered by partner organizations including members of the Canadian Cancer Research Alliance, and the exact scope of the RFA and the funding tools selected will depend on the results of these discussions and the commitment of partners to support the initiative.

Workshop Report

(please refer to the workshop agenda in Appendix 2)

Welcome and Introductions

The workshop was called to order by Judith Bray, Assistant Director of the CIHR Institute of Cancer Research (ICR) who welcomed participants (see Participants List, Appendix 1) and thanked Erik Blache and Amanda Devost for their hard work in organizing the event and also steering committee members Bill Mackillop, Margaret Fitch and Roy Cameron, for their contribution to workshop planning and facilitation.  Many of the participants were representing organizations and agencies with an interest in health services research (Table 1). It is hoped that these organizations will participate as partners in the design and launch of a research initiative on access to quality cancer care.

Table 1: Organizations represented at the meeting

 Organization Acronym 
 British Columbia Cancer Agency  BCCA
 Canadian Association of Provincial Cancer Agencies  CAPCA
 Canadian Health Services Research Foundation  CHSRF
 Canadian Institute of Health Information  CIHI
 Canadian Institutes of Health Research
- Institute of Cancer Research
- Institute of Health Services and Policy Research
 CIHR
 ICR
 IHSPR
 Canadian Medical Association  CMA
 Canadian Strategy for Cancer Control  CSCC
 Cancer Care Ontario  CCO
 Cancer Care Manitoba  CCM
 Cardiac Care Network of Ontario  CCNO
 Health Canada  HC
 Institute for Clinical Evaluative Sciences  ICES
 Ministère de la santé et des services sociaux  MSSS
 National Cancer Institute of Canada  NCIC
 Ovarian Cancer Canada  OCC
 Public Health Agency of Canada  PHAC
 Royal College of Physicians and Surgeons of Canada  RCPSC
 Statistics Canada  SC

J. Bray introduced the Scientific Director of ICR, Philip Branton who began by describing the extremely successful palliative and end-of-life care initiative as an example of the accomplishments possible through partnership and community engagement. The launch of this initiative in partnership with seven other CIHR Institutes and eight external organizations resulted in the funding of a Strategic Training Centre, a Career Transition Award, 19 one-year Pilot Project grants and 10 five-year New Emerging Teams for a total financial commitment of over $16.5 million. The recent creation of a dedicated peer review panel and the initiation of an international partnership with the National Cancer Institute - NCI (US) and the National Cancer Research Institute - NCRI (UK) have made this initiative the largest of its kind, changing the face of palliative care research in Canada and setting an example for the rest of the world. Based on this success, ICR hopes that through a combined effort involving the key stakeholders represented at this workshop, we can launch a research initiative that will have a similar dramatic impact on Canadian health services research in the cancer field.  ICR has committed up to $1.5 million per year for five years in support of research on access to quality cancer care. It is hoped that this amount can be significantly increased through partnership, perhaps via the recently created Canadian Cancer Research Alliance (CCRA). CCRA for the first time brings together 24 organizations with a commitment to cancer control, including all the major Canadian cancer research funding agencies, to create and support a national research agenda. CCRA has replaced the research action group of the CSCC.

Setting the Stage

The primary purpose of the workshop was to obtain advice and input from a diverse group of individuals representing both the health services research community and organizations with an interest in access to quality health care. The day began with four short presentations to set the stage and ensure that participants shared a common understanding of the important research issues in access to quality cancer care and ongoing health services research in Canada.

The first speaker was Dr Bill Mackillop - "Access to Quality Cancer care: Background and Objectives"

Highlights of the Presentation and Discussion
Due to our aging population cancer control has become an escalating public health problem and access to cancer care has become a major public policy issue characterized by a focus on excessive wait times for both primary/community care and specialized/ diagnostic services. However, access to care involves far more than just improved management of waiting lists, and encompasses the availability of human resources, facilities and equipment, the awareness of the population in terms of available services and the accessibility of care for rural/remote communities and minority/vulnerable groups. Access to health care is also closely linked to quality of care and improved access must not be achieved at the expense of the quality of that care. There is a danger that the current heightened public and political awareness of issues around access to care may mask equivalent problems related to quality of care.

