Abuse and Neglect
of Older Adults: A Discussion Paper
The Canadian Context
- The purpose of this paper is to provide a general overview of the
major developments that have occurred in the field of elder abuse and
neglect since the publication of the first discussion paper in 1989.
To this end, we revisit the problems of defining abuse and neglect;
the issues about the incidence and prevalence of abuse; progress on
the theoretical front; and related problems of identifying risk factors
for abuse and neglect. Changes in adult protection legislation and related
research are examined and advances in creating protocols for detection
and intervention, as well as innovations in programming, are considered.
The discussion concludes by surveying some of the preventive strategies
adopted across Canada and setting out some ideas for future research.
- The field of elder abuse1 has expanded dramatically since
the appearance of the first federal discussion paper in 1989
- (Gnaedinger, 1989). At that time, elder abuse had just been recognized
as another form of family violence, similar in status to child abuse,
"discovered" in the 1960s, and wife abuse, identified in the
1970s. Although the first reference to elder abuse was made in Britain
in the 1970s (Baker, 1975; Burston, 1975), the issue had far greater
prominence in the United States at that time, with Canada following
suit in the 1980s. The first prevalence studies2by
Bélanger (1981) and Grandmaison (1988) in Quebec, Shell (1982)
and King (1984) in Manitoba, the G. A. Frecker Association on Gerontology
(1983) in Newfoundland, Haley (1984) in Nova Scotia, Stevenson (1985)
in Alberta, and the Ontario Advisory Council on Senior Citizens (1985)
in Ontariosuggested that an appreciable proportion of Canadian
seniors were being mistreated at the hands of their caregivers.
1 When the abuse of older adults was first addressed, it was labelled elder
abuse and still is today in most countries (Kosberg & Garcia, 1995b).
In Canada in the mid-1990s, several researchers and government officials
decided to use different labels for the terms "elder abuse" and
"neglect." They also consulted seniors themselves about the terms.
New terms proposed were "abuse and neglect of older adults," terms
that could not be confused with those used in other ethnic and religious
communities. There was also the suggestion that, because the term "elder
abuse" supposedly had the potential to be "stigmatizing"
and to focus on the "oldest of the old," the proposed terms were
more suitable (Spencer, 1995). In this discussion paper, we use the term
"abuse and neglect of older adults" except when reporting the
research of others who use the earlier terms.
2 Prevalence refers to the number of occurrences
in a lifetime.
1. The Canadian Context
- In the late 1980s, the first Canadian book on abuse, written by Schlesinger
and Schlesinger (1988), served to formally alert the field to some of
the more distressing issues practitioners and legislators had to face.
The authors unearthed over 200 North American papers on the abuse and
neglect of older adults, providing the first annotated bibliography
for Canadians. During the 1980s, the need to respond to the problem
prompted an examination of adult protection legislation and a consideration
of the pros and cons of mandatory reporting of abuse. The initial debates,
restricted to a small cadre of practitioners and academics, provided
the impetus for reforms to adult guardianship and adult protection legislationa
process that had begun in 1973 in Newfoundland and 1976 in Alberta.
At the same time, the federal and provincial governments of Canada began
funding various research, educational, and intervention initiatives,
all of which supported the drive to produce irrefutable evidence of
the existence of abuse and neglect of older adults.
- In 1989, the landmark national survey, by Elizabeth Podnieks, revealed
that four percent of elderly Canadians living in private dwellings experienced
some form of abuse and neglect (Podnieks, 1990). The publication of
this study brought the first era of Canadian research on elder abuse
to a favourable conclusion. A small but important group of enterprising
practitioners, aided by an even smaller group of researchers, had succeeded
in bringing the disturbing social
- problem of elder abuse and neglect to the attention of Canadians.
- The 1990s saw a new era characterized by an ever-increasing commitment
to research, education, and action on behalf of Canada's abused and
neglected older adults. Today, numerous national, provincial, and local
conferences directed toward professionals, the public, and seniors themselves,
are offered to address the multitude of issues related to the abuse
and neglect of older adults (e.g., One Voice, 1995; Health and
Welfare Canada, 1997). A wealth of educational materials is regularly
produced, from the local to the national level, and governments, despite
fewer resources, continue to fund innovative responses to the problem
(e.g., British Columbia Seniors Advisory Council, 1992; Health and Welfare
Canada, 1992; Health and Welfare, 1993; Mackenzie & Senechal, 1991;
Wasylkewycz, 1993; Wigdor, 1991).
- The early 1990s saw the introduction of a whole new generation of
researchers who, moving beyond proving that elder abuse was a social
problem, began to conduct research designed to guide practice and the
formulation of policy, and, to a lesser extent, the reform of legislation
(e.g., Beaulieu, 1992; Pittaway & Westhues, 1993; Poirier, 1992;
Reis & Nahmiash, 1995a; Stones & Pittman, 1995; Sweeney, 1995).
As the decade comes to a close, abuse of older adults has been recognized
as a critical problem worthy of serious academic inquiry and concerted
social action on the part of all Canadians. As Canada approaches the
next millennium, we take stock of these developments, the new issues
they raise, and their implications for the seniors of tomorrow.
2
Abuse and Neglect of Older Adults: A Discussion Paper
Defining Elder Abuse and Neglect
2.1 Proposed Definitions
- A leading researcher in the field of elder abuse observed that "[f]rom
the very beginning of the scientific investigation into the nature and
causes of elder abuse definitions have been a major issue" (Wolf,
1988, p. 758). The lack of a generally acceptable definition has spawned
a wide variety of definitions of abuse and neglect, which, to this day,
still generates controversy and debate (Bennett, 1990; Council of Europe,
1992; Decalmer & Glendenning, 1993; Kozma & Stones, 1995; Sanchez,
1996; Wallace, 1996). Nevertheless, most would agree on three basic
categories of abuse and neglect: (1) domestic elder abuse; (2) institutional
abuse; and (3) self-neglect or self-abuse. Most would also agree on
the major types of abusephysical, psychological, and financial
abuse. Beyond this classification, however, there is little agreement
(Decalmer & Glendenning, 1993; Hudson, 1994; Wolf, 1992;).
- Choosing definitions is obviously risky. For the purposes of this
paper, the definitions of abuse will be based on those set out by the
National Centre on Elder Abuse (NCEA) in
- the United States, mainly because there is some consensus on their
utility. "Domestic elder abuse" generally refers to any of
several forms of maltreatment of an older person by someone who has
a special relationship with the senior, such as a spouse, a sibling,
a child, a friend, or a caregiver, in the older person's own home or
in the caregiver's home (NCEA, 1998). The abuse is called "domestic
abuse" because it occurs in the community, rather than in an institution
such as a nursing home. The abusive behaviour can cause physical, psychological,
and material injury to the older person, resulting in distress and suffering
(Hudson, 1991; McDonald, 1996).
- "Physical abuse" is defined as the use of physical force
that may result in bodily injury, physical pain, or impairment. Physical
abuse may include, but is not limited to, such acts of violence as striking
(with or without an object), hitting, beating, pushing, shoving, shaking,
slapping, kicking, pinching, and burning (National Centre on Elder Abuse
(NCEA), 1998; Stones, 1995; Wolf & Pillemer, 1989). Such maltreatment
as the inappropriate use of drugs, and physical restraints and force-feeding
are also considered physical abuse (NCEA, 1998). The possible signs
2. Defining Elder Abuse and Neglect
- and symptoms of physical abuse appear in Table 1.
- "Sexual abuse," which is sometimes subsumed under physical
abuse (McDonald, 1996), is defined as non-consensual sexual contact
of any kind with an older adult. Sexual contact with any person incapable
of giving consent is also considered sexual abuse. It includes, but
is not limited to, unwanted touching and all types of sexual assault
or battery, such as rape, sodomy, coerced nudity, and sexually explicit
photographing (NCEA, 1998). The possible signs and symptoms of sexual
abuse are outlined in Table 1.
- "Psychological (or emotional) abuse" is defined as the infliction
of anguish, pain, or distress through verbal or non-verbal acts. This
type of abuse includes, but is not limited to, verbal assaults, insults,
threats, intimidation, humiliation and harassment. Other examples of
emotional abuse include treating an older person like an infant; isolating
the person from his or her family, friends, or regular activities; giving
the older person the "silent treatment"; and enforced social
isolation. This type of abuse is difficult to assess, as can be seen
from the signs and symptoms noted in Table 1.
- "Material abuse," often referred to as "financial abuse,"
involves the illegal or improper exploitation of an older person's funds,
property, or assets. Examples include, but are not limited to, cashing
an elderly person's cheques without authorization, forging an older
person's signature,
- misusing or stealing an older person's money or possessions, coercing
or deceiving an older person into signing any document (e.g., a will),
and the improper use of guardianship or power of attorney (Gordon, 1992;
Health and Welfare Canada, 1993; McDonald, 1996; NCEA, 1998). The signs
and symptoms of financial abuse are displayed in Table 1. Acts such
as theft, physical assault, rape, and burglary by a person outside
of a trusting relationship with the older person usually would not be
classified as elder abuse but rather as crimes. Crimes against the elderly
include some, but not all, forms of elder abuse (Health and Welfare
Canada, 1993; McDonald, 1996).
- "Neglect" is intentional or unintentional harmful behaviour
on the part of an informal or formal caregiver in whom the older person
has placed his or her trust. Unintentional neglect involves a failure
to fulfil a caretaking responsibility, but the caregiver does not intend
to harm the older person; intentional neglect occurs when the caregiver
consciously and purposely fails to meet the needs of the older person,
resulting in psychological, physical, or material injury to the older
person (McDonald, 1996). "Neglect" typically refers to the
refusal or failure to provide an older person with the necessities of
life, such as water, food, clothing, shelter, personal hygiene, medicine,
comfort, personal safety, and other essentials (NCEA, 1998). Neglect
is also difficult to ascertain, because the symptoms can easily be confused
- with illness (Filinson & Ingman, 1989). Some of the signs of neglect
appear in Table 1.
- "Self-neglect" is characterized as behaviour by an older
adult that threatens his or her own health and safety. "Self-neglect"
usually means that the older adult refuses or fails to provide himself
or herself with the necessities of life noted above. This newer definition
of self-neglect
- excludes situations in which a mentally competent older person knowingly
makes a voluntary decision to engage in acts that threaten his or her
safety (NCEA, 1998). The signs and symptoms are similar to neglect by
a caregiver. There is some question as to whether self-neglect should
be included in a consideration of neglect and abuse of older adults,
because no abusive caregivers are involved.
Table 1: Signs and Symptoms of Abuse
- Physical Abuse
- Financial/Material Abuse
- Sexual Abuse
bruises, black eyes, welts, lacerations, rope marks
bone fractures, broken bones, skull fractures
open wounds, cuts, punctures, untreated injuries in various stages
of healing
sprains, dislocations, and internal injuries/bleeding
broken eyeglasses, signs of being restrained
laboratory findings of medication overdose or underutilization
of prescribed drugs
an older person's report of being hit, slapped, kicked, or mistreated
an older person's sudden change in behaviour
a caregiver's refusal to allow visitors to see an older adult
sudden changes in bank account or banking practices
the inclusion of additional names on older person's bank signature
card
unauthorized withdrawal of the older person's funds using the
person's ATM card
abrupt change in will or other financial documents, unexplained
disappearance of funds or valuable possessions
unpaid bills despite
adequate funds
discovery of forgery of older person's signature
unexplained sudden transfer of assets to someone in or outside
the family
an older adult's report of financial exploitation
bruises around the breasts or genital areas
unexplained venereal disease or genital infections
unexplained vaginal or anal bleeding
torn, stained, or bloody underclothing
an older person's report of being sexually assaulted or raped
- Emotional/
- Psychological Abuse
being emotionally upset
or agitated
being extremely withdrawn, non-communicative,
non-responsive
unusual behaviour usually attributed to dementia
(e.g., sucking, biting, rocking)
an older person's report of being verbally or emotionally abused
desertion of an older person at the hospital, nursing facility
or institution
desertion of the older person at a shopping centre or other public
location
an older person's report of being abandoned
2. Defining Elder Abuse and Neglect
Table 2: Signs and Symptoms of Neglect and Self-Neglect
dehydration, malnutrition, untreated bedsores, poor personal hygiene
unattended or untreated health problems
hazardous or unsafe living conditions (dirt, soiled bedding, smell)
dehydration, malnutrition, untreated bedsores, poor personal hygiene
unattended or untreated health problems
hazardous or unsafe living conditions (e.g., improper wiring,
no heat)
unsanitary or unclean living conditions (smell)
inappropriate and/or inadequate clothing, lack of medical aids
(e.g., eye glasses, hearing aid)
grossly inadequate housing and homelessness
Note: Adapted from the National Centre on Elder Abuse, 1998
- Most recently, abandonment has been added to the list of abuse. "Abandonment"
is defined as the desertion of an older adult by an individual who has
assumed responsibility for providing care for that person or by a person
with physical custody of an older adult (NCEA, 1998). The most common
signs and symptoms are listed in Table 1.
2.2 Definitional Disputes
- Many elder abuse professionals are weary of the continuing search
for definitions of elder abuse and neglect. However, the issue remains
an important one: the definition determines who is counted as abused
and who is not; the definition determines what the legislation does
and does not cover; and it determines who is and is not eligible for
service.
- The definition will also determine the type of treatment offered and,
ultimately, the effectiveness of the treatment in stopping the abuse.
Thus, accurate definitions of abuse and neglect ensure accuracy in screening,
classification, and appropriate treatment.
- In addition, the variations in the definitions of elder abuse make
it impossible to pool or compare data collected from different provinces
in Canada, or even social agencies in any given city. Without standardized
definitions of abuse, cross-national comparisons are also out of the
question. If Canada were to conduct another study to determine the prevalence
of abuse as it did in 1989, we would have to retain the original definitions
of abuse if we were to judge whether the problem had grown better or
worse since that time (Podnieks, 1992).
