Keeping Our Frail Elders Involved - Community
Programs that Work
"First
Nations and Inuit societies have different traditions and approaches
to health and healing that must be respected
The vision
of the Elders, handicapped and chronically and acutely ill is
to continue to live productive, useful lives in their homes,
close to their families, in their communities... and (to) help
maintain their culture, language and traditions..."
Many factors
affect the level of involvement in community programs by the
Aboriginal frail elderly across Canada. In October 2002, NIICHRO
conducted surveys with CHRs in communities across Canada and
asked them about their programs for their frail elderly. Overall,
the main points gathered from the surveys showed that to increase
physical activity opportunities for the Aboriginal frail and
elderly, the focus should be on the following:
Retaining
Culture in Activities and Programs
"(Elders
need) outings such as fishing, berry picking, attending drum
dances or other community events."
Tracy Kushneryt - CHR from Beaver First Nation, Alberta
Aboriginal
elders need opportunities for social interaction, exercise, recreation
and leisure time activities that are culturally specific. Activities
that are too different from what they have known throughout their
life are not as effective as more traditional Aboriginal ways.
Cultural activities and events are very meaningful for elders
especially those who cannot get around as well as they used to.
Elders need to feel that their culture is not lost despite their
age.
Isolation,
Loneliness, Depression
"Elders
love it when they are visited regularly. Invite them to different
functions that are happening in your community. Invite them
all the time; don't expect them to come on their own."
Olive Halfe - CHR from the Saddle Lake Health Care Centre, Alberta
Isolation
from family, friends and resources remains a barrier to becoming
more physically active. Many older people are no longer independent
enough to participate in organized activities and need care at
home even for the most basic living activities. Aboriginal seniors
show a strong desire for to remain independent, but many simply
cannot do so without help. In some households, a "generational
squeeze" may occur where families find it to difficult to
work all day and look after their elderly parents' needs. By
leaving the reserve, many Aboriginal elders become isolated,
losing contact with their communities of friends and family.
Language can be a barrier to social integration for Aboriginal
seniors who do not speak English as their first language.
Physical activity
programs for the frail elderly must consider isolation, depression
and loneliness factors. Some elderly people feel much fear about
losing their independence. Programs must boost self-esteem and
promote the feeling of self-reliance.
Getting Elders
Involved
"It seems
with group settings, it's usually the same people. Some elders
are reluctant to participate."
Stephen Odjig - CHR Coordinator, Wikwemikeng, Ontario
Elders are
often not willing to become involved in activity programs particularly
because they do not have someone to support them and help them
understand the pleasure they will gain from activity. Maintaining
hope is vital to maintaining health and the motivation to exercise
for wellness. Elders are motivated by their cultures and traditions
- the "old" ways of life. Effective activity programs
should incorporate life review process or reminiscing as a way
of motivating and stimulating elders to remain as active as possible
as long as they can.
It is essential
to realize that many seniors are anxious, tense, and nervous
in an "exercise" setting, which may make them reluctant
to try something new or different. Therefore, enjoyment and variety
in program structure is needed. With careful attention to the
physical activity program design, a CHR can help the elderly
learn to feel more comfortable with the inevitable changes that
are occurring in their bodies. There are several essentials
when working towards motivating the elderly to become more physically
active:
· Meaningful conversation and discussion
is encouraged and rapport with the CHR or caregiver is essential.
· The elders must be given the opportunity to express themselves so that they know they
are being heard and understood.
· Demonstrate interest in them, it
will enhance their own self-esteem.
· Encourage all aspects of socialization
with program activities. Offer attainable targets and recognize
those who achieve these them.
· Be
flexible
with your program design, adapting appropriately to the welfare
of the elders.
It is important
to be very supportive when teaching elders to be more physically
active. As elders age, they may feel self-doubt and experience
depression. Activity programs must empower them to feel a sense
of self-control with the success they enjoy through physical
activity.
Transportation/Mobility
"(I wish)
there would be more participation for outings to different communities
for visiting, as a person hardly ever sees another unless it's
at a funeral."
Doris Courtoreille - CHR and Home Care Worker from the Swan River
First Nation in Alberta
Transportation
issues are important considerations when developing programs
for the frail elderly to keep them physically active. The four
most common problems regarding elderly people and transportation
include difficulty getting in and out of vehicles, standing in
the vehicle while it is moving, getting to a location where a
vehicle can pick them up, and waiting for the vehicle. To make
matters worse, many non-housebound seniors with disabilities
in Canada have no available public transportation. Seniors with
disabilities who live in the community need greater availability
of specialized van services. Adequate and appropriate transportation
and access to medical escort services are an important and critical
health service need for elders.
