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Photo d'une femme qui lit Women’s health: reading between the lines
 
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If you've followed women's health news over the last couple of years, you've probably heard or read about some interesting debates. There have been a variety of news reports on such health issues as breast self-examination and female sexual dysfunction. Some of this news has been alarming, contradicting previous medical knowledge, and leaving women wondering where to go for answers.

But these issues can also inspire us to look at the news critically, and to search for other sources of health information to better understand our own needs and concerns.

How do we navigate through the news reports, and make sense of them?

When it comes to health news, we need to turn into research detectives.

Look beyond the 'hype' - check all sides are covered

Most health issues are quite complex, and may be surrounded by hype about "medical breakthroughs". From a news report, it is often difficult to determine what stage the research is at, what is known about the risks and side effects, as well as the potential benefits.

Indeed, most Canadian daily newspaper stories on new prescription drugs downplay or do not mention at all the possible adverse effects of the drugs, according to the 2003 study, "Drugs in the News" by the Canadian Centre for Policy Alternatives.

When reading a news article on a health study, ask yourself the following questions:

  • Are you getting more than one side of the story?
  • Are other experts, not directly involved in the study, quoted in the news report?
  • Are different opinions put forward in the article?

Alternative points of views will often help you put the research results in perspective.

Check out the research - How reliable is the study?

Not all studies are of equal quality. Hot-off-the-press reports may appear trustworthy because they talk about "scientific research". But reporters rarely have time to read the full study and analyze its complexities. Most of the time, they rely on press releases which do not assess the strengths and weaknesses of the research methodology.

Example: New women's disorder or just a bad questionnaire?

In 1999, Canadians read a disturbing headline: a study had found that 43% of women suffered from a new disorder called "female sexual dysfunction" (FSD).

Seldom reported, however, was the way the study was designed. As other researchers began to take a critical look at the study, concerns were raised about the way that the data was collected, including this description by the British Medical Journal:

"About 1500 women were asked to answer' yes' or' no' to whether they had experienced any of seven problems, for two months or more, during the previous year, including a lack of desire for sex, anxiety about sexual performance, and difficulties with lubrication. If the women answered' yes' to just one of the seven questions, they were included in a group characterised as having sexual dysfunction."
British Medical Journal

With questions like that, it wasn't surprising that many healthy women were characterized as suffering from female sexual dysfunction, including women who were too stressed or too tired.

Critics of the study argued that while many women may suffer from sexual difficulties, the cause may be social, political or economic, rather than a medical 'dysfunction'.

Without digging past the disturbing headline of "43% of women with FSD", we would be left with a just one small piece of a very complicated story.


Find out who paid for the study

It is important to ask who funded the research. This is often not reported in a news story. It can take some research of your own, looking for the original study, which may be available on the Internet, or in a journal available through a library. Knowing who funded the research may help to reveal why certain research questions, and not others, were asked, why certain methods were chosen and why results were presented in particular ways.

For instance, in the example above, when the British Medical Journal traced the story of female sexual dysfunction (FSD), it found that a number of pharmaceutical companies had been funding researchers to study FSD since 1997. These companies were also developing new drugs to "treat" FSD. One could argue that the companies had a business interest in identifying more women with this "dysfunction".

Certainly, not all corporate-funded research is poor, or one-sided. For the most part, however, the most credible health research is:

  • peer-reviewed,
  • published in a respected journal, and
  • funded by an organization or agency with no financial interest in the results
Ask a lot of questions

Women and Health Protection keeps a close watch over the safety of new drugs and examines the impacts of federal health protection legislation on women's health. They advise women to ask a lot of questions when new studies on women's health are promoted.

"It's important to look at what gets researched and what gets promoted. This is always influenced by certain key factors:

  • Who decides what is important?
  • Who decides what is legitimate evidence?
  • Who is interpreting the findings?
  • To what end are the findings being promoted?

In the case of women's health, for a long time, women have not been sufficiently represented around the tables where these decisions are made."

Anne Rochon Ford, Women and Health Protection.

When experts disagree…

There are many issues on which the medical professions disagree. When played out in the media, these debates can become very highly charged, but are an important step in advancing medical knowledge, as well as in raising awareness about what remains to be known. As women, we can help ourselves by learning about what the various sides are saying, weighing the pros and cons, and taking our questions and concerns to our doctors and other health professionals.

Even reputable studies have limitations, and we should be cautious of jumping to conclusions about new research until people have had an opportunity to digest it-and to debate it.

Example: Breast self-examinations- early warning or waste of time?

In 2001, a study in Canada made the news with headlines like: "Breast-Exams cause Harm: Study". This flew in the face of what women had been told for over 50 years.

The study "Preventive health care, 2001 update: Should women be routinely taught breast self-examination to screen for breast cancer?" headed by Dr. Nancy Baxter found no evidence that breast self-examination (BSE) reduces deaths from breast cancer. It recommended that BSE should no longer routinely be taught to women, because women were finding many benign (non-cancerous) lumps that led to unnecessary surgery.

This story created a storm of controversy in the media, with heated debates from a variety of interested parties, including breast cancer survivors, researchers and professional organizations. It was a tough issue to understand, not only because of the complexity of the story, but also because the emotions surrounding it. Women following this news were faced with a dizzying array of arguments and many were confused about what to do

As Janine O'Leary Cobb of Breast Cancer Action Montreal, wrote, "It is difficult to evaluate the Baxter Report objectively. Those of us who have had a brush with breast cancer, as well as those who have lived through the experience with a friend or relative, know that we have a limited range of options for detecting breast cancer."

Three years after the Baxter study, many organizations such as the Canadian Cancer Society and several breast cancer activist groups still promote breast self-examination. Some of the arguments include that the study had flaws when relating the results to North American women, and that breast exams give women some control over their health.

Whether or not we choose to do BSE, this public debate highlighted the need for better tools and strategies to prevent and detect breast cancer.


Keep digging for more information

When we look past the headlines, we have the power to inform ourselves, and make educated choices about our health. News stories can provide a "jumping off" point in our search for other points of view.

The Internet is a source of thousands of web sites with hot-breaking stories. As women tend to do most of the searching on the Web for health information, there are thousands of health web sites aimed at women. Some are excellent, others are less credible. The Canadian Health Network offers us some solid principles for searching for quality health information on the Web.

You can search for more information in many ways:

  • Ask a health information or medical librarian to help you find a specific research article or to help you search for other credible information.)
  • Talk with your doctor, pharmacist or another health professional.
  • Check out the women's health pages of the Canadian Health Network or women's health websites that are non-profit and updated regularly to find more information.
  • Beware of websites that do not describe both pros and cons of an issue, those that do not tell you the source of their information, and those that try to sell you something along with their information. Advertisers can be very good at disguising ads as health information.

The next time you see health headlines in the news, remember that you don't have to be an expert to make sense of the information. Put on your health research detective 'hat', follow the clues and reach your own conclusions to inform decisions about your health.

 
  Date published: March 1, 2004
  Credit Article prepared by the Canadian Women's Health Network.

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