- The "definitional disarray" noted by Pillemer and Finkelhor
(1988, p. 52) can be attributed to a number of factors. One clear difficulty
is that the definitions have been developed from different perspectivesthe
abused older person, the caregiver, the health professional, the lawyer,
the police, the social worker and the policy-maker. So, while the behaviour
of a police officer is probably affected by definitions of elder abuse
found in the Criminal Code, a community worker will follow agency
policy, which, more than likely, will encourage a broader definition
of abuse, in order to cover all contingencies in the community. The
difference in perspective is easily illustrated: for example, a Canadian
study revealed that there was considerable difference between the public's
view of physical abuse and that of abuse professionals (Gebotys, O'Connor
& Mair, 1992). The legal definitions of abuse and neglect also vary
across jurisdictions in Canada. For example, in Newfoundland, the legislation
applies only to "neglected" adults, and makes no provision
for cases of abuse, whereas the legislation in British Columbia provides
a specific definition of abuse (Robertson, 1995).
- A review of the earlier literature on the abuse of older adults indicates
the tendency of researchers and practitioners to develop taxonomies
or typologies (lists of types) of elder abuse and neglect (Block &
Sinnot, 1979; Chen et al., 1981; Hickey & Douglass, 1981; Lau &
Kosberg, 1979; McDonald et al., 1991; Pillemer & Finkelhor, 1988;
- Rathbone-McCuan & Voyles, 1982; Sengstock & Hwalek, 1987;
Sengstock & Liang, 1983; Steinmetz, 1988) or to try to develop broad,
all-encompassing conceptual definitions that capture the multi-dimensional
nature of abuse (Filinson, 1989; Fulmer & O'Malley, 1987; Hudson,
1988; Johnson, 1986, 1991; O'Malley et al., 1979, 1983; Podnieks, 1985;
Rathbone-McCuan, 1980; Wolf, 1988).
- The problem with descriptive lists of different types of abuses is
that there is no uniformity among the categories used by the experts
or within the categories themselves. Some researchers, for example,
include violation of rights as a category, while other researchers omit
this category (Lau & Kosberg, 1979; Sengstock & Hwalek, 1987).
As well, the categories contain such a wide range of abuses that they
tend to become ineffectual in application because every act becomes
abusive or neglectful. The conceptual definitions also suffer from problems.
Typical examples include the definitions by Fulmer and O'Malley (1987)
"
actions of a caretaker that create unmet needs for the elder
person" (p. 27) or the one by Johnson (1991) "
self-
or
- other-imposed suffering unnecessary to the maintenance of the quality
of life of the older person by means of abuse and neglect caused by
being overwhelmed" (p. 4). The first definition focuses on the
outcome of abuse, while the second refers to the causal factors, the
means, and the outcome of abuse (Johnson, 1991; Stones, 1995). The unevenness
of the conceptual definitions and their
2. Defining Elder Abuse and Neglect
- imprecise nature cause confusion for researchers and workers alike.
2.3 The 1990s and Beyond
- Even though the terminology of abuse remains in a state of flux, there
has been a concerted effort in the 1990s to address the lack of consensus
around definitions of abuse and neglect. Researchers have "researched"
definitions themselves, with some interesting results. Canadian researcher
Michael Stones (1995) finds three basic approaches to the meaning and
definitions of abuse and neglect found in the professional literature.
He shows that there are connotative definitions that emphasize the consequences
of abuse, such as the two examples above from Johnson (1991) and Fulmer
and O'Malley (1987). There are definitions based on structural criteria
that highlight the criteria to be used to determine whether behaviour
is abusive. Stones (1995) refers to his own definition as an example:
"A misdemeanor against acknowledged standards by someone a senior
has reason to trust" (p. 114). The third approach is to use denotative
definitions, which are the same as the descriptive lists noted above
and which appear in Table 2. The examples in Table 2 are a result of
the compilation of an abuse inventory created through several rounds
of agreement about different types of abuses on the part of seniors
and practitioners (Stones, 1995).
- The conceptual framework by Stones brings a new clarity to the issue
of definitions. The continuing attempt to
- include seniors and caregivers in the definitional process is crucial
if all Canadians are to identify abuse (Beaulieu, 1992; Hudson, 1994;
Johnson, 1995; Nandlal & Wood, 1997).
- Some Norwegian scholars use the science of meaning (semiology) to
understand acts of abuse (Johns, Hydle & Aschjem, 1991) and have
developed a model in which abuse
- of older adults is a social act, involving a witness with a clear
understanding and a moral evaluation of the event. This reflects quite
a different view from North American perspectives which, until very
recently, did not emphasize the moral aspects of abuse.
- Even as the weaknesses of existing definitions are being tackled,
new issues are complicating the matter. The globalization of activities
related to abuse and neglect of older adults brings new definitional
challenges, as a result of the intellectual contributions made by various
nations from around the world. This variety of perspectives has also
helped to refocus our attention on the multicultural diversity of our
own Canadian society. For example, in a recent review of cross-cultural
perspectives on the abuse of older adults, the concept of abandonment
was introduced into the definition of elder abuse in India (Shah, Veedon
& Vasi, 1995) and in Hong Kong (Kwan, 1995). Abandonment has also
now been included by the NCEA in the United States. In some countries,
definitions of abuse do not include age, often because the lower life
expectancy of the population
- precludes most people from entering old age (Kosberg & Garcia,
1995a). Closer to home, Tindale (1994) rightfully laments the lack of
research on ethnic differences in patterns of abuse and neglect of older
adults in Canada. A few Canadian studies of ethnocultural communities
by the Aboriginal Nurses Association of Canada (1992), Bergin (1995)
and Spencer (1996), represent a step in the right direction, but they
are only a beginning. The first national conference on understanding
and combatting elder abuse in minority populations was held as recently
as 1997 in the United States, indicating that our knowledge in this
area is, at best, preliminary.
- The 1990s has also seen the "discovery" of another group
of Canadians who are at risk for abuse: disabled persons, who in some
quarters are included with the population of abused older adults under
the more inclusive phrase "vulnerable adults" (Mickish, 1993;
Health and Welfare Canada, 1997; Roeher Institute, 1995; Sobsey, 1994).
The rationale for this classification is that more disabled persons
are living into old age, and
- they share many of the needs and interests of abused older adults.
There is also an implication that amalgamating the groups will help
to maximize the effect of scarce resources for combatting the problems
of both groups (Health and Welfare Canada, 1997). While combining resources
will undoubtedly benefit both groups, it remains to be seen how the
merger will be viewed by the disabled and the elderly, and how they
will respond to sharing the label "vulnerable adults"another
term that will require definition.
- The challenge of the next century, then, will be to continue to hone
the definitions of abuse and neglect; to continue to seek agreement
among practitioners, academics, legislators and policy-makers about
the definitions; to incorporate perspectives on abuse that represent
Canada's ethnic communities and, perhaps, the disabled communities;
and to ensure and enhance the participation of those most affected by
the construction of definitionsthe seniors in Canada (McDonald,
Harnick, Robertson, & Wallace, 1991).
3
Abuse and Neglect of Older Adults: A Discussion Paper
Abuse and Neglect of Older Adults in Domestic Settings
- Many studies have documented the existence and nature of elder abuse
and neglect, but only a few have collected data on the prevalence (number
of occurrences in a lifetime) and the incidence (number of new occurrences
within a specific time) of the problem among the non-institutionalized
elderly. Accurate data have been difficult to obtain, not only because
definitions of abuse and neglect vary, but also because methodologies
used to deal with the highly sensitive topic differ and the samples
studied do not fully or accurately represent older people (Decalmer
& Glendenning, 1993; McDonald, 1996). Abuse is a hidden problem
that older adults sometimes feel uncomfortable reporting (McDonald,
et al., 1991), and the cases reported probably represent only "the
tip of the iceberg." In light of these difficulties, it is not
easy to interpret reported prevalence rates, which vary from as low
as one to three percent in Australia, Norway, and the United States,
four percent in Canada, and five percent in Finland, to as high as 17
percent in Sweden and a reported high of 20 percent in France (Compton,
Flanagan & Gregg, 1997; Dunn, 1995; Hugonot, 1990; Johns & Hydle,
1995; Kivelä, 1995; Kurrle, Sadler & Cameron, 1992; Kurrle,
et al., 1997; Pillemer & Finkelhor; 1988; Podnieks, 1992).
- The most widely quoted study was carried out in 1985_86 in the United
States (Pillemer & Finkelhor, 1988). The Greater Boston area study,
based on a representative sample of 2020 persons, all 65 years of age
or older, found that 3.2 percent had experienced some type of abuse.
Approximately 2 percent of the sample were physically abused, 1.1 percent
chronically verbally abused, and about 0.4 percent were neglected. Financial
abuse was not considered in this investigation, resulting in a generally
lower prevalence rate than reported in Canada and Britain. This investigation
showed that spouse abuse was more prevalent (58 percent) than abuse
by adult children (24 percent); it showed that equal numbers of men
and women were victims, and that financial situation and age were not
related to the risk of abuse (McDonald, 1996).
- Modified versions of the American prevalence study were carried out
in both Canada and Great Britain. The 1989 national telephone survey
in Canada, sometimes called the Ryerson study, surveyed 2008 randomly
selected older persons. The study found that about four percent of the
sample reported some type of abuse (Podnieks et al., 1990). Approximately
2.5 percent of the
3. Abuse and Neglect of Older Adults in Domestic Settings
- sample experienced financial abuse, 1.4 percent experienced chronic
verbal aggression, and 0.5 percent suffered physical abuse. About 0.4
percent reported neglect. Both physical abuse and chronic verbal aggression
were perpetrated by spouses, whereas financial abuse tended to be perpetrated
by both relatives and non-relatives. As in the American study, men and
women were equally represented as abused (Podnieks et al., 1990).
- Although there have been no further national prevalence studies in
Canada, a study in British Columbia, called the Notary Study, sheds
further light on financial abuse, the most common form of abuse in this
country (Spencer, 1996). In a random sample of 200 seniors selected
from a provincial enumeration poll, it was found that approximately
1 in 12, or 8 percent, of the respondents had been financially abused
since turning 60 years of age. Older men and women were equally likely
to be abused, usually by family members, with daughters being the most
likely abusers. The main types of abuse included abuse of power of attorney
and real estate transactions, such as signing over title to a home.
In this study, abused older people were no more likely to be physically
dependent on the abuser than the non-abused, but if they were, the abuse
tended to be more serious. Physical dependence was also associated with
a high likelihood that other forms of abuse occurred concurrently (Spencer,
1996). Interestingly, the persons who were abused were no more financially
inexperienced than those not abused
- (Spencer, 1996). Another form of abuse was involved in two thirds
of the financial abuse situations (Spencer, 1996).
- The British study was carried out as part of a regular survey that
is conducted monthly by the Omnibus section of the Office of Population
Census Surveys (Bennett & Kingston, 1993; Ogg & Bennett, 1992).
Reports based on a sub-sample of 593 seniors, from a British national
survey of 2130 people in 1992, indicated that 5 percent of the sample
were verbally abused by a family member, 2 percent were physically abused,
and 2 percent were financially abused. No overall abuse figure was given.
More women than men were verbally abused, while a slightly higher proportion
of men reported physical and financial abuse (Bennett & Kingston,
1993).
- The results of these national prevalence studies cannot be directly
compared because of differences in their methods and procedures; all
three investigations indicate, however, that most older people are not
victims of abuse and neglect. The prevalence rates of 5 percent or less
are relatively low but they may also be misleading. Although these studies
represent the best prevalence studies currently available, they all
suffer from flaws in their design and implementation; they are subject
to cultural and contextual differences and, more than likely, provide
low estimates because the cognitively impaired have been excluded from
the investigations (McDonald,
- 1996, p. 2).
- Incidence rates for elder abuse are still virtually unknown in most
countries, including Canada. In the United States, a national incidence
study carried out between 1994 and 1997 has just concluded, but the
data are not yet ready for release. The study, conducted by the NCEA,
gathered data on domestic elder abuse from adult protection services
and area offices on aging, and through "sentinels" (data collectors
trained specifically for the study) located in agencies not exclusively
focused on aging. This approach, which has been used for incidence and
prevalence studies of child abuse, will provide information about reported
and unreported cases of elder abuse (NCEA, 1998;
- Wolf, 1997).
- In the meantime, the National Aging Resource Centre on Elder Abuse
in the United States has attempted to estimate incidence rates on the
basis of two surveys of state adult protective service agencies and
state units on aging across the United States. In 1986, 117 000 substantiated
reports of abuse in domestic settings were made, as compared to 128
000 in 1987, 140 000 in 1988, 211 000 in 1990, and 227 000 in 1991.
There were 227 000 reports in 1993 and 241 000 in 1994 (NCEA, 1998).
Neglect seems to be the most common form of mistreatment, rising from
47 percent in 1990 to 58.5 percent in 1994. Reports of physical violence
dropped from 20.2 percent of all reports to 15.7 in 1994. In the four-year
period, financial abuse decreased from 17.3 to 12.1 percent,
- as did emotional abuse, declining from 11.7 percent of all reports
in 1990 to 8.1 percent in 1994. Reports of sexual abuse seemed to remain
constant over the four years, representing approximately 0.5 percent
of the cases (NCEA, 1998).
- These nationwide figures have to be interpreted with some caution,
because of the wide variation in the definitions of and criteria for
reporting abuse, as well as the possibility of duplication in reporting.
It is obvious that the incidence rate is rising, but this could be a
function of increasing awareness of the problem and/or improvements
in reporting procedures. Some experts, too, argue that only 1 out of
14 domestic abuse incidents (excluding self-neglect) comes to the attention
of agencies (NCEA, 1998).
- In Canada, we have no way of knowing whether the problem is getting
better or worse, because we have only prevalence dataa quick snapshot
in 1989and no incidence data whatsoever. As we prepare for the
future, it would be helpful to know the actual dimensions of the problem
so that we can ensure that our intervention and educational strategies
are calibrated to meet current needs. A follow-up of the respondents
in the Ryerson study would help us achieve that goal relatively cheaply.
Likewise, an incidence study, comparable to the National Incidence Study
of Child Abuse (Health Canada), would help us plan for the future, as
the baby boomers become older.