The role of research in cancer control is to reduce the burden of cancer through the discovery of new or improved ways to prevent, detect and treat cancer. The role of health services research is to learn how to get the most out of new technologies and treatments in a way that will be of greatest benefit to the patient. Health services research in cancer is important because access to programs for prevention, screening and treatment and the quality of cancer control programs in Canada is not optimal. These defects in accessibility and quality represent opportunities for improving outcomes. Identified problems related to health services research include the following:

ICR has adopted access to quality cancer care as a strategic research priority because it is a public policy priority. The purpose of this workshop is to get advice on the status of research on access and quality in the field of cancer control and define a role for ICR in promoting and supporting research on access to quality cancer care. IHSPR and CHSRF have already identified national priorities for health services research and CSCC has a strong interest in this area. Unlike basic and clinical research that generally yields results that are broadly applicable internationally, health services research is often specific for individual health care systems and if we don't support strong health services research in Canada, no one else will.

The second speaker was Susan Law, Director, Research Programs, CHSRF - "CHSRF - Priorities, Programs and Opportunities"

Highlights of the Presentation and Discussion
CHSRF is a private, non-profit foundation that is incorporated as a registered charity under the Canadian Corporations Act. The CHSRF mission is to support evidence-based decision-making in the organization, management and delivery of health services through funding research, building capacity and transferring knowledge. Supported by a $120 million endowment fund, CHSRF operates on a $15 million per year annual budget and is governed by a Board of 15 trustees comprised of researchers and decision makers with regional representation. CHSRF led, in partnership with IHSPR, the Listening for Direction (LfD) I and II exercise which, through broad national consultation, identified a series of health system priority issues and related research themes and questions. The process involved information gathering, a series of regional consultation workshops, a national workshop and the subsequent sorting, translating and validation steps that led to the development of the report 'Listening for Direction II'. LfDII identified the following 10 priority research themes:

CHSRF has adopted four strategic themes for 2004/2007: primary healthcare, nursing organization, leadership and policy, management of the healthcare workplace and managing for quality and safety. The first two of these themes have been long-standing commitments of the foundation. A fifth theme, managing and adapting to change was adopted as a cross-cutting theme for foundation activities. The LfDII priority setting process has been used widely across Canada and internationally and is a useful and reliable platform for discussions at this workshop.

The basic 'tools' or activities funded by CHSRF and its partners include research, knowledge transfer, capacity development and 'linkage and exchange' (bringing researchers and decision makers together). The foundation launched a new health services research program "Research, Impact, Exchange for System Support" in 2005 in addition to its synthesis and commissioned research program. The CADRE program (jointly funded by CHSRF and CIHR) builds capacity in health services research through a 10-year program of individual Chairs and regional training centre awards and funds post-doctoral and career reorientation awards. Through these and related initiatives, CHSRF has made a modest contribution to health services research in the cancer field. Since 1999, 13 projects have been funded that are directly related to cancer while many more generic projects may be applicable to health services research in cancer. CHSRF programs offer an ideal opportunity for combining research, knowledge translation and capacity development and it is hoped that this workshop will encourage more cancer researchers to take advantage of these programs.

The third speaker was Morris Barer, Scientific Director of IHSPR - "Access to CIHR $$ for Research on Access to Care"

Highlights of the Presentation and Discussion
IHSPR has launched the following health services research programs based on LfDII recommendations and identified priorities:

Several projects have already been funded in the timely access to health care, and wait time management and reporting themes, but the response from the cancer health services research community has been poor and ICR has only been a partner on one initiative - the "Toward Canadian Benchmarks for Health Services Wait Times - Evidence, Application and Research Priorities" RFA in which four projects related to cancer were funded (see Table 2)

Table 2 - Projects funded under the "Toward Canadian Benchmarks for Health Services Wait Times - Evidence, Application and Research Priorities" RFA

