Self-Neglect by Older Adults
The Purpose of This Overview Paper
The purpose of this fact sheet is twofold: to help older adults,
family members, friends and formal care providers 1
to better understand self-neglect in later life and to suggest some
steps for trying to prevent it. One often finds it difficult to
know when to intervene and what to do in order to be most helpful
in the situation of older adults who are neglecting themselves.
An older adult's right to choose how to live is an important consideration
in any self-neglect situation. A balance must be found between ensuring
the safety, security and well-being of older adults while respecting
their right to be as independent as possible. By learning more about
what self-neglect is, why it happens, and what signs to look for,
we will be better prepared to deal with self-neglect or to help,
in a respectful way, when necessary.
Understanding Self-Neglect by Older Adults
Self-neglect by older adults is a serious problem. A U.S. study
has indicated that nearly one half of all abuse cases and two thirds
of neglect cases in later life investigated by authorities involve
self-neglect. 2 In fact, self-neglect
may be the most common form of neglect among older adults. This
is why it is so important that their entourage and formal care providers
learn more about this problem.
Self-neglect occurs when older adults, by choice or by lack of
awareness, live in ways that disregard their health or safety needs,
sometimes to the extent that this disregard also becomes hazardous
to others.3 For example, a person
may choose to have a dirty kitchen, which is not necessarily harmful
to others. However, if a fire starts because of this dirty kitchen
and spreads to a neighbour's apartment, this self-neglectful behaviour
is clearly objectionable.
Older adults who neglect themselves are not willing or able to
perform essential self-care tasks such as:
- providing food, clothing, adequate shelter
- obtaining adequate medical care
- obtaining goods and services necessary to maintain physical
and mental health, well-being, personal hygiene and general safety
- managing financial affairs 4 .
Signs of Self-Neglect
There are several signs or symptoms of self-neglect
that you can look for. Poor overall self-care is a major indication
of self-neglect. Specific signs to look for include:
* Dehydration
* Malnutrition
* Hypothermia/hyperthermia (exceptionally low/high temperature)
* Excessive dirt or odour, hazardous, unsafe or unclean living conditions
* Inadequate or inappropriate clothing
* Absence of needed eyeglasses, hearing aids, dentures or prostheses
* Unexpected or unexplained deterioration of health
* Bedsores
* Signs of excessive drugging, refusal to take medication or other
drug misuse.5
Some Characteristics of Self-Neglectful Older Adults
Older adults who neglect themselves usually have certain characteristics.
Knowing about these characteristics can assist those who are trying
to help. For example, older adults who neglect themselves are more
likely to live alone.6 They are also
more likely than others to suffer from mental illness or physical
illnesses such as Alzheimer's disease, decreased physical abilities,
and/or alcohol and drug problems.7 There
are also some gender differences. More women than men neglect themselves,
but this may be because more women than men live alone.8
Intervention and Prevention of Self-Neglect
There are relatively clear signs that can help in determining if
older adults are neglecting themselves. However, it is less clear
what steps family members, friends and formal care providers can
take. It may be helpful to consider legal and other intervention
strategies in self-neglect situations.
Legal Implications of Self-Neglect
Competent older adults, - able to exercise their rights - including
those who live in situations of self-neglect, have the right to
decide the risks to which they want to expose themselves and the
right to refuse assistance and care. The Canadian Charter of
Rights and Freedoms,9 which is applicable
in some situations, grants everyone the right to life, liberty and
the security of the person. Unless the individual is found to be
incompetent, help can be offered, but it cannot be forced upon the
person. But where the individual poses a risk to others or is violating
the Criminal Code, intervention in a self-neglect situation
may also be appropriate.
In Canada, there is no general test of competency.10
The definition of competency varies across legislation, institutions,
agencies and provinces/territories. However, it can be generally
defined as a person's ability to understand the situation he or
she is in and the decisions that have to be made about that situation.11
The legal determination of incompetency is a last resort since
it dramatically changes the rights of an individual. For this reason,
it is important that the least restrictive approaches are taken
before attempting to have an older adult declared incompetent.