4
Abuse and Neglect of Older Adults: A Discussion Paper
Abuse and Neglect of Older Adults in Institutional Settings
4.1 Definitions and Categories
- Canadians have been relatively slow to investigate elder abuse and
neglect in institutional settings, although Podnieks expressed concern
about this type of abuse as early as 1983. The term "institution"
typically refers to a wide range of settings, such as hospitals, and
long-term care facilities, which include nursing homes and homes for
the aged (McDonald, 1996). In 1994_95, the federal government, in partnership
with a national advisory group of elder abuse professionals, produced
three publications on the abuse and neglect of older adults in institutional
settings (Beaulieu & Tremblay, 1995; Spencer & Beaulieu, 1994;
Spencer & Beaulieu, 1994). Recognizing that institutional abuse
is a "slippery concept,"3 according to these reports,
abuse and neglect in the institution "
refers to any act
or omission
- directed at a resident of an institution that causes harm, or wrongfully
deprives that person of his or her independence." (Spencer, 1994,
- p. 19). By expanding this definition, the author adds a new dimension
not contained in most other definitions,4 namely that an
abuser in an institution could also be another person in a position
of trust, such as a family member or a friend
- (Spencer, 1994).
- Elder abuse and neglect in the institution fall into the same categories
as those used to describe domestic abuse, but the victims are likely
to be more vulnerable to abuse, because they require the protective
environment of a facility (Beaulieu & Bélanger, 1995). Some
researchers, including Spencer (1994), have added violations of civil
or basic rights to the list of abuses that can occur in institutions,
as well as a specific category of medical abuse
3 Wierucka and Goodridge (1996) note that institutional abuse is a slippery
concept, especially when unintentional harm to the resident is involved.
Their example of an arthritic patient being forced to have a painful bath
because of institutional duty could be construed as abusive although there
is no intention to harm the patient. Spencer & Beaulieu (1994) picks
up this thread in her discussion of whether intent should be included in
the definition of elder abuse and decides against its inclusion in favour
of focusing on remedying the harm.
4 The definition used for institutional abuse by
the NCEA is similar to the one for domestic abuse and neglect, except
that the perpetrators of institutional abuse are usually persons who have
a legal or contractual obligation to provide older adults with care and
protection. This definition focuses on the legality of the caregiver relationship
and puts less emphasis on the outcomes of the abuse when compared to the
Canadian definition.
4. Abuse and Neglect of Older Adults in Institutional
Settings
- that includes "
any medical procedure or treatment that
is done without the permission of the older person or his or her legally
recognized proxy" (1994, p. 20). Abuse or neglect in institutional
settings, then, can take several forms, such as "
a single
act in complete opposition to society's sense of proper conduct (e.g.,
punching a resident)"; or "
a repeated pattern of any
types of abuse or neglect" (Spencer, p. 20). Institutions may also
be the scene of systemic abuse and neglect, which refers to harmful
situations created, permitted, or facilitated by procedures within the
institution that are ostensibly designed to provide care (Spencer, 1994).
As is the case with domestic abuse, many acts of abuse or neglect in
the institution are crimes, such as assault, sexual assault, theft,
and forgery (Spencer, 1994). Other examples of abuse and neglect in
institutional settings are provided
- in Table 3.
- As might be expected, there is little agreement on the definitions
of
- abuse and neglect in the institution, for many of the same reasons
as in domestic abuse: differing professional perspectives; divergent
personal values and beliefs; and differences of culture and perspective
between the caregiver and the abused (Bennett & Kingston, 1993;
Spencer, 1994).5 Despite this lack of consensus, an increasingly
comprehensive and complex grasp of
- institutional abuse seems to be developing. In one Canadian study,
Beaulieu (1992) describes how the views of managers of public facilities
have changed over time. The managers in her study stated that they had
changed their understanding of abuse in the space of a few years, moving
from a limited view of abuse as physical mistreatment, to include more
subtle forms of elder mistreatment, such as the violation of persons'
rights. They also seemed to recognize the possibility of systemic abuse
(Beaulieu, 1992).
4.2 The Incidence and Prevalence of Institutional
Abuse and Neglect
- Institutional abuse has been researched much less than domestic abuse,
possibly because so few older persons live in institutions (only about
7 percent of older persons live in nursing homes in Canada) (Beaulieu
& Bélanger, 1995; Spencer, 1994). One researcher in Britain
argues that institutional abuse has received short shrift because abuse
has been identified as a form of family violence; this precludes studying
abuse in the institutional setting (Phillipson, 1993).
- There is enough anecdotal evidence, however, to suggest that abusive
behaviour is a widespread, regular aspect of institutional life. There
5 The repercussions of the problems with definitions
are highlighted by the experience of the Canadian Task Force on the Periodic
Health Examination (1994). The task force examined the evidence on the detection,
assessment, and management of abuse and concluded that detection is impossible
because there is insufficient evidence to support or exclude case finding.
Part of the problem is the risk factors are not specific or sensitive enough
to be useful in case finding (Canadian Task Force, 1994).
- have been reports of material abuse, including the theft of patient's
funds, fraudulent therapy, and pharmaceutical charges; physical abuse,
including such medical maltreatment as inappropriate chemical and physical
restraint; and psychological abuse, including social isolation (Beaulieu
& Tremblay, 1995; Gilleard, 1994; Halamandris, 1986; Meddaugh, 1993;
Middleton & Forbes, 1993; Paton, Huber & Netting, 1994; Payne
& Cikovic, 1995; Spencer, 1994).
- The most accurate study of abuse in nursing homes was carried out
in the United States (Pillemer & Moore, 1989; 1990). In a random
survey of 577 nurses and nursing home aides conducted in 1989, staff
were asked to report on abuse perpetrated by others and on their own
abusive actions. Only physical and
- psychological abuse were considered. The researchers found that, overall,
36 percent of the sample had seen at least one incident of physical
abuse in the preceding year. The most frequent type of physical abuse
observed by the staff was the excessive restraint of patients. A total
of 81 percent of the surveyed staff had witnessed at least one psychologically
abusive incident in the preceding year. The most frequent type of psychological
abuse observed by the staff was yelling at a patient in anger (70%).
Ten percent of the nurses reported that they themselves had committed
one or more physically abusive acts, the most common being the excessive
use of restraints (6%). Forty percent of the nurses admitted to psychological
abuse, the most common form being yelling at a patient (33%).
- Table 3: Examples of Signs and Symptoms
- of Abuse and Neglect in Institutions
- Neglect
- Physical Abuse
dehydrated, malnourished
missing dentures, glasses, hearing aids
poor hygiene, inappropriate clothing
untreated medical problems
poor skin conditions
unattended or tied to a bed or chair
failure to monitor restraints
failure to allow outside services, no outside medical appointments
unexplained injuries _ fractures, bruises
unexplained falls
unauthorized or inappropriate use of restraints
delay in seeking and receiving treatment
pain, swelling, bleeding in the genital area
fear of specific persons or being alone with them
sexually transmitted disease
drawing back from touching
4. Abuse and Neglect of Older Adults in Institutional
Settings
- Table 3: Examples of Signs and Symptoms
- of Abuse and Neglect in Institutions (Continued)
- Psychological/Emotional Abuse
- Medical Abuse
feelings of fear, passivity, shame, guilt
extreme passivity and withdrawal
symptoms of depression
exclusion from activity and family
the use or talk of punishment
decisions made for resident
reduced/absent therapeutic response
poor documentation of medical records
improper administration of drugs
no reasons for treatment given
difficulty visiting, calling, or contacting older person
not permitted to manage their own financial affairs
lack of choices in life
lack of privacy
resident not allowed to participate in decision making about their
own affairs
lack of confidentiality in use of health care records
lack of necessities or comforts
unauthorized use of resident's money or property by others
disappearance of the resident's property
unexplained changes in a deed or will
inadequate facilities to protect resident's property
resident constantly lacks money to buy small personal comforts
lack of accounting for way finances have been spent
- Note: Adapted from Abuse and Neglect of Older Adults in Institutional
Settings (Spencer, 1994).
- One of the drawbacks to this study is the limitation of the instruments
that were used to assess physical and psychological abuse. For a more
detailed critique of this survey, see Kozma and Stones (1995) and Middleton
and Forbes (1993).
- In Canada, there have been no national prevalence or incidence studies
of abuse and neglect in institutions. In fact, there is really only
one study from Ontario, which provides a rudimentary picture of the
- nature and extent of institutional abuse. A random telephone survey
of 804 registered nurses and 804 registered nursing assistants was carried
out in Ontario to determine the extent, circumstances, and type of abuses
they had witnessed or heard about in their work (College of Nurses of
Ontario, 1993). Nearly one half of the respondents had witnessed one
or more incidents of abuse, with verbal abuse being the most common
type (37% of respondents), followed by physical abuse (32% of
- respondents). Eighty-five percent of the nursing personnel identified
hospitals as the setting of the abuse, while 36 percent identified nursing
homes or homes for the aged. It is important to note that the respondents
felt that the incidents tended to be isolated, and that nurses were
no more likely to be abusive than were the registered nursing assistants.
The majority of the identified abusers were female, and the abused elders
were most likely to be cognitively impaired females in poor condition
and confined to bed. Seven out of 10 of the respondents viewed the client
as having been the primary cause of the abuse, usually because of their
uncooperative behaviour. Less than half of the reported cases were followed
up (College of Nurses of Ontario, 1993). While this study represents
a first step in understanding the extent of abuse in institutions, it
is important to note that the survey reports only alleged incidents
of abuse and the incidents were not restricted to any specific time
period.
4.3 Understanding Institutional Abuse and Neglect
- Few theories have been proposed to explain the abuse of the older
adult in institutions. As in the analysis of domestic abuse, several
North American scholars have identified a number of factors they believe
contribute to the abuse of elderly residents by institutional staff.
These factors include the lack of comprehensive and consistent policies
with respect to the infirm elderly; the fact that the long-term
- care system is characterized by built-in financial incentives that
contribute to poor quality care; the poor enforcement of nursing home
standards; the culture and organization of the institution; the lack
of highly qualified and well-trained staff; work-related stress and
professional burnout; the powerless-ness and vulnerability of the elderly
residents; the personality traits of the staff; and the tendency of
staff to avenge patient aggression (Beaulieu & Tremblay, 1995; Braun
et al., 1997; Brennan & Moos, 1990; Cassell, 1989; Chappell &
Novack, 1992; Feldt & Ryden, 1992; Gilleard, 1994; Kingdom, 1992;
Meddaugh, 1993; Pillemer & Bachman-Prehn, 1991; Spencer, 1994; Stilwell,
1991; Whall et al., 1992).
- One American researcher has developed a model of the potential causes
of elder abuse in nursing homes (Pillemer & Moore, 1989). This model
includes factors related to the socio-economic environment of the institution,
such as the supply of nursing home beds and local unemployment rate;
and to the characteristics of the facility, such as ownership status,
size, staff-patient ratios and staff turnover rates; staff characteristics,
such as age, education, gender and degree of burnout; and resident characteristics,
such as health of the patients, their degree of social isolation and
their gender.
- In a partial test of this model, the researchers found evidence that
the maltreatment of nursing home patients appeared, to some extent,
to be a response to highly stressful
4. Abuse and Neglect of Older Adults in Institutional
Settings
- working conditions, rather than a consequence of the characteristics
of the nursing home, such as the size or ownership status of the institution.
Staff who were burned out and who experienced aggression from patients
were most at risk of becoming abusive toward their elderly patients
(Pillemer & Bachman-Prehn, 1991).
4.4 Combatting Institutional Abuse and Neglect
- In the 1990s, there has been a serious push in Canadian institutions
to tackle abuse and neglect by establishing protocols for detection,
intervention, and prevention through legislation,6 through
the education of staff, the residents and their families, and through
changes to the policies and organizational structure of the institution
(Beaulieu & Bélanger, 1995; Beaulieu & Tremblay, 1995;
Spencer, 1994; Watson et al., 1995). While these initiatives are long
overdue, we have no idea how many institutions in Canada have adopted
any initiative at all, nor do we know how these developments are affected
by diminishing health care resources. If there are initiatives in place,
we have no idea if they work.
- As was the case in the 1980s, we simply have no incidence or prevalence
studies of abuse and neglect in institutions in Canada. As a result,
policies, protocols,
- interventions and preventive measures are currently being formulated
on the basis of anecdotal information, if on any basis at all. Some
would argue that this does not matter. However, in times of far-reaching
cutbacks to health care, strained resources must be deployed ever more
carefully to have even a minimal impact on abuse and neglect (Braun
et al., 1997; McDonald & Wigdor, 1995).
- Prevalence studies, then, are needed to tell us how many older persons
are abused or neglected in institutions at a given point in time or
during a given period of time. Prevalence studies indicate the extent
of the current problem of abuse and, in turn, allow us to target more
accurately where and how limited resources should be used for education
and intervention. Incidence studies would provide information about
how many persons have been abused for the first time during a specified
time period. This type of information helps determine the causes of
institutional abuse and enhances our ability to evaluate the effectiveness
of the prevention programs institutions have put into place. Because
incidence studies can also be used to estimate how much institutional
abuse and neglect we can anticipate in the future, they would also help
Canada prepare intelligently for the aging of the baby boomers and their
use of institutions in the next century.
6 For example, Ontario operators of nursing homes
are required to report abuse and neglect under the Act to Amend the Nursing
Home, while in British Columbia there is legislation under the Community
Care Facility Act that requires licensed operators to report "serious
incidents," which may or may not include abuse and neglect.
- At the same time, more studies are required that address the concerns
and feelings of older adults in institutions, their families' experiences
and the views of the staff who provide the care. In considering institutional
staff, it would be important to pursue the issue of who is actually
abusing whom (examining the interactional nature of abuse) and to discover
the "lived experiences" of staff in times of strained resources.
Stories of families that are forced to purchase extra nursing services,
- which they often can barely afford, because institutional resources
are inadequate, need to be investigated. The views of nursing home residents
about abuse and neglect also need to be heard. Finally, the outcomes
of abuse for older adults need serious consideration. The rates of depression
for older persons living in institutions are reportedly high (Bland,
Newman & Orn, 1988; Parmelee, Katz & Lawton, 1989) and there
is emerging information that abuse may actually be related to mortality
(Wolf, 1997).