 Applicant Project Title 

 Mackillop, William J.
 Queen's University

Toward Canadian benchmarks for waiting times for radiotherapy for cancer: Synthesizing the evidence and establishing research priorities
 Moayyedi, Paul
 McMaster University
An evidence-based assessment of appropriate waiting times for gastrointestinal cancers
 Taylor, Mark
 CancerCare Manitoba
Determining acceptable waiting times for the surgical treatment of solid organ malignancies
 Winget, Marcy D.
 Alberta Cancer Board
Moving evidence to application: A three province cancer collaborative

This is a disappointing response, particularly in the case of the PHSI program. PHSI is the ideal vehicle for health services research across the health spectrum and offers the advantage of a built-in knowledge translation component and partnership opportunities. PHSI supports teams of researchers and decision-makers doing applied health systems/services research useful to managers and/or policy makers in LfD II themes and in areas of nursing leadership, organization and policy. The program provides up to three years of operating grant funding and applications are subject to a merit review by a panel comprised of equal numbers of researchers and decision makers. Of the 39 full applications received for the 2004 competition, 10 were related to the theme 'access to quality care for all', but none were specifically related to access to cancer care.

In addition to the ongoing opportunity of the PHSI and Scoping/synthesis programs, additional CIHR opportunities for health services research include the large team grants that will replace CIHR group grants, the interdisciplinary health research teams (IHRT) and the community alliances in health research (CAHR) programs, and the smaller new team grants that will replace programs such as the new emerging teams (NET) program. Large scale training programs may also be an option and discussions are just beginning regarding the next steps following the success of the two previous rounds of CIHR's Strategic Training Programs in Health Research initiative. There is also always the opportunity of creating purpose-built research programs, although this practice is likely to be discouraged in the new era of a "Better, Simpler CIHR".

The fourth speaker was Simon Sutcliffe, Chair, Governing Council, CSCC - "Access to Quality Cancer Care from the CSCC Perspective"

Highlights of the Presentation and Discussion
The presentation began with the caution that we need clear definitions and terminology relating to the terms access, quality, care and performance. We need to be able to transfer definitions and values across the system. It's not always clear what we are measuring and whose perception we are using e.g. patient, provider, researcher, funder. We also need to establish which parts of the cancer control spectrum will be included in our discussions on access to quality cancer care and whether we will consider the entire continuum from prevention to palliation.

The Canadian Strategy for Cancer Control (CSCC) is a unifying approach to cancer control that has been developed to facilitate knowledge transformation and transfer across Canada as a means whereby the goals of the Strategy can be achieved.

The goals of the CSCC are to:

Key elements of the Strategy are an evidence-based information platform, identification of priorities, and integration and respect for Federal/Provincial/Territorial roles.

CSCC has identified the following eight priority areas and has established an action group in each area:

Many of these priorities intersect with issues related to access to quality cancer care and also with the research themes identified in LfDII.  Access to cancer care is perhaps more about patient satisfaction and perceptions than actual wait times, so it is important to determine what can be done to improve patient satisfaction and consider out of all the things we could do to enhance performance, which would give the best return on investment and how can we obtain national consensus on the value and definition of benchmarks. We need to set long term goals that will have the greatest impact on incidence, mortality and quality of life for those living with cancer. At the centre is the patient experience from diagnosis to palliation and the broad range of factors that affect satisfaction and outcome including access in rural and remote areas and the special needs of vulnerable or marginalized populations. The patient and broader community should be engaged when addressing issues related to cancer care to ensure two-way transfer of the knowledge used for decision making and to include their input and perspective in the design of programs and research initiatives aimed at improving the patient experience.

Break-out Session 1

Participants were divided into three break-out groups. Each group was asked to identify priority research issues and questions related to access to quality cancer care and consider existing Canadian research strengths and weaknesses. Participants were provided with the research synthesis questions generated by LfDII and also the eight specific research questions identified under the theme of 'Timely Access to Quality Care for All'. Rather than "reinvent the wheel", participants were encouraged to use this information as guidance when determining priorities specific for cancer care.

