Canada's Drug Strategy - Situational Analysis : Fetal Alcohol Syndrome/Fetal Alcohol Effects and the Effects of Other Substance Use During Pregnancy

6. List of Resources

The following resources were identified by the key informants. The resource lists are grouped under the respective province or territory. The lists should be viewed as illustrative rather than exhaustive.

1. British Columbia
   • “Fetal Alcohol Syndrome/Effects: A Framework for the Prevention and Support Draft”. BC Ministry for Children and Families, May, 1999.
   • “Who’s Asking? Measuring Demands in BC for Information About Fetal Alcohol Syndrome/Fetal Alcohol Effects (FAS/FAE) and Neonatal Abstinence Syndrome (NAS)” (C. Legge). Report III, prepared for the FAS/FAE Information Service Providers Committee, July, 1999.
   • “Moving Forward: FAS Activities in BC”, BC Ministry for Children and Families, October, 1999.
   • “Perinatal Substance Use Working Committee, Terms of Reference”, BC Women’s Hospital, 1998.
   • “Philosophy Statements for the Care of Women in the Perinatal Period Who are Substance-Using”. BC Women’s Hospital, Substance Dependency Team Protocols, Draft 8, July, 1997.
   • “FAS Community Action Guide: Working Together for the Prevention of Fetal Alcohol Syndrome” (1998), a joint project of the BC FAS Resource Society, the Aurora Centre at BC Women’s Hospital and the Ministry for Children and Families. The guide includes a copy of a national report entitled It Takes a Community.
   • “FAS and the Legal Process”, a resource addressing the justice system.
   • “FASNET” includes a case study on FAS/FAE for inclusion in a course for physicians and dental students at the University of British Columbia.
   • “Grounded in Hope: Our Community’s Policy Response to Fetal Alcohol Syndrome. A project of the Prince George FAS Community Coalition Network”, sponsored by the Northern Family Health Society and supported by Health Canada (1998).
   • “FAS and pFAS: Collective Action for Collective Solutions”.
   • “Community Prevention Guide”, by Anne George, 1993 Guide to developing strategies for the prevention of FAS/FAE & NAS. (wic@ywcavan.org).
   • "Guide for Parents, Teachers and Others Caring for Children with FAS/FAE or NAS”, by Anne George, revised 1997. (wic@ywcavan.org).
   • "Guide to Resources”, by Anne George, revised 1996. Includes print materials, videos, associations, and programs. (wic@ywcavan.org).
   • “Parenting children with Fetal Alcohol Syndrome: a guide for daily living” by Sara Graefe, sponsored by SNAP in BC and also distributed by the Adoption Council of Canada.
   • “Guidelines for the Care of Substance-Using Women and their Infants” (BC Reproductive Care Program, November, 1999)
     
2. Alberta
   • “Tri-Prairie Provinces Annual Report, Year One of the Prairie Province Partnership on Fetal Alcohol Syndrome (FAS), Fetal Alcohol Effects (FAE) and Alcohol-Related Birth Defects (ARBD)”.
   • “Alberta Partnership on Fetal Alcohol Syndrome, Terms of Reference”, May 1, 1999.
   • “Provincial FAS Initiative, FAS Community Projects First Status Report”, March/April, 1999 (Revised June 17, 1999). The Status report also includes lessons learned from projects.
   • “1999-2000 Strategic Plan on the Alberta Partnership on FAS (draft)”, May 13, 1999.
   • “Forever Home Strategy Session Summary Report”. Session was held in Edmonton, Feb. 8-9, 1999, sponsored by the Ministry for Child and Family Services Authorities.
   • “FAS/FAE Provincial Specialists Report for 1998-99”, Debolt, D., Vandenbrink, M., prepared for Sharon Heron, June, 1999.
   • “Clinical Practice Guidelines for Physicians and Midwives”.
   • In-service manual for teachers to care for children with FAS/FAE.
   • “Fetal Alcohol Syndrome: a hopeful challenge for children, families and communities”, by Carol Oliver and published by Health Promotion and Programs Branch, Health Canada, Calgary.
   • “Born Free” information package (concerning provision of non-alcoholic drinks to pregnant women by participating restaurants).
     
3. Saskatchewan
   • “Saskatchewan Institute on the Prevention of Handicaps Resource Catalogue”, 1999-2000
   • “FAS Resource Kits”: one on Prevention and a second on Living and Working with Individuals with FAS, available from the Saskatchewan Institute on the Prevention of Handicaps.
   • “FAS/E: A Community Perspective. Sharing Prevention and Intervention Strategies Regarding FAS/FAE Workshop Summary Report”, 1998.
   • “Saskatchewan FAS Coordinating Committee, Terms of Reference”, October, 1997.
   • “Community Development Initiatives”: grant forms, guiding principles, application form and description of selected projects, 1997.
   • “Annual Report on FAS/E Programming for Education and Prevention Project”, submitted to Saskatchewan Health by Saskatchewan Institute on Prevention of Handicaps, March, 1999.
   • “Parent FAS Newsletter”, available from the Saskatchewan Institute on the Prevention of Handicaps.
   • Training materials for professionals who work with young offenders who may have FAS/FAE, available from the Saskatchewan Institute on the Prevention of Handicaps.
     