The main concern of family members and professionals who are trying
to prevent self-neglect among older people is how to balance the
independence and well-being of self-neglectful older adults. However,
there is no easy answer about how to do this and each case must
be treated individually. All people who are trying to help must
learn to listen to, respect and counsel the older adult in an appropriate
way.
The following questions come from Resource and Training Kit
for Service Providers: Abuse and Neglect of Older Adults.12
How can the community care for an older adult without jeopardizing
that individual's rights?
If an older adult chooses to be neglectful, people must respect
this choice in any attempt to help.
The Canadian Charter of Rights and Freedoms may be applicable
in the particular situation. Provincial/territorial laws may also
recognize certain rights and specify the process that must be followed
to provide care when it is believed that the older adult is at risk
due to self-neglect. Because these laws are changed on a regular
basis, it is important for you to be aware of and stay up-to-date
on the current laws in your province or territory. Your appropriate
provincial/territorial Office (addresses below) can help.
Do older adults who neglect themselves fully understand the
risk to themselves and to others?
Not necessarily, but as long as older adults have sufficient information
about their situation and are able to make decisions about it, without
endangering others, their choices must be respected and each case
must be dealt with individually.
It is important to recognize that even if an older adult's ability
is declining, incompetency must not be assumed. Help may be appropriate
if it is determined that a decline in ability, combined with other
factors such as physical or mental health problems, may be contributing
to a case of self-neglect.
However, help by family members and others must be offered voluntarily,
with the consent of the older person. Choice is a right of older
adults and is also essential for maintaining a sense of dignity
and personal control.
Is there a real danger of intruding on the civil rights and
privacy of older adults when intervening in cases of self-neglect?
Yes. Competent, self-neglectful seniors have been reported to various
authorities because of outside concern regarding their medical needs,
physical needs and unsafe surroundings.13
For this reason, older adults are especially concerned about
the implications of including self-neglect as a category of mistreatment.
Older adults who have not been declared incompetent have the right
to make choices about lifestyle and to live at risk if there is
no danger to others.
Prevention of Self-Neglect by Older Adults
Isolation and carelessness are two main causes of self-neglect
among older adults. Social support by family, community and formal
care providers is very important in helping seniors remain safely
in the community.14 By decreasing the
likelihood of isolation of older adults, these support systems may
help prevent self-neglect.
Intervention in Situations of Self-Neglect by Older Adults
Intervention in potential situations of self-neglect must always
recognize the rights of older people. When legal considerations
have been respected, family, community and social service and health
care interventions can, in many cases, help make the situation better.
Family Intervention
Family members may be the first to notice self-neglectful behaviour
among older people. Because relatives usually know the history and
the lifestyle of seniors in their family, they are often the best
judges of whether self-neglect is a relatively new development or
whether it has been a life-long habit. While there may be limits
to what family members can do, or will be allowed to do, here are
some possible approaches:
- Learn to recognize the signs of self-neglect
- Help the older adult find his/her own solution to the situation
(empowerment)
- Keep in contact with the older person; ask if there is anything
you can do Offer help and make suggestions about options to the
older adult
- Find ways that can reduce the older person's isolation
- Establish a connection, if there is none, between the older
adult and formal care providers.
Community Intervention
When family members need more support, or are absent from a self-neglectful
older person's life, there are many ways the community can help.
Friends, neighbours, and members of service clubs and religious
organizations can offer support to older adults who may be neglecting
themselves. These community members may be effective and more accepted
by older adults who already know, trust and respect them.
Community services such as friendly visiting, regular telephone
calls and volunteer driving may help reduce the isolation of the
older adult. However, even if the older adult is less isolated,
there may still be a certain amount of self-neglect. While reducing
isolation may help in some situations, it is not a complete solution
in and of itself.
The potential for self-neglect is much higher when older adults
are not able to obtain services, such as transportation, medical
care and adequate housing, among others.15
These services must be available and financially accessible
to older adults.
Social Service and Health Care Intervention
Formal care providers can help reduce isolation through coordinated
social and health care services such as transportation, meals-on-wheels
and homemaking and nursing services. However, formal care providers
can also experience difficulties in solving the challenge of isolation
of older adults if the individual chooses to remain isolated.