Following the breakout session the whole group re-convened in plenary. Many different ideas and themes emerged as being important to access to quality cancer care, but the following issues (in no priority order) emerged consistently among the groups:

Priority Research Issues

Organziational Aspects of Access to Quality Cancer Care

Ethical Funding and Resource Allocation  

Enhancing Information Systems

 Canadian Strengths and Opportunities

The group presentations were followed by a lively discussion. It was agreed that most of the issues raised were inter-related and could have an impact on both access to and quality of cancer care. The point was made that there would be little point taking measures that would improve access to care at the expense of the quality of care, although the assumption that excellent access and excellent quality are even achievable at the same time might be optimistic. There was also discussion about what an initiative might look like and whether it should start out as a pan-Canadian study or have an initial focus at the provincial level. The need for appropriate peer review was also addressed.

Break-out Session 2

This breakout session focused on the barriers to health services research in cancer and the appropriate funding tools for a research initiative. Several barriers to health services research in cancer were identified including:

Barriers to Health Services Research

Funding Tools

It became clear during the initial presentations that there are an increasing number of opportunities for health services research in Canada but that so far the cancer community has not been taking full advantage of these opportunities. One reason could be a lack of awareness of the available funding programs, but it is perhaps more likely that the lack of response represents a capacity issue and that the barriers to health research listed above have served as a deterrent to health services researchers in the cancer field.

There was consensus among participants that an urgent need exists to "connect the dots" and form linkages between the various groups involved in access to health care issues e.g. the healthy population, cancer patients, survivors, researchers, front line health care workers, experts (e.g. radiologists, surgeons, primary care physicians, pediatric oncologists), decision/policy makers, funding organizations and more. Knowledge uptake and changes in management structure and policy are more likely to occur if these different groups are involved from the beginning in the design, execution and implementation of research programs.

Given the success of the Palliative and End-of-Life Care initiative and based on similar needs in the two communities, it was widely acknowledged that a flexible funding tool will be required that offers a number of different opportunities under one large initiative. Suggested programs included the following:

Small Team Grants
The purpose of these grants is to build capacity in new and developing areas of research; to build new research teams; and to give researchers a building block for applying for research funding in future years. The objectives of the Small Team Grants program are to:

Grants are funded at a maximum level of $300,000/year for five years unless stated otherwise in the Request for Applications (RFA).

CIHR Team Grant
This program is an ongoing program of CIHR, now part of the regular suite of programs offered by CIHR to the research community. The second competition will be launched in June, 2005. The objective of the CIHR Team Grant program is to strengthen Canadian health research by supporting teams of talented and experienced researchers conducting high-quality research and providing superior research training and mentorship. The program emphasis is on the production of new knowledge, and the translation of research findings into improvements in the health of Canadians and the Canadian health care system. These results will be realized more rapidly and more efficiently through the CIHR Team Grant program than if the components were to be funded as a series of separate operating grants. Eligible teams will consist of at least three independent investigators, each of whom has an established research track record in areas related to the collaborative project(s) proposed. The unifying element underlying all successful CIHR Teams is a commitment to excellence and the pursuit of a problem-based, collaborative approach to health research. Only in exceptional circumstances will individual grants exceed $2 million per year.

Strategic Training Program Grant
This program was originally designed to build capacity within Canada's health research community through the training and development of researchers, and foster the development and ongoing support of the scientific careers of individuals in health research. Funding is for up to six years and CIHR's contribution to a single grant cannot exceed $300,000. The program is now up for review and discussions are ongoing concerning a possible third launch.
    
Salary Awards 
CIHR offers a number of short and long term career award programs, including a variety of Salary Awards ( e.g.New Investigators, Industry-partnered Investigators, Research Chairs) and many different kinds of training awards (e.g. Clinician Scientist Awards, Doctoral Research Awards and Fellowships).

Career Transition Awards
These awards are designed to attract existing faculty members to undertake rigorous training outside of their primary research area, either to broaden their perspective in a complementary research area or to prepare for a career move into a new field of research. Awards are for one year and provide up to $70,000 to support 100% release from teaching and administrative responsibilities, plus an additional $10,000 research allowance. This program might be an appropriate way to attract health services researchers from other fields into the cancer arena.