The development
of any activity program for the frail elderly must consider transportation
issues on reserve. Lack of adequate transportation is a legitimate
health concern of elders. Communities should consider developing
training that focuses on home-based physical activities.
Diet/Nutrition
"(Our community
needs) a Meals on Wheels program for frail elders/all elders."
Lee Ann Sock - Nurse and Home Care Nurse Coordinator, Big Cove
Health Centre, New Brunswick
Elders, particularly
frail elders, are often compromised financially, making the purchase
of fresh, attractive food more difficult. For older people,
both access to food and a decreasing appetite may become problems.
As a result, the amount of food they eat and the amount of exercise
these older people can enjoy become less and less, and they become
frailer. As people become frail, access to food becomes a problem
at all levels, from obtaining the food, to preparing it, to eating
it.
Clearly it
is important to provide food for homebound elderly. For many
older people, especially in urban areas, going out of the house
to get food or to exercise may be a dangerous proposition. In
addition to helping elders with exercises, physical activity
programs must also educate about the need for adequate nutrition
for elderly people on reserve.
Home and Community
Care
"We need to teach
family members how to care for their elderly mom or dad."
Lorraine Little Mustache - CHR from Pukani Nation, Alberta
Families can
play a huge role in ensuring that their frail elders retain their
sense of dignity and independence. Most Aboriginal elders desire
to remain in their own homes and in their own communities as
long as possible. Programs like Health Canada's First Nations
and Inuit Home and Community Care can support and improve the
care provided by families and the community. The program allows
elderly people who want to and can remain at home the ability
to do so. The services are provided in a holistic manner that
looks at each person's unique physical, social, spiritual and
emotional needs. It would be beneficial for a physical activity
program for the frail elderly to work in partnership with home
care programs to integrate into the lives of people who choose
to age at home.
Facilities
such as the Turtle Bay Elders' Lodge in Kahnawake, Quebec provide
independent living for older community members (at a cost per
month) but with nursing supervision. Meals and other amenities
are also provided. For those who don't want to be dependent
on others and yet find it hard to have the upkeep of a large
home, this is a nice alternative.
The Costs
of Running Programs
"(There is a) lack
of a facility that is accessible to all elders."
Lee Ann Sock - Nurse and Home Care Nurse Coordinator, Big Cove
Health Centre, New Brunswick
Existing public
recreation and physical activity services have a negative image
problem among some Aboriginal people. Criticism includes the
cost of such services and the perception that services do not
meet the needs of Aboriginal people, especially the elderly.
Very often there are no available facilities in communities
fit to handle programs for the elderly. If facilities are available,
many need modifications such as ramps for wheelchairs and other
assistive devices to help elders use the facility safely and
effectively. The reality is that sometimes there is no money
to fund these needs and the community must do its best to adapt
its programming. Programs that involve visits at home and activities
that frail elders can do without travelling very far away from
home tend to be the most successful at the community level.
In addition,
there can be costs associated with activities that effectively
make them prohibitive for some seniors. Physical activity programs
for the frail elderly must take into account cost and locations
to better serve those that need them. Activities that are good
for health do not have to cost a lot of money.
Caregiver
Training and Family Support
"(My
suggestion) is to have people take training that pertains (to)
how to work with elderly people. To learn about their wants
and needs."
Brian Youngchief - CHR from Kehewin, Alberta
Like the rest
of the general population, First Nations people with disabilities,
the elderly or the frail elderly require assistance offered through
home care programs in order to maintain a healthy lifestyle.
However, unlike the off-reserve population, additional services,
such as hauling water and gathering wood are usually required
on a daily basis. Although most First Nations communities provide
minimal home care services, funding from government is often
inadequate to meet the needs of the community, particularly the
special needs of the frail elderly.
Many communities
do not have adequate numbers of caregivers to provide services
to their frail elders. Typically, CHRs are the first line of
support for health issues in their communities and have many
responsibilities to their clients. This can leave less time
for the elderly in their communities. In some cases, there are
simply not enough CHRs and caregivers and particularly not enough
that have experience with the needs of frail elders. Family
support is a key factor in alleviating some of the gaps in the
services that CHRs can realistically provide in their communities.
Family members need to have an active role in their frail elders'
lives by helping them with daily activities.
Reading and
Understanding All Those Instructions!
"Our
elders like to be educated as well (on) such topics as: diabetes,
home security, phone scams etc."