Social and health care services can focus on supplying the medical,
physical and environmental resources to meet the needs of older
adults who are self-neglectful.16 These
services must be seen as "needed" by the person; for example,
meals-on-wheels may be seen as an essential need while mental health
services may not. If the self-neglectful older adult admits the
need for a social or health service, there is a better chance for
help without compromising the person's rights. Communication between
formal care providers and self-neglectful older adults is essential.
It is important for formal care providers to establish rapport and
trust so the help offered is appropriate for that individual.17
Conclusion
Self-neglect by older adults is a complicated situation. It affects
the well-being of older adults as well as those around them. However,
family members, friends, neighbours and formal care providers can
offer help to self-neglectful older adults without interfering with
their rights regarding independence.
Endnotes
- Formal care providers refer to professional
and non-professional health care, social service and community
support workers.
- McCuan, E.R., & Jenkins, M.B. (1992). A
general framework for elder self-neglect. In E.R.McCuan &
D.R. Fabian (eds.), Self-Neglecting Elders: A Clinical
Dilemma. Westport, Conn.: Auborn House as cited in Byers, B. &
Zeller, R.A. (1995). Social judgements of responsibility in elder
self-neglect cases. The Journal of Psychology, 129(3),
331-344.
- Murphy, N. (1994). Resource and Training
Kit for Service Providers: Abuse and Neglect of Older Adults.
Ottawa: Minister of Supply and Services Canada.
- Longres, J.F. (1994). Self-neglect and social
control: a modest test of an issue. Journal of Gerontological
Social Work, 22(3/4), 3-20.
- Wisconsin Coalition Against Domestic Violence
(WCADV) in collaboration with the Wisconsin Bureau of Aging and
Long Ter Care Resources (BALTCR). (1997). Elder Abuse, Neglect
and Family Violence: A Guide for Health Care Professionals;
The National Centre on Elder Abuse at the American Public Human
Services Association. (1998).
- Longres, J.F. Ibid.
- Longres, J.F. (1994). Self-neglect and social
control: a modest test of an issue. Journal of Gerontological
Social Work, 22(3/4), 3-20; Vinton, L. (1992). An exploratory
study of self-neglectful elderly. Journal of Gerontological
Social Work, 18(1/2), 55-67.
- MacMillan, D. & Shaw, P. (1966). Senile
breakdown in standards of personal and environmental cleanliness.
British Medical Journal, (2), 1032-37 as cited in Roberge,
R.F. (1998). Le syndrome de Diogène : une entité gériatrique.
Canadian Family Physician, 44, 812-817.
- Canada. Canadian Charter of Rights and Freedoms.
- Harvey, W. (1993). Ethics in the Health
Care of the Elderly Person in Ethics and Aging. Ottawa: National
Advisory Council on Aging, 52-69. Cited in Murphy, N. (1994).
Resource and Training Kit for Service Providers: Abuse and
Neglect of Older Adults. Ottawa: Minister of Supply and Services
Canada.
- Murphy, N. (1994). Resource and Training
Kit for Service Providers: Abuse and Neglect of Older Adults.
Ottawa: Minister of Supply and Services Canada.
- Murphy, N. Ibid.
- Vinton, L. (1992). An exploratory study of
self-neglectful elderly. Journal of Gerontological Social Work,
18(1/2), 55-67.
- Keigher, S.M. (1991). Informal supportive housing
for elders: a key resource for preventing self-neglect. Journal
of Elder Abuse & Neglect, 3(2), 41-59.
- McCuan, E.R. & Jenkins, M.B. (1992). A
general framework for elder self-neglect. In E.R. McCuan &
D.R. Fabian (eds.), Self-Neglecting Elders: A Clinical Dilemma
(pp. 13- 24). Westport, Conn.: Auborn House.
- Longres, J.F. (1994). Ibid.
- Mixson, P.M. (1991). Self-neglect: a practitioner's
perspective. Journal of Elder Abuse & Neglect, 3(1),
35-42.