Discussion focused on Small Team Grants with an opportunity for the addition of Salary Awards and Training Grants if required. The Small Team Grants offer the potential for the kind of networking between disciplines, expertise and even location (pairing rural with urban institutions) that emerged as an essential component for success during the workshop. Emphasis was placed on the need to bring policy/decision makers and health services researchers together to ensure that knowledge translation is an integral part of the grant with concrete plans for mechanisms of knowledge uptake. It was suggested that some team grants could be site-specific and act almost as demonstration projects. For example a study focused on all possible aspects of access to quality care for breast cancer from prevention to palliation. Other teams could be thematic and focus for example on health economic aspects of access, or specific areas such as access to and quality of radiotherapy or surgery, across the entire cancer spectrum.

Next Steps

Phil Branton thanked participants for contributing their knowledge, experience and unique perspectives to the day's discussions.  Based on the information gathered at the workshop and the recommendations and suggestions of the participants, ICR staff will consult with potential partners regarding the next steps. The workshop recommendations will be considered at the next CCRA board meeting and may form the basis of the first CCRA initiative. It is hoped to be able to develop an RFA for launch in December 2005. The specific focus of this RFA and the programs offered within it will be based on the workshop recommendations but may be refined in response to input from partners. Partnership opportunities with both IHSPR and CHSRF will be explored in the coming months to try and increase the number of applications from the cancer community to existing health services research programs.

Appendix 1

Participant List - Access to Quality Cancer

Owen Adams
Canadian Medical Association
1867 Alta Vista Drive
Ottawa, ON, K1G 3Y6
Tel: 1-800-663-7336 x 2259
owen.adams@cma.ca
Karen Hildebrand
CancerCare Manitoba
Room ON-2114
2114-675 McDermot Ave
Winnipeg, MB R3E 0V9
Tel: (204) 787-4388
karen.hildebrand@cancercare.mb.ca
Morris Barer
CIHR - Institute of Health Services and Policy Research (IHSPR)
University Market Place
Unit 209-2150 Western Parkway
Vancouver, BC, V6T 1V6
Tel: (604) 222-6872
mbarer@ihspr.ubc.ca
 David Hodgson
Institute for Clinical Evaluative Sciences (ICES), c/o University of Toronto
Princess Margaret Hospital
610 University Ave
Toronto, ON, M5G 2M9
Tel: (416) 946-2126 david.hodgson@rmp.uhn.on.ca
Kaushik Bhagat
British Columbia Cancer Agency
600 West 10th Avenue
Vancouver, BC V5Z 4E6
Te: (604) 877-6000 ext. 2259
kbhagat@bccancer.bc.ca
Susan Law
Canadian Health Services Research Foundation (CHSRF)
1565 Carling Avenue, Suite 700
Ottawa, ON, K1Z 8R1
Tel: (613) 728-2238 ext. 344
susan.law@chsrf.ca
Erik Blache
CIHR - Institute of Cancer Research
160 Elgin Street, Room 97
Address Locator: 4809A
Ottawa, ON, K1A 0W9
Tel: (613) 941-4329
eblache@cihr-irsc.gc.ca
Evelyn Lazare
Ovarian Cancer Canada
Suite 708, 777 West Broadway
Vancouver, BC, V5Z 4J7
Tel: (604) 676-3432
Toll Free: 1 800 749-9310
elazare@ovariancancercanada.ca

Philip Branton
CIHR - Institute of Cancer Research
Room 706
3655 Promenade Sir-William-Osler
Montreal, QC, H3G 1Y6
Tel: (514) 398-8350
philip.branton@mcgill.ca