Carolyn E. Michelin - Community Health Worker for Happy Valley-Goose
Bay & North West River, Newfoundland and Labrador
CHRs and family
members must try to increase their efforts to educate elders
about the benefits of active living and healthy eating, including
their essential role in maintaining independence. Many frail
elders - especially those who do not speak English as a first
language - may have trouble reading and understanding medical
instructions. Consideration must be given to those elderly who
speak English as a second language and must be inclusive of those
who speak their native languages. Sometimes barriers exist in
terms of reading and comprehension but also in terms of failing
eyesight or hearing. Physical activity programs must also consider
all reading levels and also those who have difficulty seeing
and hearing, as this may be a barrier to following instructions.
The ability to solve problems, read and comprehend self-care
messages also improves the likelihood that a person will practise
healthy lifestyle behaviours. Those who can read or at least
understand feel more independence and have higher self-esteem.
Carrying on
Traditions - Involvement with Youth
"In our
society, both adolescents and the elderly are often isolated
and afraid. They are either "too young" or "too
old" for many activities valued by the community. Referring
to the elderly, one youth has said: "We're afraid of growing
up, and they're afraid of growing old. Both groups can really
help each other. One by providing comfort, the other by providing
guidance."
"(We need) more interaction with our youth/children for
story-telling, education and cultural events."
Liz Yellowquill - CHR from Long Plain First Nation, Manitoba
Elders have
a lot to teach our youth. The traditions and stories the elders
carry are invaluable to maintaining culture. Youth can learn
a lot from "the old ways" and from the struggles their
elders endured.
The Goals
for Youth Involvement with Elders:
o To create
an awareness of and sensitivity to the issues of the elderly.
o To eliminate stereotypes among both groups - the young and
the elderly.
o To enable the frail elderly to remain in the comfort of their
own homes and receive needed nutrition and companionship.
Programs that
Work - Community Examples Across Canada
The communities
that enjoy the greatest success with their frail elders have
many programs encompassing a whole range of activities for elders.
This includes a holistic array of activities that involves personal
home care, nutrition, physical activity and cultural events.
Liz Yellowquill is a CHR of the Long Plain First Nation in Manitoba.
Her community provides many home care programs that include
homemakers, health care aide, adult day care program, and meals
and meal delivery programs. Liz's community also has physical
activity programs including range of motion exercises. Other
areas of activity in her community include respite care and cultural
activities including traditional meals.
Liz feels
that her community has successful programs because her day programs
involve social interaction, socialization, exercise and a health
education component. The CHRs do home visits to provide one-on-one
health education. The one-on-one visits also alleviate loneliness
and feelings of isolation. In her community, the CHR acts as
an interpreter or translator to accompany frail elders to their
doctor's appointments. This is to ensure that elders understand
their doctor's instructions or any prescriptions they are given.
CHRs provide elders with monthly shopping trips to the nearest
town. There is also a regular monthly bingo for elders.
Despite all
of the programs in her community, Liz still feels that more interaction
with youth would be very beneficial. She feels the children
and youth in her community could benefit from elders' story telling,
education and cultural events.
Verna Popejoy
is a nurse in the Tsewultun Health Centre of Cowichan on Vancouver
Island in British Columbia. Her community provides many opportunities
for its frail elders. There is a swim program with a dedicated
time available at the local pool, and a day program with lunch
provided for which elders are picked up in an accessible wheelchair
van. Elders are taken to elders' conferences throughout British
Columbia with transportation provided. There are home support
programs and community care programs for frail elders. The community
provides a Healthy Lifestyle program for those with diabetes
and elders' lunches on Wednesdays and Fridays. Arthritis education
is also provided. There is an elders building where the community
members can come for baths and equipment.
Verna knows
that the success of her community's programs depends on input
from the elders themselves and the elders' families. She also
advocates visiting the frail elders just for company and not
only when there is a problem. The day program that involves
socializing is very important to limit elders' feelings of isolation
and loneliness. In her community, local schools and youth play
a big role in the lives of the frail elders by helping serve
at elders' lunches and events. She feels a big part of the success
of local programs has to do with providing services that elders
have trouble with in their daily lives, such as bathing and doing
their own laundry.
Family involvement
is needed to ensure elders stay active in the community. Verna
finds that give and take between generations is needed and families
need to give back to their elders for all of the gifts they have
given over the years. For the families that are involved with
their elders, good respite care is required so that families
can get a break from each other too. Elders need other elders
- even if they just sit together in a group and watch television
or talk.
In Inuvik,
Northwest Territories, CHR Alfred Moses runs programs for the
frail elderly in his community. He has set up a healthy living
program that involves maintaining flexibility with stretching,
exercising and the ability to perform daily living activities.
Alfred is working on an elders fitness program that will involve
the three components of being active: stretching, strength and
cardiovascular endurance.