Suggested Readings and Videos
Davis, D. & Miniette, R. (Producers). (1988). The Golden
Years? [Videotape]. Seattle: KCTS Ass.
Murphy, N. (1994). Resource and training kit for service providers:
Abuse and neglect of older adults. Ottawa: Minister of Supply
and Services Canada.
Wisconsin Coalition Against Domestic Violence (WCADV) in collaboration
with the Wisconsin Bureau of Aging and Long Term Care Resources
(BALTCR). (1997). Elder abuse, neglect and family violence: A
guide for health care professionals.
Wright, L (Director), Basjajian, S., & Spotton, J. (Producers).
(1987). Mr. Nobody [Videotape]. Toronto: National Film Board.
Provincial Contacts
For legislation and other information, contact your provincial/territorial
office:
Yukon Territory
Department of Health and Social
Services
P.O. Box 2703
Yukon Government
Whitehorse, Yukon Territory
Y1A 2C6
Telephone: (867) 667-3798
Fax: (867) 667-3096
Northwest Territories
Department of Health and Social
Services
P.O. Box 1320
Yellowknife, Northwest Territories
X1A 2L9
Telephone: (867) 873-7925
Fax: (867) 873-7706
British Columbia
Office for Seniors
Ministry of Health and Minister
Responsible for Seniors
1-2, 1515 Blanshard Street
Victoria, British Columbia
V8W 3C8
Telephone: (250) 952-1238
Fax: (250) 952-1159
Alberta
Alberta Community Development
Seniors Division
P.O. Box 3100
Edmonton, Alberta
T5J 4W3
Telephone: 1-800-642-3853
(toll-free in Alberta)
(780) 427-2705 (outside the province
and in Edmonton)
Fax: (780) 422-5954
Saskatchewan
Saskatchewan Social Services
1920 Broad Street
Regina, Saskatchewan
S4P 3V6
Telephone: (306) 787-3494
Fax: (306) 787-1032
Manitoba
Manitoba Seniors Directorate
822 - 155 Carleton Street
Winnipeg, Manitoba
R3C 3H8
Telephone: 1-800-665-6565
(toll-free in Manitoba)
(204) 945-6565 (outside the province
and in Winnipeg)
Fax: (204) 943-2314
Ontario
Seniors' Secretariat
Office of the Minister Responsible for Seniors
Mowat Block, 3rd Floor
900 Bay Street
Toronto, Ontario
M7A 1R3
Telephone: (416) 327-0510
(in Toronto)
1-888-910-1999
(toll-free in Ontario)
TTY: 1-800-387-5559
Fax: (416) 326-9338
Quebec
Ministère des Relations avec les citoyens et de l'immigration
360 McGill Street
Montreal, Quebec
H2Y 2E9
Telephone: (514) 873-4546
(in Montreal)
1-800-363-1363
(toll-free in Quebec)
or (819) 772-3232
Fax: (514) 873-7349
New Brunswick
Department of Health and Community Services
Office for Family and Prevention Services
P.O. Box 5100, 520 King Street,
4th Floor
Fredericton, New Brunswick
E3B 5G8
Telephone: (506) 453-2950
Fax: (506) 453-2082
Nova Scotia
Senior Citizens' Secretariat
4th Floor
Dennis Building
1740 Granville Street
P.O. Box 2065
Halifax, Nova Scotia
B3J 2Z1
Telephone: 1-800-670-0065
(toll-free in Nova Scotia)
(902) 424-0065
(Halifax-Dartmouth)
Fax: (902) 424-0561
Prince Edward Island
Acute, Medical and Continuing Care Division
Department of Health and Social
Services
P.O. Box 2000
Charlottetown, Prince Edward Island
C1A 7N8
Telephone: (902) 368-6132
Fax: (902) 368-6136
Newfoundland
Continuing Care Division
Department of Health
Confederation Building
West Block, P.O. Box 8700
St. John's, Newfoundland
A1B 4J6
Telephone: (709) 729-3657
Fax: (709) 729-5824
On the Internet, you can consult the Senior Policies and
Programs Database (SPPD) for which seniors are the primary beneficiaries.