 Felix Li
Public Health Agency of Canada
Office of Public Health Security
120 Colonnade Rd., Floor 2, Room B256
Address Locator 6702A
Ottawa, ON, K1A 0K9
Tel: (613) 946-6965
Felix_Li@phac-aspc.gc.ca
Judith Bray
CIHR - Institute of Cancer Research
160 Elgin Street, Room 97
Address Locator: 4809A
Ottawa, ON, K1A 0W9
Tel: (613)954-7223
jbray@cihr-irsc.gc.ca  
Victor Ling
British Columbia Cancer Agency
601 West 10th Ave
Vancouver, BC,  V5Z 1L3
Tel : (604) 877-6151
vling@bccancer.bc.ca
George Browman
Canadian Strategy for Cancer Control
c/o Alberta Cancer Board
1331 - 29 Street N.W.
Calgary, AB, T4N 4N2
Tel: (403) 521-3700
georgebr@cancerboard.ab.ca

Antoine Loutfi
Ministère de la santé et des services sociaux
c/o The Quebec Centre for Cancer Control
1075 chemin Ste-Foy, 7e étage
Quebec, QC, G1S 2M1
Tel: (418) 266-4605 
antoine.loutfi@msss.gouv.qc.ca

Roy Cameron
Centre for Behavioural Research and Program Evaluation
University of Waterloo
Lyle Hallman Institute, Room 1727
Waterloo, ON, N2L 3G1
Tel: (519)888-4503
cameron@healthy.uwaterloo.ca
William Mackillop
Community Health and Epidemiology
Abramsky Hall
Queen's University
Kingston, ON  K7L 3N6
Tel: (613) 533-6000 ext. 78509
william.mackillop@krcc.on.ca
Jim Davie
CancerCare Manitoba
Manitoba Institute of Cell Biology
675 McDermot Ave. Rm. ON5008B
Winnipeg, MB, R3E 0V9
Tel: (204) 787-2391     Lab: 787-2391
davie@ms.umanitoba.ca
Mary McBride
British Columbia Cancer Agency
675 West 10th Ave
Vancouver, BC  V5Z 1L3
Tel: (604) 675-8059
mmcbride@bccancer.bc.ca
Amanda Devost
CIHR - Institute of Cancer Research
160 Elgin Street, Room 97
Address Locator: 4809A
Ottawa, ON, K1A 0W9
Tel: (613) 941-0997
adevost@cihr-irsc.gc.ca
John McDonald
Royal College of Physicians and Surgeons of Canada; London Health Sciences Centre
University Campus, UWO
London, ON,  N6A 5A5
Tel: (519) 663-3550 ext. 33550
john.mcdonald@lhsc.on.ca
Richard Doll
British Columbia Cancer Agency
Sociobehavioural Research Center
200-601 West Broadway Street
Vancouver, BC, V5Z 4C2
Tel: (604) -877-6126
rdoll@bccancer.bc.ca
Sonja Nerad
Access Alliance Multicultural Community Health Centre
340 College Street, Suite 500
Toronto, Ontario   M5T 3A9
Tel: (416) 324 0927 ext. 225
snerad@accessalliance.ca
Anthony Fields
National Cancer Institute of Canada
c/o Alberta Cancer Board
#1220, 10405 Jasper Avenue
Edmonton, Alberta  T5J 3N4
Tel: (780) 412-6324
alaf@cancerboard.ab.ca
Fran Racher
Brandon University, Rural Development Institute, 270-18th Street
Brandon, MB   R7A6A9
Tel: (204) 727-7414
racher@brandonu.ca
Margaret Fitch
Toronto Sunnybrook Regional Cancer Centre - CancerCare Ontario
Room T2-234, 2075 Bayview Ave.
North York, ON  M4N 3M5
Tel: (416) 480-5891
marg.fitch@sw.ca
Claudia Sanmartin
Statistics Canada
Health Analysis and Measurement Group
120 Parkdale Avenue
Ottawa, ON, K1A 0T6
Tel: (613) 951-6059
claudia.sanmartin@statcan.ca
Nancy Gault
Canadian Institute for Health Information, Western Canada
880 Douglas Street, Suite 600
Victoria, BC V8W 2B7
Tel:  (250) 220-4115
ngault@cihi.ca

 Brent Schacter
Canadian Association of Provincial Cancer Agencies (CAPCA)
c/o CancerCare Manitoba
2055-675 McDermot Avenue
Winnipeg, MB R3E 0V9
Tel: (204)787-2128
brent.schacter@cancercare.mb.ca