5
Abuse and Neglect of Older Adults: A Discussion Paper
Characteristics of Victims and
Perpetrators
- The first wave of research on elder abuse, which began in the late
1970s in the United States, concluded that the typical victim was over
75 years of age, a female with debilitating physical and psychological
impairments, and dependent upon a family caregiver, usually a daughter
(Douglass, Hickey & Noel, 1980; Hwalek, 1989; Kosberg, 1988; O'Malley
et al., 1983; Rathbone-McCuan, 1980; Sengstock & Liang, 1983; Shell,
1982; Stevenson, 1985; Wolf, 1986). Research at the end of the 1980s,
based on sounder methodologies and more clinical experience, cast some
doubt on early observations and indicated that the situation was far
more complicated than originally presumed (McDonald, 1996). The focal
point shifted from classifications of the victims to classifications
of the perpetrators, and to profiles of different combinations of victims,
perpetrators, and types of abuse (Bendik, 1992; Hocking, 1994; Homer
& Gilleard, 1990; Pillemer, 1993; Spencer, 1995; Wolf, Godkin &
Pillemer, 1986). Today, more and more researchers are uncovering the
interactive aspects of elder abuse, and distinctions between
patient-directed, patient-generated, and mutual abuse (Coyne, Reichmann
& Berbig, 1993; Grafstrom, Nordberg
- & Winblad, 1993; Homer & Gilleard, 1990; Nolan, 1993; Pillemer
& Suitor, 1992).
- A decade and a half of research can be distilled into four major observations:
- (1) Victims of psychological and physical abuse usually have reasonably
good physical health, but suffer from psychological problems. Their
abusers have a history of psychiatric illness and/or substance abuse,
live with the victim, and depend on them for financial resources (Anetzberger,
Korbin & Austin, 1994; Bristowe & Collins, 1989; Cooney &
Mortimer, 1995; Greenberg, McKibben & Raymond, 1990; Homer &
Gilleard, 1990; Paveza et al., 1992).
- (2) Patients with dementia, who exhibit disruptive behaviour and who
live with family caregivers, are more likely to be victims of physical
abuse. Their abusive caregivers may suffer from low self-esteem and
clinical depression (Compton, Flanagan & Gregg, 1997; Coyne, 1991;
Coyne et al., 1993; Homer & Gilleard, 1990; Paveza et al., 1992;
Pillemer & Suitor, 1992).
5. Characteristics of Victims and Perpetrators
- (3) There may not be a "typical" victim of financial abuse;
however, when the abused person is dependent on the abuser, the financial
abuse may be more serious (Rowe et al., 1993; Spencer, 1996).
- (4) Victims of neglect tend to be very old, with cognitive and physical
incapacities. Their dependency on their caregivers serves as a source
of stress (Bennett & Kingston, 1993; Wolf, 1992).
- Race and ethnicity are two "new" risk factors considered
in the elder abuse literature but most of the discussion is based on
speculation (Bergin, 1995; Browne, 1989; Dunn, 1992; Grier, 1989; Griffin,
1994; Lachs et al., 1994; Longres, 1992; Maxwell & Maxwell, 1992;
Moon & Williams, 1993; Spencer, 1996; Tomita, 1994). A study by
Lachs et al. (1994) of 2800 men and women in Connecticut showed that
adults with minority status were more likely to undergo official investigation
for alleged mistreatment than adults with non-minority status. In smaller
studies that examined cases of
- abused minority older adults and non-minority adults, the results
are contradictory (Hall, 1987; Longres, 1992). The national exploratory
study by the Canadian Association of Social Workers (Bergin, 1995) found
no compelling differences in the circumstances associated with elder
abuse in ethnocultural communities, except for the obvious difficulties
related to language barrriers and the problems associated with adapting
to life in Canada.
- Although some ground has been gained in identifying the characteristics
of victims of abuse, the emphasis in current research has shifted to
an examination of the interactional aspects of abuse. This approach
appears to hold some promise for accurately identifying abuse. Investigators
now focusing on the abused older adult are also more interested in the
consequences of abuse, a topic that is surprisingly absent in the research
literature. Depression, mortality, learned helplessness and post-traumatic
stress are some of the outcomes that are currently being investigated
(Wolf, 1997).
6
Abuse and Neglect of Older Adults: A Discussion Paper
Understanding
Abuse and Neglect
of Older Adults
6.1 Theories of Abuse and Neglect
- A survey of the elder abuse literature suggests few new developments
on the theoretical front (McDonald & Wigdor, 1995; McDonald, 1996).
As noted above, an incidence study would be the most effective mechanism
for examining the causes of abuse and neglect of older adults; and,
because there are so few incidence studies anywhere in the world, it
is no surprise that there has been little headway in theory building.
Without fresh evidence, most professionals still rely on the same theories,
with the same flaws. The very few theoretical advances are offshoots
of a political economy approach (Biggs et al., 1995) and the growing
influence of postmodernism on all aspects of gerontology (Katz, 1996).
- At the outset, it is important to note that much of the literature
on elder abuse does not make an essential distinction between theoretical
explanations and the individual risk factors related to abuse (McDonald,
1996; McDonald et al., 1991). Typically, a theory provides a general,
systematic explanation of how some part of the world works. In the elder
abuse literature, a particular risk factor, such as stress, is often
- treated as the theoretical explanation even though stress is
only one factor, and could be subsumed by a number of divergent theories.
The relationships between the various risk factors and elder abuse should,
in fact, form the crucial scaffolding upon which theories are built.
- In the short history of elder abuse, different accounts of the relationships
among the risk factors have led to at least four distinct theoretical
perspectives, all of which have been "borrowed" from other
disciplines and fields of study, usually, with few modifications being
made in the transfer to the field of elder abuse.
6.2 The Situational Model
- The first and most widely accepted perspective on the cause of elder
abuse is the situational model, which has its roots in the mainstream
perspectives on child abuse and family violence (McDonald et al., 1991;
Phillips, 1986). A well-known premise of the situational model is that
stressful situations cause the caregiver to abuse the older person,
who is usually viewed as the source of the stress because of his or
her physical or mental impairment. This approach implies that mistreatment
is an irrational response to stressful
6. Understanding Abuse and Neglect of Older Adults
- situations. The situational variables that this theory associates
with abuse include factors related to the caregiver, to the older person,
and to the social and economic conditions of both parties (McDonald,
1996). An unemployed caregiver who has an alcohol problem may abuse
an older parent who is financially secure but mentally impaired. Interventions
grounded in this perspective attempt to reduce the stress of the caregiver
by providing more support services and support groups (Scogin et al.,
1992).
- One major flaw of this perspective is that it fails to account for
the fact that some caregivers, who experience the same stresses as abusers,
do not abuse their elderly. The perspective has also been criticized
for being dangerously close to blaming the victim, because it identifies
the older person as the source of the stress. This is not an idle criticism,
if one remembers that in one study, 7 out of 10 nurses perceived the
patient as the primary cause of the abuse (College of Nurses of Ontario,
1993). One might also wonder why general stress theory is not drawn
upon to expand this model (Kahana & Young, 1990). More to the point,
more rigorous case-comparison studies have produced little convincing
evidence to support this model (see Pillemer, 1993, for reviews of these
studies). The lack of evidence to support this model leads Pillemer
(1993) to marvel at its persistence in the elder abuse literature. In
Canada, Pittaway and Westhues (1993), in a secondary analysis of data
from health and social service providers in London, Ontario, found modest
support for
- this model as a means of predicting physical abuse. However, their
study is hampered by the constraints of a secondary data analysis, which
inevitably does not have all the required information.
6.3 Social Exchange Theory
- Social exchange theory is founded on the assumptions "
that
social interaction involves an exchange of rewards and punishments between
at least two people, and that all people seek to maximize rewards and
minimize punishments" (Glendenning, 1993, p. 25). In most relationships,
people have different degrees of access to resources and different capabilities
to provide services to others, which makes some people more powerful
than others. In the social exchange perspective, it is argued that,
as people age, they become more powerless, vulnerable and dependent
on their caregivers; it is these characteristics that place them at
risk for abuse (Phillips, 1986). In essence, older adults remain in
the abusive relationship only as long as the satisfaction of their needs
exceeds the costs of the maltreatment.
- There are many difficulties with this perspective, not the least of
which is its ageist assumption: people do not automatically become dependent
and powerless as they age. Indeed, several researchers have argued,
and subsequently shown, that the dependency may lie elsewhere (Pillemer
& Wolf, 1986). A number of investigations have found the abuser
to be dependent on the older
- person; it is the abuser's sense of powerlessness that leads to maltreatment
(Homer & Gilleard, 1990; Pillemer & Suitor, 1992; Pillemer &
Wolf, 1986). Interventions prompted by a social exchange analysis would
first have to identify the dependent person. If the older person were
assessed to be dependent, then services aimed at increasing independence
would be in order, whereas a dependent adult child might need help from
mental health services, or require vocational training or job placement
in order to become self-reliant (McDonald, 1996).
6.4 The Symbolic Interaction Approach
- The Symbolic Interaction approach has been adopted from the family
violence literature and focuses on the interactive processes between
the older adult and the caregiver. This perspective emphasizes not only
the behaviours of the elder and the caregiver, but also both persons'
symbolic interpretations of such behaviour. Such an analysis of elder
abuse centres on the different meanings people attribute to violence
and on the consequences these meanings have in certain situations (McDonald,
1996). An example is the finding of Steinmetz (1988) that a subjective
interpretation of stress by the caregiver is a better predictor of burden
than the actual level of burden. The fact that many researchers have
been unable to find an association between the degree of cognitive
impairment of the abused person and the level of the abuse
- (Cooney & Mortimer, 1995) may simply be a matter of overlooking
the caregivers' interpretation of the situation.
- Social learning, or modelling, is part of this perspective: the theory
posits that abusers learn how to be violent from witnessing or suffering
from violence, and the victims, in suffering abuse, learn to be more
accepting of it. Treatment based on this approach would focus on changing
family values and norms regarding abuse and attempt to change the interpretations
of the situation. The difficulty with this approach is that it does
not consider the social or economic factors that might influence the
abusive process, nor does it account for the fact that not all caregivers
who were abused as children abuse their elders. In fact, recent research
comparing child abusers and elder abusers finds that child-abusing parents
are more likely than elder abusers to have experienced severe violence
in their childhood (Korbin, Anetzberger, Thomason & Austin, 1991).
The authors conclude that the intergenerational transmission of family
violence may be more applicable in the context of child abuse.
6.5 Feminist Models
- Current prevalence studies indicate that spouse abuse is a significant
dimension of elder abuse (McDonald et al., 1997; Podnieks, 1992). Despite
the research findings, elder abuse experts have clung to the situational
model; as a result, only limited theoretical advances have been made
6. Understanding Abuse and Neglect of Older Adults
- to explain this type of abuse (Aronson, Thornewell & Williams,
1995; McDonald & Wigdor, 1995). Most scholars have assumed that
spouse abuse is a form of wife abuse "grown old." As a result,
it has been explained by a handful of feminist scholars as one consequence
of family patriarchy, which is identified as one of the main sources
of violence against women in society (Jack, 1994; Pittaway & Gallagher,
1995a; Vinton, 1991). Some scholars have belatedly questioned whether
spouse abuse is ever first-time abuse in old age (Eckley & Vilakazi,
1995; Knight, 1994; Neysmith, 1995).
- A patriarchy is seen as having two basic elements: a structure in
which men have more power than women, and an ideology that legitimizes
this power (Miller, 1994). The family is considered to be the most fundamental
unit of patriarchy in society, and traditional sex-role expectations
for wives provide ideological support for the less powerful position
of women in the household hierarchy. This power imbalance makes women
vulnerable and open to abuse whether they are young or old. Feminist
interventions generally include consciousness raising and mutual problem
solving within a caring and equal relationship. The shortcoming of this
approach is that, to date, there is little empirical evidence to support
the claims of the theory. And, it is, at best, a partial account of
elder abuse, because older men are just as likely as older women to
be abused (Podnieks, 1992). Pittaway & Gallagher (1995a) in their
study find that the feminist model is one of the
- stronger explanatory models explaining physical abuse and, interestingly
enough, that the quality of the marital relationship is the most important
risk factor in predicting physical abuse of older adults across all
the models.
- The application of feminist theories to all forms of spouse abuse
is a hotly debated issue in the mainstream family violence literature
(Miller, 1994; Renzetti, 1994). The small, but growing, body of research
on gay and lesbian domestic violence has seriously thrown into question
gender-based theories of partner violence (Coleman, 1994; Letellier,
1994) as has the growing evidence of women using violence against men
(Gelles & Loseke, 1993). The real issue, it is argued, is the power
imbalance between partners (Jack, 1994; Miller, 1994). Feminist theories,
then, might be extended to explain both female and male spouse abuse,
if the theme of power imbalances is developed. These measures may also
have some potential to explain sexual abuse, which, according to a British
study, is mainly perpetrated by sons, husbands, son-in-laws and grandsons
on older women on whom the perpetrator is dependent (Holt, 1993). In
a convenience sample in the United States, Ramsey-Klawsnik found similar
results, except that the abused older women were dependent on their
abusers (Ramsey-Klawsnik, 1991).
- As the 1990s come to a close, most scholars have realized that there
are many manifestations of abuse and neglect of older adults on many
- levels and have come to question the search for a comprehensive, all-inclusive
explanation of the phenomena (Pillemer, 1993). Most of the theorizing
has been done at the individual level, not at the societal level, and
most theories ignore the history of relationships across time, as would
be found in a life-span view of elder abuse (Tindale, 1994).
- In the future, new theories of abuse of older adults may continue
to emphasize only some of the dimensions of elder abuse and neglect
at any given time. Theoreticians may have to cast their theoretical
nets wider than the current gerontological and family violence theories
that have been the mainstay of the elder abuse literature. Some attempts
have been made. For example, the political economy approaches to elder
abuse describe abuse as a function of the forced
- dependency of older persons, which results from their exclusion from
society through retirement, poverty, and institutionalization (Biggs
et al., 1995; Phillipson, 1993). This perspective helps to locate abuse
within the larger socio-political context, and urges a consideration
of the role of the structural factors of race, gender, poverty, and
ageism in abuse. Postmodernism, which has just made its debut on the
gerontological stage, addresses elder abuse as a "problematization"
(Katz, 1996, p. 134) that entails an examination of how the gerontological
enterprise turned abuse into a crisis (Katz, 1996, p. 9). These and
other theoretical initiatives are welcomed. With more theories, practitioners
will have a wider array of interventions at their disposal, which will
facilitate the provision of more effective care for mistreated older
people (McDonald, 1996).
7
Abuse and Neglect of Older Adults: A Discussion Paper
Risk Factors
for Abuse
7.1 The Study of Risk Factors
- The research carried out on the specific factors hypothesized to be
associated with elder abuse and neglect continues to be limited to a
handful of studies (Godkin et al., 1989; Pillemer & Suitor, 1992).