It was developed and is maintained by federal, provincial and territorial
governments.
Its Web address is: http://www.sppd.gc.ca
Bibliography
Byers, B. & Zeller, R.A. (1995). Social judgements of responsibility
in elder self-neglect cases. The Journal of Psychology, 129(3),
331-344.
Davis, D. & Miniette, R. (1988). The Golden Years? [Videotape].
Seattle: KCTS Ass.
Fabian, D.R. & McCuan, E.R. (1992). Elder self-neglect: a blurred
concept. In E.R. McCuan & D.R. Fabian (eds.), Self-Neglecting
Elders: A Clinical Dilemma (pp. 3-12). Westport, Conn.: Auborn
House.
Keigher, S.M. (1991). Informal supportive housing for elders: a
key resource for preventing self-neglect. Journal of Elder Abuse
& Neglect, 3(2), 41-59.
Longres, J.F. (1994). Self-neglect and social control: A modest
test of an issue. Journal of Gerontological Social Work,
22(3/4), 3-20.
McCuan, E.R. & Jenkins, M.B. (1992). A general framework for
elder self-neglect. In E.R. McCuan & D.R. Fabian (eds.), Self-Neglecting
Elders: A Clinical Dilemma (pp. 13-24). Westport, Conn.: Auborn
House.
Mixson, P.M. (1991). Self-neglect: a practitioner's perspective.
Journal of Elder Abuse & Neglect, 3(1), 35-42.
Murphy, N. (1994). Resource and Training Kit for Service Providers:
Abuse and Neglect of Older Adults. Ottawa: Minister of Supply
and Services Canada.
Neugeboren, B. (1991). Community responsibility for the self-neglectful
client. Journal of Aging & Social Policy, 3(1/2), 111-126.
Podnieks, E. (1992). National survey on abuse of the elderly in
Canada. Journal of Elder Abuse & Neglect, 4(1/2), 5-58.
Roberge, R.F. (1998). Le syndrome de Diogène : une entité gériatrique.
Canadian Family Physician, 44, 812-817.
The National Centre on Elder Abuse at the American Public Human
Services Association. (1998). The National Elder Abuse Incidence
Study: Final Report. Washington, D.C.: The U.S. Department of
Health and Human Services.
Vinton, L. (1992). An exploratory study of self-neglectful elderly.
Journal of Gerontological Social Work, 18 (1/2), 55-67.
Wisconsin Coalition Against Domestic Violence (WCADV) in collaboration
with the Wisconsin Bureau of Aging and Long Term Care Resources
(BALTCR). (1997). Elder Abuse, Neglect and Family Violence: A
Guide for Health Care Professionals.
Wright, L. (Director), Basjajian, S. & Spotton, J. (Producers).
(1987). Mr. Nobody [Videotape]. Toronto: National Film Board.
This document was prepared under contract by Michael J. MacLean,
Director, AgeWise Inc., with the assistance of Chris Clapp and
Leigh Doussett. The contribution of the following individuals
is gratefully acknowledged: Dr. Jean Kozak, Director of Research,
Sisters of Charity of Ottawa; Janice Ireland and Liette
Lalonde, Family Violence Prevention Unit, Health Canada.
NCFV contact information
For additional information, contact
The National Clearinghouse on Family Violence
Family Violence Prevention Unit
Health Issues Division
Public Health Agency of Canada
Health Canada
Address Locator: 1909D1
9th Floor, Jeanne Mance Building, Tunney's Pasture
Ottawa, Ontario, K1A 1B4, Canada
Telephone: 1-800-267-1291 or (613) 957-2938
Fax: (613) 941-8930
Fax Link: 1-888-267-1233 or (613) 941-7285
TTY: 1-800-561-5643 or (613) 952-6396
Website: www.phac-aspc.gc.ca/nc-cn
This publication can be made available in alternate formats upon
equest.
Ce feuillet de renseignements est également disponible en français
sous le titre : Négligence
de soi chez les aînés
July 1999
The opinions expressed in this report are those
of the author and do not necessarily reflect the views of Health
Canada.
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