Alfred feels
that it is important to provide frail elders with programs that
involve the things they love to do with help from the community
members themselves. He suggests starting with light and easy
workouts and slowly building the intensity and endurance levels
over time. He also provides social situations for elders like
outings, lunches, trips and teas.
Alfred feels
that physical activities should vary in order to keep people
interested in participating. The barriers he experiences in
his community have mostly to do with weather conditions and travel
distances to get to the programs he runs. These factors often
create a lack of interest or motivation to attend because it
is hard for people to travel or get around in snowy conditions.
In addition, in Alfred's community it is sometimes difficult
to find facilities to host activities that people can attend.
He also finds that the experience the CHRs have often does not
include work with the frail elderly and this can be improved
with more training.
Lynda Gamble
is a CHR from Beardy's Okemasis Willow Cree Health in Saskatchewan.
She describes home visits in her community as very successful
because lack of adequate transportation is a problem where she
lives. Lynda wishes there was an easily accessible transportation
service such as a taxi in her community. In addition to a lack
of funding to run programs for the frail elderly, Lynda experiences
a lack of motivation from elders to attend certain programs.
Family involvement is a key factor in the frail elder's life
and Lynda feels this should be a major concern in all communities.
When families have more involvement, she feels the elders are
in better spirits and become involved in activities much more
readily.
In Makkovik,
Labrador, Kim Anderson is new to running the seniors programs
in her community and she feels they are very successful. Annie
Evans has now retired after 16 years as a CHR in Makkovik. The
seniors' socials are held once a month. They include a nutritious
snack, a short presentation and socializing. Kim also provides
home visits and sees many elders who are extremely happy with
anything that the CHR or home care workers can do for them.
Kim has about 12 clients receiving home support including personal
care and physiotherapy. In her community, there are regular
lunches and snacks and Kim has also started home visits.
This past
summer the home support workers held an event every Wednesday.
One Wednesday there would be a nutritious snack and the second
week, a nutritious home-cooked meal. Many of the elders in Makkovik
attend church regularly and are involved in the community sewing
circle and community feasts.
In Old Crow
in the Yukon, Marion Schafer has helped to provide her community's
elders with home care and adequate accessibility in their homes.
Each elder who needs it has had a ramp installed in his/her
home. CHRs also provide translation services for the elderly
so that they can understand their prescription and instructions
for health care. A Home Care Coordinator position is now in the
works in her community, which will help tremendously with the
care of frail elders. Transportation is not as much of an issue
in her community and she feels that if the elders can walk, it
is a great way for them to get out there and be active!
Mary Basque
of Eskasoni, Nova Scotia feels that the elders in her community
need a home where all activities and outdoor events can take
place or be coordinated. She feels the barrier in her community
is the lack of a place for elders to organize formally. She feels
if an elders' centre existed, it would be a place to gather and
be a "nucleus" for socializing, and such things as
cooking classes and recreational activities. She would like
to see them have a place for fundraising and where elders could
become more empowered and involved in schools with youth and
in local politics.
In Maniwaki,
Quebec programs are provided for the elders by staff at the Health
Centre such as the nurse, the CHR and the social worker. Eliza
McGregor is the CHR in her community. One of the programs in
her community gives elders the opportunity to better get around
in their homes. They offer wheelchair ramps, bathroom bars,
bath chairs, walkers and canes. CHRs assist in making appointments
and escort the frail elders to the doctor's office. Eliza conducts
weekly lunches and bingo with transportation provided if necessary.
There are out-of-town trips for elders and a yearly Christmas
party.
For health
education, health workers have a diabetes support group, and
workshops with speakers on diabetes and various health topics
such as heart disease and blood pressure. There are also workshops
with traditional medicine as a theme. Eliza speaks her native
language with the elders in her community and provides traditional
meals with moose, deer and bannock. At the local school there
are grandmother and grandfather activities to get the young children
and youth involved with their elders.
Eliza feels
that the most successful programs for the frail elderly involve
interaction with CHRs, with other elders and especially with
family members.
1Health Canada. First Nations and Inuit
Home and Community
Care Program: 2001. Retrieved from: http://www.hc-sc.gc.ca/fnihb/phcph/fnihccp/program_criteria.htm
#Preparation%20Activities%20for%20Program%20Delivery
2Ibid
3O'Brien
Cousins, Sandra EdD. Promoting Active Living And Healthy Eating
Among Older Canadians: 2001. Retrieved from: http://wwwnfh.hc-sc.gc.ca/publicat/execsumm/cousins.htm.
4Project
Touch. A Series of Intergenerational Programs for Teens that
Help both the Youth and the Elderly: 2002. Retrieved from:
http://www.pry.org/touch.htm.
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