The emphasis on risk factors undoubtedly follows from the demand for
protocols required to screen those at risk, to assess the nature of
the abuse and neglect, and to choose appropriate interventions (McDonald
et al., 1991). Such risk factors have become the backbone of these protocols,
many of which have been developed for both domestic and institutional
abuse. Unfortunately, risk factors are difficult to study: they may
have a delayed effect; they may be so rare or so frequent that they
are hard to track; they may be common to other conditions; and they
may be dependent on the presence of other factors. As a result, all
of the research on risk factors suffers from methodological difficulties,
and must be interpreted with some care.
- The principal factors that have been associated with abuse include
the personality traits of the abuser, the intergenerational transfer
of violence, dependency, stress, and social structural factors such
as ageismall
- of which could be subsumed under any of the four theories described
above.
7.2 Personality Traits of the Abuser
- This factor, also referred to as intra-individual dynamics, or the
psychopathology of the abuser, is based on observations from a number
of studies that discovered an inordinately high proportion of abusers
had histories of psychiatric illnesses and problems with drugs and alcohol
(Anetzberger, Korbin & Austin, 1994; Bristowe & Collins, 1989;
Cooney & Mortimer, 1995; Greenberg, McKibben & Raymond, 1990;
Homer & Gilleard, 1990; Paveza et al., 1992; Wolf, Godkin &
Pillemer, 1984, 1986).
- As in the family violence literature, there is some controversy surrounding
this hypothesis, mainly because psychopathology has not been directly
and causally linked to abuse (Pillemer, 1993). In the field of
aging, it is troublesome to regard caregivers as mentally unstable,
given the burgeoning gerontological literature that portrays family
members as willing, responsible and concerned (McDonald, 1996). Others
have criticized this approach because it overlooks the role of structural
7. Risk Factors for Abuse
- factors, such as poverty or ageism and because it rules out the use
of resources to intervene at the societal level (Ogg & Munn-Giddings,
1993). The only conclusion that can be drawn at this time is that the
role of perpetrator psychopathology in elder abuse and neglect is unresolved
and requires further research.
7.3 The Intergenerational Transmission of Violence
- There is some evidence to suggest that children sometimes learn, through
observation and participation, that violence is an acceptable response
to stress. Having learned violent behaviour, a significant number of
children are violent toward their own children and their spouses in
adulthood (Hotaling & Sugarman, 1986). This transmission of violent
behaviour may be reinforced by a family subculture that accepts and
condones violence. While this is a popular hypothesis in the literature
on family violence, very few elder abuse studies have actually found
evidence to support the idea that children who were mistreated by their
parents went on to abuse their parents in later life. In fact, several
studies have clearly found no basis for the proposition (Anetzberger,
1987; Anetzberger, Korbin & Austin, 1994; Ogg & Munn-Giddings,
1993). It appears, then, that further research is required to test this
hypothesis.
7.4 Dependency
- There are two contrasting views in the literature about dependency
(Ogg & Munn-Giddings, 1993). One view is that, because of physical
and/or cognitive incapacities, the older person becomes increasingly
dependent upon the caregiver for psychological, physical, and material
support. This dependency is a heavy burden for the caregiver and can
result in resentment and caregiver stress. A lack of resources and inadequate
support services for the caregiver may then exacerbate the situation
to the point where abuse of the elderly can occur (Steinmetz, 1988;
1993). The alternative view is that abuse is not caused by the dependency
of the older person, but is a consequence of the dependency of the abuser
upon the older person (Pillemer, 1993). Pillemer (1993) could not locate
one study that supported the notion that elder abuse results from the
dependency of the older person.
- Critics of the dependency hypothesis point out that not all dependent
relationships among seniors and caregivers result in abuse and neglect,
and that there must also be some triggering event or crisis that precipitates
the abuse. In short, while dependency may be a significant factor in
abuse, it is not clear how it operates to produce abuse (McDonald et
al., 1991).
Abuse and Neglect of Older Adults: A Discussion Paper
7.5 Stress
- The most fruitful line of inquiry into stress examined people who
cared for cognitively impaired older persons. Earlier studies of the
stresses of caring for older, mentally impaired patients were descriptive
in nature, and usually did not establish a diagnosis of dementia (Block
& Sinnot, 1979; Lau & Kosberg, 1979; Wolf, Godkin & Pillemer,
1984). The most recent studies of patients with dementia, such as those
suffering from Alzheimer's disease, have shown that the link between
cognitive impairment and abuse is precipitated by the interactive, day-to-day
problems that arise between the patient and the caregiver.
- In patient-caregiver dyads, where the caregiver was assessed as being
clinically depressed, the risk for severe physical violence was three
times greater than for dyads in which the caregiver was not depressed
(Paveza et al., 1992). In this study, Alzheimer's victims living with
their families but without the presence of a spouse were three times
more likely to be severely abused than patients in other living arrangements
(Paveza et al., 1992). Coyne, Reichman & Berbig (1993) found similar
results among community dwelling caregivers of dementia patients. The
abusive caregivers, when compared to non-abusive caregivers, had been
providing care for more years, were providing care for more hours per
day, were caring for patients at lower levels of functioning and displayed
higher levels of burden and depression (Coyne, Reichman & Berbig,
1993). Caregivers subjected
- to abusive behaviour were more likely to direct abusive behaviour
back to the patient in their care. Another study, done in Britain, found
that abusive caregivers showed more depression, and the abused adults
were rated as more socially disturbed (Homer & Gilleard, 1990).
Although these newer investigations suffer from methodological inadequacies
and require more extensive confirmation, the interactional nature of
the relationship between stress and abuse first noted by Steinmetz is
supported by evidence, at least in the case of cognitively impaired
elders (Steinmetz, 1988).
7.6 Structural Factors
- Research has concentrated on the abused and the abuser at the expense
of exploring the wider implications of age, gender, race, ethnicity,
and class, all of which influence people's positions in the social structure
and their opportunities in life (Ogg & Munn-Giddings, 1993). For
example, older people can be subject to discriminatory attitudes and
actions that are based on negative perceptions about their chronological
age. Experts have proposed that such ageist attitudes toward older people
may contribute to the development of elder abuse (Quinn & Tomita,
1986). Misconceptions and distortions about aging dehumanize older persons,
making it easier for them to be victimized, and making it easier for
the abusers to feel little or no remorse. At the same time, older people
may even view their maltreatment as deserved, because they too, may
have adopted society's negative attitudes. Feminist models
7. Risk Factors for Abuse
- also supply an account of structural factors: gender determines a
set of positions in society that facilitate, and even justify, the abuse
of women (Aronson, Thornewell & Williams, 1995). Other crucial factors
that are known to influence the aging process, such as race, ethnicity
and socio-economic status, are only now attracting modest attention,
mainly in Britain (Biggs, Phillipson & Kingston, 1995).
7.7 The Same Issues
- It is unwise to assume that we can now predict who will be abused
and who will be neglected, no matter how many, and how elaborate, our
detection protocols. The field is bereft of theoretical progress, and
the research on risk factors is limited. For example, we still are not
clear about who is most at risk for financial abuse, although this is
the most common form of abuse in Canada. Our understanding of how different
types of abuse are linked (Mendonca, Velamoor & Sauve, 1996) or
whether risk factors change
- according to ethnocultural community is still limited. An understanding
of caregiver stress, the most commonly used predictor of risk for abuse,
still eludes usa serious matter, because our responses to the
problem (i.e., health and social services) differ significantly from
those in the United States, where most of the research has been conducted.
- What is more, Canadians, faced with one of the largest baby-boom cohorts
in the world, may face unexpected challenges. The aging of the baby
boomers, the shrinking of health and social services, and the shift
of care for the elderly from the institution to the community could
be a recipe for trouble (McDaniel & Gee, 1993; McDonald, 1996; Rosenthal,
1994). Although the development of theories and the research of risk
factors (usually through case-control or incidence studies) is treated
with some impatience, it seems that we ignore these issues at our peril.
8
Abuse and Neglect of Older Adults: A Discussion Paper
Protocols
8.1 Detection
- The detection of abuse and neglect of older adults remains an extremely
complex and notoriously difficult task, often complicated by denial
on the part of the older person and his or her caregiver (Canadian Task
Force on the Periodic Health Examination, 1994). Older adults who have
been victimized often fail to report, because of feelings of shame and
stigma, a fear of retaliation, or a fear of being placed in an institution
(Fulmer, 1989; Mulligan, 1990). An exploratory study in the United States
found that significantly more victims of male perpetrators refused service
offers than victims of female perpetrators. The tendency not to report
was more common in parent-child relationships than in spousal relationships
(Vinton, 1991). In addition, older adults are less likely to attend
community events regularly, making the abuse harder for others to detect.
- During the past 10 to 15 years, tremendous energy has been invested
in developing instruments to identify seniors at risk for abuse or neglect.
The development of these screening techniques was apparently motivated
by such factors as the acknowledgment that abuse was a significant social
problem, the
- recognition that there was a basic lack of awareness of this "hidden"
problem among front-line workers (Kosberg, 1988), and the desire to
intervene early and defuse problems before serious harm occurred (Breckman
& Adelman, 1988).
- Emergency department personnel (Fulmer et al., 1992) and nurses in
acute-care and community-based settings (Canadian Nurses Association,
1992; Havilland & O'Brien, 1989; Smelters, 1991; VanderMeer, 1992)
have long taken the lead, understanding themselves to be in an ideal
position to detect abuse and neglect. However, in recent years, other
professional groups, including dentists (Galan & Mayer, 1992; Holtzman
& Bromberg, 1991; Jorgensen, 1992; Kelly, Grace & Wisnom, 1992;
McDowell, 1990; Vaughn, 1993), lawyers and notaries public (Blunt, 1991;
McKenzie, 1993; Schmidt, 1993), occupational and physical therapists
(Holland, Kasraian & Leonardelli, 1987), physicians (American Medical
Association, 1992; Lachs, 1995; Noone, Decalmer & Glendenning, 1993),
police (Goodwill, 1992), and social workers (Basu, 1992) have all made
a concerted effort to educate themselves and join the force of clinicians
working to combat abuse and neglect of older adults.
8. Protocols
- At present, many screening devices are available in the literature
(Bloom, Ansell & Bloom, 1989; Fulmer & O'Malley, 1987; Johnson,
1991; Kosberg, 1988; Neale et al., 1991; Pillemer, 1986; Quinn &
Tomita, 1986; Reis, Nahmiash & Schrier, 1993; Sengstock & Hwalek,
1986). Most include items that direct investigation toward the characteristics
of the older person, the characteristics of the caregiver, and, depending
on the theoretical stance of the author, the characteristics of the
family system (McDonald et al., 1991). These instruments usually rely
heavily on the subjective impressions of health and social service staff
and/or verbal reports from informants and abused elders (Bloom, Ansell
& Bloom, 1989; Reis, Nahmiash & Schrier, 1993; Kozma & Stones,
1995). Additionally, most fail to address issues related to the sensitivity
and specificity of the measures.
- Three of the better-known Canadian screening devices for risk are
the QUALCARE scale (Bravo et al., 1995), the Brief Abuse Screen of the
Elderly (BASE) and the Caregiver Abuse Screen (CASE) (Reis, Nahmiash
& Schrier, 1993). The original version of the QUALCARE scale was
developed by Phillips et al. (1990) to evaluate the quality of care
given by a caregiver to an elderly person. The instrument was designed
to quantify the extent to which the caregiver satisfies the needs of
the recipient. The QUALCARE Scale is designed to be completed by a nurse
after visiting the elderly person at home. Sources of information include
personal observations, the
- data collected during a semi-structured interview with the older person
and the caregiver, and any other available assessment information. In
1995, Bravo and colleagues attempted to further validate this scale
by assessing its utility in identifying family-mediated elder mistreatment.
The results of the study suggest that a measure of the quality of care
is a valid indicator of the risk of mistreatment. However, the reproducibility
of this scale proved to be insufficient. Thus, while this work represents
an important step forward, the findings must be interpreted cautiously.
- Both the BASE and the CASE were developed in Montreal in response
to growing concern, expressed by local service providers, over a perceived
increase in suspected abuse cases. The BASE consists of a one-page questionnaire
that asks about the presence or absence of abuse by a caregiver. It
also involves a three-stage screening process to confirm or refute the
possibility of abuse. According to its authors, this approach also makes
it less likely that more subtle forms of abuse or newly developing abuse
cases will "slip through the cracks" (Reis & Nahmiash,
1995a).
- The CASE serves as an effective complement to the screening provided
by the BASE. The authors recommend the CASE as a useful "first
alert" tool for direct practice. It consists of eight questions
that screen for current physical, psychological, and/or financial abuse
or neglect. It is intended for use with all clients who are caregivers
of seniors, regardless
- of whether abuse is suspected. In addition to "flagging"
current abuse, the authors report that the responses of caregivers on
the CASE may be indicative of tendencies and stresses that could lead
to subsequent abuse (Reis & Nahmiash, 1995b). The CASE was found
by the authors to distinguish between abusive and
- non-abusive groups, and higher scores coincided with higher scores
on independent abuse and aggression measures (Reis & Nahmiash, 1995b).
- At present, it appears that the BASE and the CASE are the only Canadian
screening instruments that have been the subject of psychometric scrutiny.
The initial findings regarding the reliability and validity of these
devices look promising. If these results can be replicated on a sufficiently
representative sample of abuse and neglect victims, then both the BASE
and CASE will be welcome tools for practitioners (Kozma & Stones,
1995; McDonald, 1996).
- One significant limitation of these screening tools is that the indicators
the tools rely upon derive from existing research on risk factors which,
as noted above, is less than satisfactory. Many of the protocols, as
a result, still favour the stereotype that older adults are abused only
by their adult children, and make up provision for spouse abuse, sexual
abuse and, more often than not, financial abuse. Some screening instruments
do not seem to reflect the interactional aspects of abuse, even when
they do apply the situational model. Failure to assess interactional
factors represents a significant
- oversight in the field. At present, then, those at risk can be easily
missed by existing protocols, and the possibility of misidentifying
people as abusers or as victims because they "fit the profile"
remains very real (McDonald et al., 1991; Sprey & Matthews, 1989).