Sylvie Gauthier
Health Canada
Quality Care, Technology and Pharmaceuticals Division, Tunney's Pasture
Ottawa, ON, K1A 0K9
Tel:  (613)946-3561 
sylvie_gauthier@hc-sc.gc.ca
Terry Sullivan
Cancer Care Ontario
620 University Avenue
Toronto, ON, M5G 2L7
Tel: (416) 217-1244
terry.sullivan@cancercare.on.ca
Kevin Glasgow
Cardiac Care Network of Ontario
4211 Yonge St., Ste. 210
Toronto, ON, M2P 2A9
Tel: (416) 512-7472; ext. 222
kglasgow@ccn.on.ca
Simon Sutcliffe
Canadian Strategy for Cancer Control
c/o British Columbia Cancer Agency
14th Floor, 675 West 10th Avenue
Vancouver, BC  V5Z 1L3
Tel:  (604)-675-8100
ssutclif@bccancer.bc.ca 
Mark Goldberg
Royal Victoria Hospital
McGill University Health Center-RVH
687 Pine Avenue West, R4.29
Montreal, QC, H3A 1A1
Tel.: (514) 934-1934 ext 36917
mark.goldberg@mcgill.ca
David Urbach
Toronto General Hospital Research Institute
200 Elizabeth Street, NU 10-214
Toronto, ON, M5G 2C4
Tel: (416) 340-4284
david.urbach@uhn.on.ca
Patti Groome
Queen's Cancer Research Institute
10 Stuart Street, Level 2
Kingston, ON, K7L 3N6
Tel: (613) 533-6000 ext. 78512
patti.groome@krcc.on.ca
 

Appendix 2

Access to Quality Cancer Care Workshop - Agenda
Tuesday, June 14th, 2005 - The Westin Bayshore Resort & Marina

 Time Item  Location 
 8:00  Registration/ Breakfast    Outside of Oak Room
 8:45  Welcoming remarks on behalf of CIHR-ICR
 P. Branton
 Oak Room
 9:00  "Access to Quality Cancer Care: Background and Objectives"
 W. Mackillop
 Oak Room
 9:20  "CHSRF-Priorities, Programs & Opportunities"
 S. Law
 Oak Room
 9:40  "Access to CIHR $$ for research on access to care"
 M. Barer
 Oak Room
 10:00  "Access to Quality Cancer Care from the CSCC perspective"
 S. Sutcliffe
 Oak Room
 10:20  Meeting Objectives and Logistics
 J. Bray
 Oak Room
 10:30  Health Break  Oustide of Oak Room
 10:45

Breakout session 1:

  • Round table introductions
  • Review of health services research priorities identified in Listening to Direction II from the perspective of the cancer control community
  • Identification of up to 10 research synthesis questions that are currently of high priority in the area of access to quality cancer care 
  • Determination of the extent to which these research priorities are currently being addressed in the cancer field
  • Identification of research gaps/areas of weakness 
Group A - Arbutus Room
Group B - Fir Room
Group C - Oak Room
 11:30  Plenary session and report-back  Oak Room
 12:30  Lunch Chairman's Room
(2nd floor of Tower)
 13:30

 Breakout session 2: 

  • Barriers to research and opportunities for enhancing research productivity in the area of access to quality cancer care
  • Identification of required resources eg. infrastructure/ capacity requirements
  • Potential research programs - existing/new
  • Partnerships - how to establish a national, coordinated approach 
Group A - Arbutus Room
Group B - Fir Room
Group C - Oak Room
 14:45  Health Break  Outside of Oak Room
 15:00  Plenary session and report-back  Oak Room
 16:00  Summary and Path Forward
 P. Branton and W. Mackillop
 Oak Room
 16:30  Reception, cocktails, informal discussions

Currents Restaurant
(main hotel lobby)

 17:30  Adjournment  


Created: 2005-08-08
Modified: 2005-08-10
Reviewed: 2005-08-08
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