4. Manitoba
   • “Manitoba FASNEWS”, Coalition on Alcohol and Pregnancy, Vol. 4, No. 2, Fall, 1999.
   • “FAS/E Range of Services” list. April, 1997
   • “Summary of Findings of the Manitoba Survey of Needs Regarding Fetal Alcohol Syndrome”. Children and Youth Secretariat, Coalition on Alcohol and Pregnancy, and Community Action for Children, 1998.
   • “The Manitoba Special Education Review: Equity, Capacity and Community – A Future Special Education in Manitoba”. Proactive Information Services, Ltd., 1998.
   • “Fetal Alcohol”, a pamphlet published by the Family Association of Manitoba.
   • Posters and brochures regarding the dangers of drinking while pregnant.
   • Alcohol warning signs produced by the Manitoba Liquor Control Commission.
   • FAS/FAE commercials.
   • “One Drink Won’t Hurt My Baby” brochure.
   • “Inter-agency book on FAS on Parent Interventions” (Fall, 1999).
     
5. Ontario
   • Canadian FAS/FAE-related reference lists compiled by Elspeth Ross, Adoption Council of Canada.
   • “Breaking the Cycle: report of the development phase, June, 1994-March 31, 1995”. A project of the Canadian Mothercraft Society, The Jean Tweed Treatment Centre, Metropolitan Toronto Children’s Aid Society, Motherisk, Hospital for Sick Children.
   • “Breaking the Cycle: A Chance for New Beginnings: Report I – the development phase”.
   • “Breaking the Cycle: A Chance for New Beginnings: Report II – learning from Year 1”.
   • “Breaking the Cycle: the Evaluation Report 1995-1997”, February, 1998.
   • “Working Together for a Better Tomorrow: Proceedings of the FAS Friends” Ontario Provincial Conference. Breaking the Cycle, Toronto, Canada. Jan. 23-24, 1999.
   • 1-800 number for the Motherisk Program, Toronto Hospital for Sick Children.
   • A magazine folder of FAS/FAE information resources, May, 1999.
   • The Motherisk Web site ( www.motherisk.org).
   • Maternal Fetal Toxicology – A Clinician’s Guide, 3rd edition. Editor Gideon Koren. Published by Marcel Dekker, NY. (in press)
   • Adoption Council of Canada’s information on FAS/FAE.
   • FASLink, a listserv for parents.
   • “FAS/E Parenting Manual” started by SNAP in BC and also distributed by the Adoption Council of Canada.
     
     
6. Quebec
   • Pamphlet on FAS/FAE (English) developed by an Inuit nurse in Centre de santé Kujiuak.
   • Pregnancy and Alcohol pamphlet.
   • “Pregnancy and Alcohol in Question” produced by the Quebec College of Physicians and the Provincial Government’s alcohol distribution agency, 1993.
   • SAFERA is a francophone FAS/FAE parent association with its own Web site ( http://www.safera.qc.ca/).
   • The National Indian and Inuit Community Health Representatives Organization’s (NIICHRO). Presentation by Janet Amos (http://www.total.net/~niichro/Prenatal/Pren5.html).
     
     
7. New Brunswick
   • “Standards for Addiction Services” includes a component on women who come in for treatment and counselling.
     
     
8. Nova Scotia
   • “Empowering Our Communities on FAS/FAE, Training Manual”. Produced by the Mi’kmaq Native Friendship Centre, May, 1998.
     
     
9. Prince Edward Island
   • “Prenatal Psychosocial Health Assessment”. Adapted with permission from ALPHA Project 1993, Version May, 1998. PEI Reproductive Care Program (1999).
   • “Enhancement of an Integrated Model of Prenatal Assessment and Care on Prince Edward Island”, submitted by the PEI Reproductive Care Program. Revised March 12, 1999.
     
     
10. Newfoundland and Labrador
    • “FAS Training Manual”, a one-day introductory workshop.
    • “FAS & FAE: A Report on Prevalence and Prevention Activities in Newfoundland and Labrador”.
      
      
11. Yukon
    • “Alcohol and Unborn Baby Kit”.
    • “Alcohol and Drug Survey” (1990).
      
      
      
12. Northwest Territories
    • “Keeping Women and Communities Strong: Women, Substance Abuse and FAS/FAE: A NWT Needs Assessment. Status of Women Council of the NWT. May, 1996.
    • “New Futures for Northern Women: women in recovery and healing – a pilot day program”, prepared by the Coalition for New Futures for Northern Women, December 1998.
    • Two public service announcements related to pregnancy and not drinking during pregnancy targetting teens and women.
    • FAS Pamphlet for Community Health Nurses. Tips for talking with women about substance abuse issues.
    • “Helping Children, Helping Families” video targets families who are raising children who may be affected by FAS/FAE.
    • FAS/FAE poster directed at youth and linked to public service ads and several plain language posters.
    • Labels on alcoholic beverage bottles since 1993.