8.2 Assessment
- Assessment tools substantiate whether or not mistreatment has occurred
or is occurring (Johnson, 1991), and assessments in general are the
basis upon which intervention strategies are developed. Two recent government-sponsored
surveys of programs for abused older Canadians (Health & Welfare
Canada, 1992; Pittaway & Gallagher,1995b) have noted a paucity of
formal response protocols, policies, and procedures at the direct practice
level. There are, however, a few notable exceptions. In the last decade,
a number of primarily local initiatives, carried out by hospitals, social
service agencies, institutions and community programs in Canada and
the United States, have produced procedures for dealing with abuse and
neglect of their older clients.
- These independently developed protocols range from unsystematic assessments
that rely on professional judgment rather than objective data (Rathbone-McQuan
& Voyles, 1982) to checklists of risk indicators for abuse and/or
neglect (Fulmer, 1989; Podnieks, 1988; Sengstock et al., 1986). Such
checklists may or may not include reviews of the victim's physical,
psychological, medical, and social support (Glendenning & Decalmer,
1993; Johnson, 1991;
8. Protocols
- Quinn & Tomita, 1986). The more detailed protocols, such as the
Elder Abuse Diagnosis and Intervention Model (Quinn & Tomita, 1986),
the Staircase Model developed by Breckman and Adelman (1988), the SEVNA
model (Smelters, 1993), the Victoria Elder Abuse Project (1993) and
the Project Care Model developed by Reis and Nahmiash (1995), also outline
intervention strategies and case management procedures.
- Many of the assessment protocols currently in use are based on assumptions
found in domestic violence literature; therefore, they contain several
weaknesses that originate in the inadequate definitions, theory development
and research methodologies found in this field (McDonald et al., 1991;
Phillips et al., 1990). Like the screening instruments, many of these
assessment protocols use only one model, such as the situational model,
and ignore other factors that have been associated with abuse. They
also discount the interactional aspects of abuse, as noted above. Importantly,
very few of these assessment instruments or protocols have been tested
clinically; as a result, there is no evidence that they actually facilitate
accurate identification or "case finding." A problem related
to detection and screening for abuse and neglect of older adults is
the issue of service provision. Callahan (1988) has argued, for example,
that case finding and detection are ineffective unless there are sufficient
services and personnel to deal with the cases (Watson et al., 1995).
- Both screening and assessment instruments would also benefit from
more attention to the different types of abuse and neglect. In the existing
literature, there appears to be a clear content bias toward issues related
to physical abuse and neglect. Item frequencies for the different types
of abuse and neglect are far from equal (Kozma & Stones, 1995; Sengstock
& Hwalek, 1987): those related to physical abuse and neglect are
overrepresented, while those designed to explore issues related to psychological
and financial abuse and the violation of personal rights remain underrepresented
(McDonald et al., 1991; Sengstock & Hwalek, 1987). Consequently,
the instruments that are used in clinical settings today are likely,
at best, to capture only a small percentage of all abuse cases.
8.3 Intervention
- Decisions about how and when to intervene for victims of abuse and
neglect are among some of the most difficult faced by service providers
(Canadian Task Force on the Periodic Health Examination, 1994). Conceptually,
two types of intervention protocols have developed in North America:
agency-specific and community-based. The former define a particular
agency's mandate and its procedures for responding to abuse and neglect,
while the latter focus on coordinating and consolidating the efforts
of community and social service agencies (Health & Welfare Canada,
1997). In the 1990s, at the direct service level, protocols for intervention
still receive less attention in the literature than
- screening and assessment protocols. This imbalance may reflect the
inability of experts in the field to define elder abuse adequately or
to identify its causes. The intervention protocols that do exist represent
a variety of approaches, and usually include legal, therapeutic, educational,
and advocacy components (Breckman & Adelman, 1988; Fulmer &
O'Malley, 1987; Quinn & Tomita, 1986; Reis & Nahmiash, 1995).
Some protocols list the options for intervention (Podnieks, 1985; Quinn
& Tomita, 1986), while others provide decision trees for front-line
service providers (Braun et al., 1993; Fulmer & O'Malley, 1987;
Basu, 1992).
- In recent years, a number of interesting and important developments
have occurred at the community level across the United States and Canada.
Specifically, there has been a significant shift toward establishing
community protocols in an attempt to improve service delivery (Wolf,
1992). The best example of this in the United States is the San Francisco
Consortium for Elder Abuse Prevention, a network of 55 agencies established
to improve the city's professional response to elder abuse (Wolf, 1992).
This program, administered by the Mount Zion Institute on Aging, provides
information, training and support to member agencies to help them deal
effectively in their response to abuse and neglect (Njeri & Nerenberg,
1993).
- Many Canadian provinces and communities also boast locally developed
intervention protocols.
- These include, but are not limited to, the Centres locaux de services
communautaires (CLSC), such as NDG/Montreal West and Rene Cassin CSLCs
in Montreal, the Advocacy Centre for the Elderly in Toronto, the Elder
Abuse Resource Centre in Winnipeg, the Kerby Centre in Calgary and the
North Shore Community Services in North Vancouver (McKenzie et al.,
1995). Most recently, the Haldimand-Norfolk Steering Committee on the
Abuse of Older Adults in Ontario has been awarded a three-year grant
to import and implement a community response network model developed
in British Columbia (Chapman, 1994; Vancouver Elder Abuse Network, 1994;
Zannatta & Sagi, 1995).
- In the last decade, Canada has clearly taken considerable initiative
in developing both local and community-based intervention protocols.
Perhaps because the interventions are so recent, their efficacy has
seldom been evaluated; instead, evaluations have relied on anecdotal
reports offered by practitioners (Spencer, 1995). Thus, many of the
limitations of current screening and assessment devices may also be
discovered in the intervention strategies. McDonald et al. (1991) offer
three critical observations about the existing protocols: they assume
a caregiver/situational model of abuse, which persists despite contradictory
evidence emerging in the literature; they fail to provide adequate definitions
of the indicators of what strategies should be used, with whom, and
under what circumstances; and they point to little
8. Protocols
- or no evidence of the efficacy of treatments/interventions.
8.4 Making the Hard Choices
- The problems of developing valid and reliable protocols for screening,
assessment and intervention continue (Kozma & Stones, 1995; McDonald
& Wigdor, 1995). This was brought to the fore when the Canadian
Task Force on the Periodic Health Examination (1994) concluded that
there was insufficient evidence to support or exclude case finding.
Their review and critique suggested that no combination of risk factors
has been shown to be sufficiently sensitive or useful in case finding.
Given the renewed flurry of research activity into the psychometric
properties of a number of protocols, the report may have served as a
wake-up call for both clinicians and researchers. In order for the psychometric
work to continue, more research will have to be donea hard choice
when resources are scarce and there is a preference in the field for
intervention over research.
- The discussion of protocols takes on a whole new dimension when ethnicity
is considered. Currently, a few studies offer documentation and description
of abuse and neglect as it
- manifests itself in different ethnocultural groups. These include
investigations in the Aboriginal community (Aboriginal Nurses Association
of Canada, 1992; American Indian Law Centre Inc., 1990; Dunn, 1992;
Maxwell & Maxwell, 1992; Spencer, 1996), the African-American community
(Griffin, 1994; Griffin & Williams, 1992; Njeri & Nerenberg,
1993) and the Asian community (Moon & Williams, 1993; Tomita, 1994),
as well as a range of ethnocultural communities (Bergin, 1995).
- The most obvious conclusion emerging from this work is that knowledge
in this area is still in its infancy. At present, a number of basic
and fundamental questions need to be addressed. Are Western models of
elder abuse assessment, diagnosis, and intervention applicable to other
groups? If not, how are existing methods to be modified? Do ethnocultural
differences affect definitions of what constitutes abuse and neglect?
And, finally, are there any ethnocultural factors that contribute to
abuse and neglect (Pittaway & Gallagher, 1995a; Tomita, 1994)? If
research in these areas reveals major differences from the patterns
of elder abuse in mainstream society, new protocols will have to be
devised.
9
Abuse and Neglect of Older Adults: A Discussion Paper
Programs and Services
9.1 General Considerations
- A program provides a blueprint for service delivery, establishes resources,
and coordinates the delivery of service through government and/or private
and public agencies (McDonald et al., 1991). Four major kinds of programs
have been developed to respond to elder abuse: the statutory adult protection
service programs, programs based on the domestic violence model, advocacy
programs for seniors and an integrated model.
9.2 Adult Protection Programs
- 9.2.1 Legislative Approaches
- A number of legal remedies are available to Canadians in dealing with
the problem of elder abuse and neglect. General legal safeguards found
in the Criminal Code deal with physical abuse, assault and neglect.
Powers of attorney deal with financial abuse, and guardianship laws
in every province provide for the appointment of a guardian who will
act on behalf of an individual who is mentally incapable of managing
his or her own affairs or personal care. All of these laws have been
soundly criticized for inadequacies in responding to elder
- abuse and neglect ( Carbonell, 1992; Coughlan et al., 1995; Gordon,
1995; Gordon & Verdun-Jones, 1992; Harbison et al., 1995a, 1995b;
Robertson, 1995; Spencer, 1996), but no legal provision has attracted
as much critical attention as adult protection legislation.
- All 50 United States and four Canadian provinces have reacted to the
problem of elder abuse and neglect by enacting special adult protection
legislation (Robertson, 1995; Wolf, 1992). The legislative approach,
heavily influenced by child welfare models, is characterized by legal
powers of investigation, intervention and mandatory reporting (Robertson,
1995). A review of these programs in the two countries suggests that
actual responses vary widely across and between states and provinces.
The variability appears to be related to the type of legislation and
the financial commitment of the jurisdictions to community resources
(Quinn & Tomita, 1986; Robertson, 1995; Wolf, 1992; Zborowsky, 1985).
- Protective service programs usually combine legal, health and social
services to allow for the widest array of interventions. They require
considerable coordination and interdisciplinary team work. In Canada,
with the passage of adult
9. Programs and Services
- protective legislation in the Atlantic provinces, protective services
have been delivered by the provincial departments of social services.
- 9.2.2 Nova Scotia
- Nova Scotia developed an Adult Protective Services Unit, within the
provincial social services department, in 1986, following the enactment
of its Adult Protection Act. The purpose of the unit is to "provide
protection from physical abuse, sexual abuse, mental cruelty and neglect
for persons aged 16 years and older who are incapable of adequately
caring for themselves." Mandatory reporting is part of the legislation,
and reports of abuse are investigated by adult protection workers located
throughout the province. At present, the Adult Protective Services Unit
appears to be concerned primarily with crisis intervention. Emphasis
is placed on bringing services into the home (McDonald et al., 1991).
Victims are referred to community resources on a voluntary basis. Court-mandated
intervention is used as a last resort, and only when the victim is deemed
incapable of making an informed decision (Health & Welfare Canada,
1992).
- The Nova Scotia Adult Protection Act has recently been criticized
as dealing not with abuse but with self-neglect, and as fundamentally
failing to deal with the abused competent older adult. According to
one review, the mandatory reporting requirement should be replaced by
voluntary reporting (Harbison et al., 1995a; 1995b).
- 9.2.3 Prince Edward Island
- The P.E.I Adult Protection Act (1988) ensures that people who
are unable to guard themselves against abuse are given protection. This
is to be done in the least intrusive manner available, and, if possible,
in such a way as to respect people's wishes. Of the four provinces,
P.E.I's legislation least resembles the child welfare model (Gordon,
1995). The legislation was modelled after the Nova Scotia Act,
but it does not include mandatory reporting (Health & Welfare Canada,
1992). It contains a 68-step implementation plan that sets out a multidisciplinary
response to reported situations of abuse. Currently, there are no specialized
services for older adults who are victims of abuse. Instead, community
support services for victims appear to deal with elder abuse as part
of a broader approach to family violence (McDonald et al., 1991).
- 9.2.4 British Columbia
- As a result of the enactment of the Adult Guardianship Act, S.B.C.
1993, British Columbia has undertaken a new initiative with respect
to support and assistance for abused and neglected older adults (Robertson,
1995). The Act represents a complete revamping of the law regarding
the protection of vulnerable adults. Gordon (1995) argues that the B.C.
law represents a new trend in Canada to incorporate protection provisions
into reconstructed omnibus adult guardianship statutes (Gordon, 1995).
Including adult protection provisions in the larger body of adult guardianship
law may result in the
- routine use of court-ordered guardianship, rather than less intrusive
measures (Gordon, 1995).
- Similar to the legislation in the Atlantic Provinces, the Act gives
extensive powers of investigation to specific agencies, including the
authority to apply to the court for the provision of services to those
found incapable (Robertson, 1995). At a programmatic level, a number
of important developments have occurred. In an attempt to discover less
restrictive and intrusive means to deal with abuse and neglect, the
federal government's Seniors Independence Program (SIP) funded the development
of Community Resource Networks (CRNs) in a number of B.C. communities.
The CRNs consist of local health, social service and legal agencies,
which pool their resources to respond to abuse and neglect in an integrated
and cooperative manner. The goals of the networks are to provide a continuum
of services to abused adults, act as a resource for service providers,
and to offer reliable and consistent service to their consumers (Zannatta
& Sagi, 1995).
- 9.2.5 Critiques
- Considerable controversy remains over adult protection legislation
and programs. Proponents suggest that such interventions mean that the
rights of the older adult are ultimately safeguarded and that attempts
can be made to improve a person's level of functioning while protecting
him or her from harm (McDonald et al., 1991). Those who oppose the enforcement-oriented
approach vigorously challenge these
- claims. They argue, for example, that any system of care that is modelled
on protectionist child welfare legislation must inevitably infantilize
older adults and fail to respect the right to independence (ARA Consulting
Group Inc., 1991). On a practical level, it is often claimed that adult
protection workers are "trigger happy" in petitioning for
guardianship in order to place seniors in institutions (Quinn &
Tomita, 1986)a concern that grows with the use of the new omnibus
legislation. Others have argued that the adult protection legislation
is not useful because, in many instances, resources are insufficient
to deal adequately with identified cases (Bond, Penner & Yellen,
1995; ARA Consulting Group Inc., 1991). Without adequate services in
place to support abused older adults, an adult protection services system
cannot respond effectively to cases of abuse and neglect (ARA Consulting
Group Inc.,1991).
