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The facts...
If you are male and over the age of 65 you are at risk of developing prostate
cancer (men in their fifties are also at risk). One in eight men will develop
prostate cancer in his lifetime, most over the age of 70.
Prostate cancer has one of the highest cancer survival rates, according to
the Canadian
Cancer Society.
An estimated 20,100 Canadian men will be diagnosed in 2004 alone. These men
live with prostate cancer, and are dealing with both the physical and the emotional
and psychological side effects associated with it.
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One couple's experience…
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Although
the characters in this story are not real, they represent one of the psychological
side effects that men and their partners may experience after a prostate
cancer diagnosis.
The sterilizing white of the walls glared into their eyes where the sun
beamed in from the warm August day outside. The nurse swished past them
and gently pulled the blinds down. The room transformed from a searing alabaster
to a creamy warm glow.
"Honey?"
"Hmmm?" Flip. Flip. The magazine passed the time.
"You know I love you, right?"
Pause. "I know. I love you too."
"So, why do we have to do this?"
"We just have to. You know that. I need to do this." Flip. Flip. Flip.
This was not how it was meant to be - he knew that. They shouldn't be sitting
here in this office, waiting to talk to someone about their sex life, or
rather lack thereof. Funny how a year can change things.
He looked at her now and took her hand in his. He said, "A year ago I would
have said 'Forget it.' But today is different. You deserve more than this.
I deserve more than this. We have tried everything. This prosthesis is the
only option we have. Of course I know you love me and if I didn't love you,
love us, I wouldn't be here. But I do care. Just living isn't enough. Now
we need to start living it right - "
"The doctor will see you now," the nurse called, now standing by the desk.
His breath caught. His hand tightened around his wife's without realizing
it…until he felt her squeeze back. She pulled him out of his daze as he
looked at her.
"Time to live life right again," he thought as he and his wife disappeared
behind the shelves of file folders of men that had been there before them.
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Tough subjects to discuss…
Dr. Ross Gray, Co-director of the Psychosocial and Behavioural Research Unit
at Toronto Sunnybrook Regional Cancer Centre in Toronto, has focused much of
his work since the mid-1990's on men's health and men's cancers, specifically
psychosocial and supportive care research related to cancer.
Dr. Gray says that, "…ill men are in a psychological bind. They may
feel vulnerable, and experience more intense emotions than they are accustomed
to feeling." A sense of loss of masculinity, through side effects of treatment
- impotence and incontinence - have been found to be the leading psychosocial/emotional
concerns of men with prostate cancer. Dr. Gray and his colleagues found that
most men, however, prefer to avoid discussing these issues at all , some even
reporting that they have had no such emotional side effects.
Research shows that when men do decide to disclose information about their
condition they generally turn to their partners. When men seek support beyond
their partners, they generally turn to a prostate cancer support group, initially
to gather information, then returning to find out more. Interviews reveal that
men who choose to participate in these groups find it helpful being able to
talk with each other about their experiences and clearly benefit from sharing
them.
Support groups are an excellent place to get information and learn from others,
and they can make a person feel less alone. For a full listing of prostate cancer
support groups in Canada, visit the Canadian
Prostate Cancer Network web site.
Getting and giving support…
Men with prostate cancer:
Can try to accept how they feel and use the support surrounding them to
help get them through difficult times.
Partners:
Can understand that men deal with emotional and psychological effects differently
and support them along their path. As Dr. Gray states, "There is no formula
for this. It can include giving men space and time to come to terms with a diagnosis,
gathering information, minimizing the importance of sex versus survival, keeping
things as normal as possible, supporting men's desire to not be too public about
the disease and treatment, and emphasizing continued attraction."
Friends, family and coworkers of men with prostate cancer:
Can be empathetic and understanding of the situation.
Health professionals:
Can ensure that adequate diagnoses are made and that services are available
for all aspects of prostate cancer, from dealing with the day-to-day issues
to handling psychological and emotional effects. Health professionals need to
consider how best to address self-esteem and interpersonal challenges in a sensitive
manner.
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