- Several Canadian studies underscore some of the flaws of the adult
protection legislation and its implementation. Bond, Penner and Yellen
(1995) surveyed Canadian and American professionals about the effectiveness
of adult protection legislation. Most thought it was effectivebut
they also expressed a concern that there were insufficient funds to
administer the program and to provide services to abused older personsand
this was before governments started to slash budgets.
- Poirier (1992) compared the application of adult protection legislation
in Nova Scotia and New
9. Programs and Services
- Brunswick and found that, despite many similarities, the interpretation
of the adult protection legislation in New Brunswick was heavily influenced
by the norms of the social work profession. Consequently, in New Brunswick,
less intrusive interventions were used, and fewer cases were brought
before the courts. However, in Nova Scotia, Poirier found the court
system is used to enforce legislation 6 to 12 times more often than
in New Brunswick. In another study, Poirier (1992) examined the outcomes
for clients subject to the adult protection legislation in New Brunswick.
He found that the most important factor in determining whether or not
protective measures were ordered was whether the person was represented
by a lawyer. Clients with legal representation were better protected.
He also found that the legal philosophy of the judge had a significant
influence on the outcomea danger, if the judge favoured the intrusive
aspects of the legislation.
9.3 Domestic Violence Programs
- The domestic violence response to elder abuse and neglect has gained
considerable momentum in North America because it does not violate people's
civil rights, or discriminate on the basis of age (Crystal, 1987; Finkelhor
& Pillemer, 1984; McDonald et al., 1991). This response to elder
abuse consists of a multi-pronged approach that includes crisis intervention
services, such as telephone hotlines; a strengthened role for police
in the laying of
- charges; court orders for protection; the use of legal clinics; emergency
and secondary sheltering; support groups for both the abused and the
abuser; individual and family therapy; and the use of a whole range
of health, social, and legal services (McDonald et al., 1991). An integral
component of domestic violence services is educating the public, and,
especially, educating the abused about their rights.
- At present, there are a number of individual and group programs for
victims of elder abuse. In Canada, the Elder Abuse Resource Centre,
a program of Age and Opportunity located in Winnipeg, and the Kerby
Centre in Calgary loosely fit the domestic violence approach. The Elder
Abuse Resource Centre, for example, responds to situations of suspected
abuse of persons 60 years of age or older. The Centre was designed to
coordinate community services for elder abuse and neglect, to provide
education for, and consultation to, agencies, and to offer counselling
to abused seniors (McKenzie et al., 1995). The Kerby Centre, on the
other hand, combines a multidisciplinary team and a family systems approach.
Clinicians treat cases of elder abuse as part of a continuum of family
violence issues, and believe that efforts to address elder abuse should
consider the entire family unit (ARA Consulting Group Inc.,1991). Several
U.S. states also have shelters dedicated to older victims of abuse (Cabness,
1989), and many existing women's shelters now accommodate abused older
women (Vinton, 1991). In Canada, Montreal opened the first shelter for
older victims of abuse, and
- some other communities are considering such facilities7or
adapting existing shelters to accommodate some older women.
- The domestic abuse model is not without its critics (McDonald et al.,
1991; Phillips, 1986), who are quick to point out its flaws. Problems
with police response and restraining orders, poorly managed shelters,
and a shortage of follow-up services are but a few of the issues. Gerontologists
have also cautioned against the singular use of crisis intervention,
because problems experienced by older persons tend to be complex, multiple,
and interrelated; they may take a long time to sort out and need to
be monitored closely (Ledbetter Hancock, 1990). The model also fails
to apply in cases of neglect as opposed to abuse.
9.4 Advocacy Programs
- Advocacy refers to the actions performed on behalf of an individual
or group to ensure that their needs are met and their rights are respected.
Like the domestic violence model, an advocacy approach acknowledges
that the older person is potentially vulnerable and may be in a dangerous
situation. Advocacy programs for the abused believe that the least restrictive
and intrusive interventions should be applied to an older person's situation.
- There can be two types of advocates, informal and formal. Informal
advocates are usually volunteers, such as friends or family, who do
not take part in a structured program; formal advocates8
are professionals, and are paid for their services within the context
of a structured program. In practice, advocates advise clients of their
rights and the alternative services available to them, and they can
assist them in carrying out agreed-upon plans. The most important feature
of advocacy is the advocate's independence of any formal delivery system;
this distance allows the advocate to establish a positive relationship
with the older person.
- Three well-known advocacy programs illustrate this independence. The
Senior Advocacy Volunteer Project, in Madison, Wisconsin trains volunteers
to serve as advocates on a one-to-one basis with victims of elder abuse.
The volunteers are given one-year assignments to provide a range of
assistance, including weekly visiting, help with such tasks as negotiating
the health and social service systems, financial resource management,
assistance with relocation, and companionship (Wolf, 1992). The Advocacy
Centre for the Elderly, in Toronto, Ontario is an example of a formal
legal advocacy program. Established in 1984 as a specialized legal aid
service for the residents of Toronto, its primary mandate is legal
7 One initiative resulting from the Synergy II Project in Calgary is a shelter
for abused seniors that will open sometime in the next year.
8 Ontario had a formal advocacy program under the
Advocacy Act which was recently repealed. Gordon (1995) argued
that the problem with advocacy programs was that during times of fiscal
restraint there was a strong likelihood for services to be cut. In the
Ontario case, the Act was cut.
9. Programs and Services
- advocacy, including the provision of legal advice to the elderly,
as well as representation before the courts and tribunals (Gordon et
al., 1986). The North Shore Community Services, in North Vancouver,
has also developed an advocacy model: it serves as a one-stop shopping
centre for seniors requiring information and services. The philosophy
of this service is based to some extent on both feminist ideology and
legal advocacy. It locates people's personal experience within the larger
context of society (McKenzie et al., 1995) and gives power and control
to the senior by taking instruction from them.
- Advocacy undoubtedly plays an important role in protecting and furthering
the interests of vulnerable adults. An extensive review of such services
in the United States provides evidence that when victims have advocates,
they report less social isolation, are better linked to community services,
achieve more goals and are less likely to suffer abuse (Filinson, 1993).
However, two issues require further consideration. As McKenzie et al.
(1995) correctly point out, knowing one's rights is one thingacting
on them is another. Those who can assert themselves are more likely
to gain attention. Unfortunately, many older adults are in great need
of help but, because of disability or isolation, do not get the assistance
they deserve.
9.5 The Integrated Model
- An observable trend at the community level has been the development
of multidisciplinary teams, made up of workers from a broad array of
agencies that represent all of the programs described above. These community-based
teams or committees provide consultations on atypical and difficult
cases of abuse, help to resolve agency disagree-ments, and provide services,
such as legal and medical consultations, not readily available in the
community (Wolf, 1992). In situations involving elder abuse, researchers
and policymakers frequently advocate coordinating health care and social
services in the detection and intervention process (Decalmer & Marriott,
1993; Health & Welfare Canada, 1993; Pittaway & Gallagher, 1995a,b).
Although little research has been conducted to assess the effectiveness
of multidisciplinary teams, many believe that they enhance the quality
and quantity of service (Health & Welfare Canada,1993; Watson et
al., 1995).
- In the United States, two programs are worth highlighting. Illinois
has directed all agencies that provide elder abuse service to a population
base greater than 7200 to establish multidisciplinary teams with representatives
from mental health, medicine, law enforcement, religious,
- legal, and financial services (Hwalek, Williamson & Stahl, 1991).
Also noteworthy is the multidisciplinary case consultation team provided
by the San Francisco Consortium for the Prevention of Elder Abuse. This
team comprises nine representatives from a number of professions, including
case management, family counselling, mental health, geriatric medicine,
law enforcement, financial services, and adult protection services.
The teams meet monthly to review cases and make detailed comprehensive
assessment and intervention plans for multi-problem, multi-agency elder
abuse cases.
- In Canada, Project Care (Reis & Nahmiash, 1995) appears to be
an extension of the integrated model; it incorporates several of the
services that Wolf (1992) identified as best-practice approaches. Project
Care, funded by the Family Violence Prevention Unit, Health Programs
and Services Branch, Health Canada, was designed to develop a global
intervention program through which professionals and volunteers could
effectively intervene in instances of abuse and neglect. The authors
describe seven main elements of their intervention model: the Tool Package,
to flag abuse cases; a Home Care Team, which is staffed by multidisciplinary
agency professionals and paraprofessionals, who together provide front-line
service; the Multidisciplinary Team, a smaller advisory group that monitors
all abuse cases and counsels Home Care Team members on particular cases;
the Expert Consultant Team, an additional advisory group assembled
- outside the intervening agency to provide specialized advice; the
Volunteer Buddies, trained volunteers who meet regularly with the abused
seniors on a regular basis; an Empowerment Group for the abuse victims
and a Caregiver Support Group, which offers support and problem-solving
strategies to those who have abused; and the Community Senior Advisory
Committee, which focuses on prevention of abuse and raising community
awareness.
- Initial assessments of this approach to the provision of services
have been very positive: service providers become familiar with one
another, resources are organized and dispersed in a single initiative,
and more comprehensive care plans are produced. The main drawback is
that the teams spend more time per case than professionals acting alone
(McDonald, 1996).
9.6 Issues in Practice
- 9.6.1 Evaluation of Practice
- A few comments need to be made about the glaring lack of program evaluation
in the field of elder abuse. As Spencer (1995) has noted, American research
in this area has, until recently, been rudimentary, and Canadian work
in this area is nonexistent. To date, even the most fundamental questions
about what types of services work, for whom, and under what circumstances
remain unanswered (Stein, 1991). Program evaluation is important for
a number of reasons: it provides front-line practitioners with feedback
about what works; it allows agencies to
9. Programs and Services
- compare program goals and actual outcomes; it indicates which aspects
of programs are obsolete and ineffective; and it offers evidence for
the relevance of particular interventions, which in turn can be used
to support applications for continued funding (Pittaway & Gallagher,
1995a,b; Spencer, 1995). It is heartening to see that many of the most
prominent Canadian elder abuse intervention programs have risen to Stein's
(1991) challenge to improve the way outcome research is designed and
conducted. Projects like the Elder Abuse Resource Centre in Winnipeg,
the Victoria Elder Abuse Project, Project Care and Synergy II have all
incorporated a range of measures into their designs. Taken together,
the results of these studies will provide invaluable information about
the efficacy of these approaches; it is to be hoped that others will
be encouraged to join the "outcome(s) revolution."
- Program evaluation depends, of course, on how "effectiveness"
is conceptualized. McDonald et al. (1991) were the first to note that
whether or not an intervention is deemed useful is a matter of perspective.
For example, to a clinician, "the removal of the senior from an
abusive situation" may constitute success, while the victim may
regard this as an unsuccessful approach (Kozak, 1994). Thus, deliberation
by clinicians, researchers and seniors about how best to measure effectiveness
would be a useful exercise at this juncture. Wolf and Pillemer (1989)
and Spencer (1995) have started this
- discussion by suggesting the consideration of such questions as: Does
the intervention stop the abuse or reduce its severity? Is there a change
in how often abuse occurs following intervention? Does the victim feel
that there has been an improvement in the situation?
- 9.6.2 Barriers to Services
- Two recent government documents offer insights into existing roadblocks
to the provision of services to seniors who are being abused (Health
and Welfare Canada, 1993; ARA Consulting Group Inc., 1991). These barriers
currently fall into three categories: some are associated with client
variables, some are attributable to front-line practitioners, and others
exist as a result of broader systems-level issues.
- The most prominent barrier to effective intervention is related to
the hesitancy of victims themselves to reach out and engage with services,
as was noted above (Pittaway & Gallagher, 1995b). Direct service
providers have also contributed to the problem. Service providers are
sometimes unclear as to what constitutes abuse and neglect; they may
lack knowledge about appropriate services and community resources available
to help with the problem. Of greater concern is a general unwillingness
to intervene. Taken together, the three government documents strongly
suggest that priority should be given to increasing seniors' and practitioners'
awareness of, and knowledge about, services (McDonald, Pittaway &
Nahmiash, 1995).
- At a systems level, a number of barriers have also been highlighted.
These include agency mandates that do not specifically address elder
abuse, inadequate funding of appropriate resources, and an overall lack
of coordination among existing services. Podnieks et al. (1990), for
example, identified gaps in Canadian services, pointing to a significant
shortage of adequate and affordable respite care, caregiver support
groups, self-help groups and emergency shelters. While some programs
have attempted to respond to some of these identified deficiencies (e.g.
Project Care, Kerby Centre), significant deficits in programs and services
remain.
- Finally, while coordination has been identified as an important component
of service delivery, it is often easier said than done. Differences
in leadership and decision-making styles, philosophies, principles and
values are cited as routinely interfering with the development of a
cooperative, seamless system of care (McDonald, Pittaway & Nahmiash,
1995; Pittaway & Gallagher, 1995b). Thus, what is needed is a broad-based
community response to the problem of abuse and neglect. Services must
be available, accessible, affordable, known and perceived as appropriate
by those for whom they are intended (McDonald, Pittaway & Nahmiash,
1995).
- 9.6.3 Multicultural Issues
- A recent report by the Research Study Group on Elder Abuse (Chappell,
1993), which focused on First Nations and Chinese
- communities, was among the first to issue a strong statement about
the need to think about abuse and neglect from a more culturally relevant
perspective. This sentiment was further echoed in reports generated
by two Canadian projects that also explored services across a variety
of communities (Canadian Association of Social Workers, 1995; Pittaway
& Gallagher, 1995b).
- Considerable evidence already exists to confirm that violence against
older persons is a problem among many different ethnocultural groups.
As such, two pressing questions regarding service delivery have emerged.
First, do mainstream services appropriately address the needs of seniors
from diverse backgrounds? And, if not, how should existing approaches
be modified?
- The answer to the first question appears to be a resounding no. In
one study, for example, older people from different ethnocultural backgrounds
reported experiencing problems with communication, transportation, and
financial resources (Roche & Doumkou, 1990). Service provision to
this population is closely linked to the existence of systemic racism.
Some authors (McDonald, Pittaway & Nahmiash, 1995) have suggested
that service providers need to critically examine their beliefs and
attitudes to determine whether they are in some way undermining the
response to abuse and neglect.
- Both the CASW study and Pittaway & Gallagher (1995a,b) summarize
the cultural issues that present
9. Programs and Services
- challenges in providing services in cases of elder abuse. These include
the effect of cultural differences in defining what constitutes abuse,
and perhaps influencing help-seeking behaviour; the need for unbiased
interpreters; the unavailability of translated pamphlets and other materials;
the need for creative service delivery models that are culturally acceptable;
the need to train service providers to be more culturally sensitive;
and the need for stronger links between the mainstream agencies that
serve seniors and community leaders and the resources that are affiliated
directly with different ethnocultural communities.
10
Abuse and Neglect of Older Adults: A Discussion Paper
Prevention
10.1 Educational
Initiatives
- Education and public awareness are believed to be critical elements
in any comprehensive approach to the abuse and neglect of older adults.
Education is not just about learning new information: it is about changing
attitudes, behaviours, and values. As such, education is a fundamental
preventive strategy (Gallagher et al., 1993; Podnieks & Baillie,
1995; Podnieks et al., 1990; Greene & Anderson,1993).
10.2 Education of
Older Adults
- The importance of educating older adults about abuse and neglect,
as well as providing information about where to turn for help, cannot
be overstated (Podnieks & Baillie, 1995). Knowledge is power and
can be used to help people help themselves. It allows victims (or potential
victims) to protect themselves and their rights. This, in turn, contributes
to feelings of increased control and self-efficacy (Reis & Nahmiash,
1995).
- In Canada, the One Voice_Canadian Seniors Network has assumed a pivotal
role in developing a coordinated plan of action to address
- the abuse suffered by seniors across Canada. An important, recent
initiative by this group involves providing communities with the tools
to develop a coordinated response to abuse of older adults. To this
end, One Voice, using a community development approach, has developed
a Community Action Resource Kit for seniors to use to create solutions
for abuse. This kit contains all of the resource materials necessary
to support the advocacy efforts of seniors who want to address the needs
of older adults who are abused in their communities.
- Within the United States, the American Association of Retired Persons
(AARP) has taken a leadership role in developing a national effort to
increase public awareness of elder abuse. Its emphasis has been on prevention
and empowerment. Its unique program, called "Toward the Prevention
of Abuse," teaches older adults to anticipate risk and to prepare
for aging in ways that minimize the likelihood of being victimized (Douglass,
1991).
- Recently, practitioners have grown to realize that information, provided
in isolation, is not enough. Consequent-ly, there has been a move both
in the United States and Canada to develop
10. Prevention
- The active involvement of older Canadians in addressing the issue
of abuse is a welcome movement in the field. Increasingly, health and
social service agencies are realizing that care needs to be client-centred
and client-driven. Many of the well-established elder abuse programs
in Canada have made seniors active players in the development and day-to-day
operation of their services (e.g., the Elder Abuse Resource Centre in
Winnipeg, CRNs in British Columbia, Project Care in Montreal). However,
considerable work still needs to be done in this area. There a number
of ways to involve seniors in the fight to reduce abuse: professional
recognition of seniors' contributions, collaboration between seniors
and professionals, generating seniors' interest and commitment, ensuring
a meaningful experience, brainstorming, using seniors as advisors and
central coordination (ARA Consulting Group Inc., 1994).
10.3 Educating
Professionals
- It is especially important for professionals to be able to identify
when seniors are abused and to intervene constructively and appropriately.
Education of clinicians in this area is a critical component of knowledge
and skill development, and it provides the necessary foundation upon
which to offer service. An important first step lies in finding ways
to teach clinicians to reflect on their own attitudes and beliefs about
aging and violence in general (Johnson, 1995). Unfortunately, sources
of bias and discrimination are often deeply
- support and problem-solving interventions, to serve as adjuncts to
educational programs. The assumption has been that these additional
services not only offer protection against abuse but also reduce isolation
(British Columbia Seniors Advisory Council, 1992).
- Within Canada, Project Care, in Montreal (Reis & Nahmiash, 1995),
offers an excellent example of an intervention program that incorporates
both individual and group support in an attempt to empower clients.
As part of a broader network of care, Volunteer Buddies meet regularly
with abused seniors on a one-to-one basis. They help reduce isolation
and inform clients of their rights. Additionally, its Empowerment Group
meets weekly to help victims discuss feelings and brainstorm ways of
dealing with specific problems they are encountering. In the United
States, one outstanding example of this approach is the Victim Support
Group at the Mt. Sinai Centre for Elder Abuse (Wolf & Pillemer,
1994). This group provides ongoing support, encouragement, and guidance
to abused elders and acts as a buffer against feelings of victimization.
- A notable variation of these individual and group approaches is peer
counselling, which brings victims together on a one-to-one basis. Peer
counselling, like the other two approaches, exists in seniors' organizations
and social service agencies across Canada and the United States (Podnieks
& Baillie, 1995).
- hidden (Pittaway & Gallagher, 1995a,b). It is imperative to provide
opportunities for consciousness raising, so that individuals, agencies
and communities can critically reflect on their belief systems and determine
how these influence their responses to elder abuse. A noteworthy Canadian
attempt to provide this kind of teaching has been made at the Deer Lodge
Centre in Winnipeg. This long-term care facility has developed an innovative
way of encouraging its staff to look at the impact of ageist attitudes
and behaviours (Podnieks & Baillie, 1995). Through a program called
the "Aging Game," staff are sensitized to the process of aging
and the impact that inappropriate treatment of seniors has on everyone
concerned. To supplement this program, Deer Lodge Centre also provides
regular in-service training on the origins of abusive behaviour.
- The elder abuse literature often describes the shame, guilt, and fear
of retaliation that victims of abuse experience, and how these may result
in denial of the abuse. What the literature fails to do in any substantive
way, however, is to address workers' fears and denial (Baron & Welty,
1996). Working with victims of violence is challenging at the best of
times. The strong feelings that victims and abusers arouse in clinicians
need to be dealt with in training and supervision. British training
specialist Annie Zlotnick summarizes this best when she states that
"a purely didactic approach to the topic of elder abuse is inappropriate
because of the intense nature of the issues where emotions play so central
- a role" and that the "cruelty of abuse could easily cloud
the issues of even the most level-headed approach to best practice and
decision making" (Zlotnick, 1993). A similar premise underlies
the elder abuse training program conducted by the New York City Department
for the Aging (DFTA). In addition to helping professionals detect, assess
and intervene constructively, workers are taught to identify and accept
their own negative feelings that arise when they work with elder abuse
victims.
- In the last decade, significant strides have been made in increasing
professional awareness in the broader community through training sessions
and seminars on abuse. Increasingly, elder abuse has been on the agendas
of education and scientific meetings, conferences and workshops in gerontology
(Podnieks & Baillie, 1995). As a result, the field has grown across
Canada, and many impressive examples of training programs and resource
kits are being developed (Hoff, 1994; McGregor, 1995; Pay, 1993). Education
and training of professionals is a critical prevention effort. The combination
of education and experience is invaluable in the fight against elder
abuse.
10.4 Educating
Caregivers
- Caregiver stress has been implicated as a factor that increases the
likelihood of abuse and neglect (McDonald et al., 1991; Zarit &
Toseland, 1989). As such, education and training programs for caregivers
play a vital role in prevention.
10. Prevention
- Caregiver support groups have a long and distinguished history as
a resource to assist in the care of the elderly. Available in most communities
across Canada and the United States, they typically offer mutual support,
stress reduction and problem-solving strategies. The underlying assumption
is that the combination of social support and education/training will
work to reduce the likelihood that anger, aggression and conflict will
emerge in the caregiving relationship (Podnieks & Baillier, 1995).
- An innovative offshoot of this traditional approach is mentioned several
times in the literature. In 1992, Scogin et al. described a training
program developed to assist abusive caregivers. The participants were
involved in a program of didactic presentations, group discussions,
role playing and guided practice. Participants were compared with caregivers
who did not receive training, according to four variables: general mental
health, an anger inventory, self-esteem, and degree of burden. The results
indicated that the training program had little impact on anger and self-esteem.
Caregivers, however, did feel some reduction in the personal cost associated
with caregiving. The most important finding was that the group that
received no treatment experienced an increase in symptoms of distress,
while the treatment group experienced a decrease.
- Project Care (Reis & Nahmiash, 1995) also offers a caregiver support
group for those who have already been abusive. This group meets
- weekly and offers support, resource information and problem solving
to arrive at non-abusive ways of behaving. Scogin et al. (1992) and
Project Care are two of only a very few systematic intervention programs
that attempt to deal with the needs of the perpetrator. Given the relational
dynamic between abusers and victims, no solution to the problem of elder
abuse will suffice without a satisfactory disposition of the abuser
(Baron & Welty, 1996).
10.5 Education of the Public
- In addition to training professionals, it is essential to promote
public awareness of elder abuse. It is everyone's responsibility to
take action against this hidden crime and to offer support to victims
in a manner that encourages them to get help. Public education campaigns
should be geared toward abused seniors and those in a position to recognize
abuse when it occurs (Podnieks & Baillie, 1995).
- In both Canada and the United States, many excellent public education
tools, programs and materials have been developed. These include, but
are not limited to, a wide variety of pamphlets on the topic, advocacy
for resources, lobbying activities, the public media and local/national
conferences. In Canada, for example, the Council on Aging (1988) designed
a monograph as part of a pilot project to raise awareness of elder abuse
at both the community and institutional levels. Additionally, the Seniors'
Education Centre, at the University of Regina,
- developed a comprehensive training manual that offers instruction
on how to run a workshop, information about the role of a facilitator,
directions for group activities, and supporting overhead transparencies
(Podnieks & Baillie, 1995). In the United States, the New York DFTA
conducted an outreach campaign in the fall of 1993. Presentations took
place at seniors' centres. Posters and help lines were set up. The response
to this public education program was overwhelming; the DFTA reportedly
received more than 200 new calls to report elder abuse in that month
alone (Baron & Welty, 1996). Similar programs have also been set
up elsewhere in the United States (e.g., Florida [Vinton, 1991], Ohio
[Anetzberger, 1993] and Rhode Island [Filinson, 1993]).
- Coalitions consisting of service providers have also been established
to educate their communities about issues related to abuse and neglect.
- These coalitions, such as the New York City Coalition on Elder Abuse,
meet regularly and offer conferences and seminars. Ideally, this model
will be duplicated in other cities throughout the United States and
Canada.
- Also noteworthy are the recent attempts in many Canadian communities
to develop preventive programs that teach children early in life to
respect older adults and create opportunities for intergenerational
relationships (Podnieks & Baillie, 1995).
- Abuse and neglect of older adults is a community problem. It should
not remain a secret shared by the victim and perpetrator. It cannot
rely on a social agency for its resolution because it is only through
community and general public education that we can ensure the safety
and security of older adults. As such, this area must be given priority
(McDonald et al., 1991).
Looking to the Future
- In taking stock of Canadian developments on elder abuse and neglect,
it is encouraging to see the progress that has been made over the last
decade. This is not to say, however, that there is no more to be done,
or that the challenges will be any less arduous in the next century.
We are currently experiencing a climate of scarce resources: jobs continue
to disappear, research dollars evaporate, programs are shut down and
competition is the order of the day.
- Within this context, Canadian researchers, practitioners, and governments
face a daunting agenda. Over the last decade, most of the progress has
been made in intervention and prevention, usually at a regional level,
with only modest gains in the area of research. The next logical step
for Canada would be the formation of a national organization devoted
to combatting abuse and neglect of older adults, which could pull together
the strands of practice, education, and research from across Canada
and weave them into a comprehensive whole that would benefit all Canadians.
Within this framework, national agendas for research and for coordinated
action
- could be undertaken; through cooperation and strategic targeting,
these programs would be effective across Canada.
- The research waiting to be done will be expensive, but only in the
short term. Research is necessary to help apportion the use of limited
resources in interventions, services and prevention, by demonstrating
their relative effectiveness. Thus, to make any headway at all, we need
an incidence study of abuse, a prevalence study of abuse in institutions,
case control studies to determine risk factors for abuse, continued
testing of screening and assessment instruments, and, more than ever,
evaluations of practice, the new omnibus legislation and our preventive
programs. A critical consideration in all areas of research will be
the need to attend to ethnic diversity.
- A national strategy for action cannot be suggested here. Such a strategy
must be determined by all the stakeholders, the most important being
Canadian seniors. As in other issues of national concern, Canada's seniors
can and should provide the leadership in eradicating the abuse and neglect
of older adults.
References
- Anetzberger, G. J., Korbin, J. E., & Austin, C. (1994). Alcoholism
and elder abuse. Journal of Interpersonal Violence, 9
(2), 184_193.
- ARA Consulting Group Inc. (1991). A Review of Community/Program
Responses to Elder Abuse in Ontario. Toronto, ON: Ministry of Citizenship.
- ARA Consulting Group Inc. (1994). Older Canadians and the Abuse
of Seniors: A Continuum from Participation to Empowerment. Ottawa,
ON: Health Canada.
- Aronson, J., Thornewell, C., & Williams, K. (1995). Wife assault
in old age: Coming out of obscurity. Canadian Journal on Aging,
14 (2), 72_88.
- Baker, A. A. (1975). Granny battering. Modern Geriatrics, 5
(8), 20_24.
- Baron, S., & Welty, A. (1996). Elder abuse. Journal of Gerontological
Social Work, 25 (1/2), 33_57.
- Basu, R. (1992). Elder Abuse: A Practical Handbook for Service
Providers. Toronto, ON: Ontario Association of Professional Social
Workers.
- Aboriginal Nurses Association of Canada (1992). Annual General
Meeting Report for 1992: Abuse of the Elders in Aboriginal
Communities. Fort Qu'Appelle, SK: Indian and Inuit Nurses of Canada.
- American Association of Retired Persons, AARP (1990). Toward the
Prevention of Domestic Mistreatment or Abuse. Washington, DC: AARP.
- American Indian Law Centre Inc. (1990). Model Elder Protection
Code. Albuquerque, NM: American Indian Law Centre Inc.
- American Medical Association AMA (1992). Diagnostic and Treatment
Guidelines on Elder Abuse and Neglect. Chicago, IL: American Medical
Association.
- Anetzberger, G. (1987). The Etiology of Elder Abuse by Adult Offspring.
Springfield, IL: Charles C. Thomas.
- Anetzberger, G. J. (1993). Elder Abuse Programming Among Geriatric
Education Centers. New York, NY: The Haworth Press, Inc.
12. References
- Beaulieu, M. (1992). La formation en milieu de travail : L'expression
d'un besoin des cadres en ce qui concerne les abus à l'endroit
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